"SECOND OPINION" WHAT QUESTIONS TO ASK WHEN MEETING WITH DRS.

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GTA
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 10/3/2009 2:42 PM (GMT -6)   
What Questions to Ask when Meeting with Drs for "SECOND OPINION" ?

I will be meeting with a "MULTI DISCIPLINARY GENITOURINARY ONCOLOGY GROUP" A MEDICAL ONCOLOGIST, A RADIATION ONCOLOGIST, AND AN UROLOGIST.

All of them are tops in their fields and professors at a reputable university. They also have a PROTON facility at their hospital.

I need your help for ideas, what to ask them during my consultation. I prepared some questions but your thoughts and input will be very helpful.

Thanks GTA

I am 57 very active and my diet is 98% animal fat free for the past 30 years. No medical problems at all. PSA 3.4 biobsy 3 out 12 3+3's all. Gleason 6.

Post Edited (GTA) : 10/3/2009 1:47:23 PM (GMT-6)


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/3/2009 10:12 PM (GMT -6)   
co ask. I need to know too.
husband 55 years young
PSA July 2009 5.5
Diagnosis confirmed Sep 21, 2009
12 Needle Biopsy = 7 clear , 5 postive
<2%, 10%, 25%
Gleason Score (3+3) 6 in all positive cores
stage T1c
Surgery or Radiation?


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/4/2009 8:23 AM (GMT -6)   
OhioState, what is GLTU you mentioned in your post?

the 13 points you wrote are the excally our urologist talked with us when we met him last time. So it would be the same questions to ask when you meet other doctor for second opinion.

My talked with my husband, he doesn't want to travel to another city to see doctors. He said his job doesn't allwo him take day off here and day off there.

Do you know any good one in columbus? what'd you think doctors in OSU?

Thanks!

Jennifer

Oh, btw, filming is interesting to us, both my husband and I were involved in visual arts quite bit. Don't you think besides research PC, we also should enjoy life?
husband 55 years young
PSA July 2009 5.5
Diagnosis confirmed Sep 21, 2009
12 Needle Biopsy = 7 clear , 5 postive
<2%, 10%, 25%
Gleason Score (3+3) 6 in all positive cores
stage T1c
Surgery or Radiation?


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/4/2009 8:44 AM (GMT -6)   
Good morning, Jennifer,

When you go to have a second or third opinion, you basically want the same questions, unless you have learned some new ones to ask in between, and you want to give the next doctor in line a clean slate to work with. Act like he/she is the first, and even though you may have already formed some opinions of your own at this point, pretend you know nothing. You want to extract a full and unbiased opinion from the next doctor, so that you can compare notes and opinions later.

I went through this process most recently in choosing a radiation oncologist. Spoke to 3, and with each, acted like I knew nothing at all and let them tell me what they thought about my case. When my process was over, it was interesting how much they all agreed with. In my case, all 3 thought I should have had surgery first, which I did, and all 3 thought I was having re-occurance, all 3 thought I needed to start salvage radiaition, and only 1 of the 3 suggested addding HT to the treatment. But when pushed, he said he didn't really know if I needed it, and more importantly to me, he said he didn't know if it would help.

The point, let the 2nd, 3rd, or even more doctors examine the case, read the notes, and let them draw their own uncoached opinions. Then you will have a better chance of comparing apples to apples. That is how I did it.

Hope your husband's mental state is holding together through all this process, knowledge generally helps to overcome fear, but sometimes an overload of knowledge can make you feel more scared if you read too much. Sounds like he has you to absorb some of what you are learning in advance.

With both my sons being in the professional sound studio industry, me swtiching from classical writing to filming seems to be a natural fit.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/5/2009 6:44 AM (GMT -6)   

It might be interesting to ask some questions that most docs have not heard or not prepared (already) to answer to, just to see what words you might hear and encounter, it could give you a good clue for many reasons. Do not be afraid to use your streets smarts, intuitive mindset, gut impression (etc.) and those entangibles that was given to you.

Ideas for off the wall questions:   what do you think of surveilance or non-treatment at this juncture  (listen closely is my suggestion),  do you think I should get different opinions (and if no, why not???), do you follow up with your patients long term (years down the road, even if not coming to your office????). Don't I actually  (most patients here now) have reasonable time to make my decision and consider all methods???  (the response is what you are looking for). What are the negative side effects that could happen, even if you normally have not had such in your experience??? (listen to what may be missing...especially if you do your homework on side effects)

Have you ever had problems with any patient(s) in doing this proceedure and what was the worst or it or their outcome???  (they don't hear that one often)  What if your treatment fails me in a short period of time, what then is next???  What would you say is your cure rate in your clinical experience (or what do my chances seem to be)???  (write down or tape record the answer, perhaps)

These are just suggestions, what you might like to look for is either sales tactics, overstatements, bias, pressure to commit asap. , perhaps agendas, perhaps out right lying (it is possible, I have witnessed such)*-(glass 1/2 empty?)-  (no this is part of the PCa Jungle)   nono        

*(ok-now full glass and cheerio)  turn   Also look for truthfulness, sincerity, frankness, unbiased verbage, caring, compassion, interest, non-pressure and confidence-especially when confronted with you looking/getting second opinions.  (this is the better side of the Jungle..has edible fruit...LOL) :-)

Hey if you are going to in effect interview mutliple docs and get your opinion(s), you need to compare and weigh everything you heard, good-bad-ugly. Then make your best decision based upon not only what docs tell you, but all sources lead you to...use books, internet, other patients, PCa support groups,  and such. A complete understanding of PCa is your best heads up as to what you have to put yourself through in treating this thing. Suggest that you try to be unemotional (very difficult) and analyze all possible considerations, before diving into your possible one way decision (you cannot take it all back come monday morning-quarterbacking). rolleyes

Hey if this rocks your world good!


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/5/2009 12:19 PM (GMT -6)   
zufus, good post!


make sense to me.


thanks

Jennifer
husband 55 years young
PSA July 2009 5.5
Diagnosis confirmed Sep 21, 2009
12 Needle Biopsy = 7 clear , 5 postive
<2%, 10%, 25%
Gleason Score (3+3) 6 in all positive cores
stage T1c
Surgery or Radiation?


GTA
Regular Member


Date Joined Aug 2009
Total Posts : 27
   Posted 10/6/2009 4:11 PM (GMT -6)   
I am sure most of us when meeting with doctors forget half the questions we wanted to ask. I am following your advice and taking ideas from all of you good people and making a list of questions for 3 different specialty Doctors I am meeting with soon. If you have any specific question you want me to ask, that you would ask if you had the chance, I will be glad to do so and summarize the answers for you after the meeting. It will be a group meeting as I mentioned above, and plenty of time to discuss any concern.
57 year old
1st. biopsy atypical
2nd. biopsy 7/07/09 3 out 12 cores positive all 3x3's gleason 6
PSA 3.4
T1c
Had a moderate PBH for past 4, 5 years. Medication did not help.
Deit: 98% animal fat free for past 25 years at least.
Drinks: Mostly red wine with lunch/dinner
Activity: Walking 5 to 7 miles every other day. Cycling 12 to 15 miles every other day.
Action taken: Still in the research and learning stage.

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