Swelling in leg post prostate surgery

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Berniemaree
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/4/2009 3:54 AM (GMT -6)   
My husband had a biopsy at the end of July and was diagnosed just days before he turned 46 in early August. We were told he had an aggressive cancer of the prostate with his gleason score being a 9. Surgery went forward on the 11th of September and he came home from hospital after not quite 3 days in hospital. He had temps and chills whilst in hospital but was not put on any pain management or other meds for temperature. After a couple of days he went back to the Doctors with a suspected chest infection and was finally out on antiobiotics. In the second week post surgery, his right leg began swelling and he was experiencing tightening and difficuly in walking and had extreme pain to his right groin area. After a couple of attempts to get some help from the Doctor, he finally fronted up to emergency and lay on the floor until he was seen by someone. A CTwas ordered for the following day when his catheter was to be removed and they found he had a fluid build up in his groin, which they drained over 200mls. Apparently they told us that his veins were blocked and the fluid was not passing through. We thought all would be well but again the pain came on and then the swelling went down to the lower part of his leg and so back to the hospital. They decided not to drain as any fluid would take up to 2 weeks to build up again. My husband had been having temps post surgery and chills, which he started to have again whilst in emergency. They ran tests and took bloods for an infection but all came back clear. So home again but still the pain and the tightness in the leg persisted, especially when he moved around too much and his temp went up to 38.9....It has been now a month since surgery and the swelling has gone down alot but the pain is there if he is walking too much. A simple trip to the shed is enough for him. What I need is answers from others who may have had similar post surgery complications as this is frustraing to my husband who was told that he would pretty much get back on his feet quickly given his age and fitness. He had his lymph nodes removed and all his nerves, so is battling emotionally with not having any function at all and we were not told of the possible complication of his leg. Many I have spoken to want to be "Doctors" and I have researched as well possibles of what he may have that the Doctors and specilaists are not telling us. We are going back on the 8th for another CT and drainage....and hopefully better answers to what is happening!!

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/4/2009 10:39 AM (GMT -6)   
Hello Australia from Canada.

I'm sorry to hear of your husband's troubles. I didn't have such a problem and I can't provide any help but I did want to say hello and wish you the best.

We have in this forum, as you'll have seen, some very smart knowledgeable members and I'm sure if anyone can be helpful you'll hear from them. One thing I know they'll be looking for is more information on your husband's basic stats --- Gleason, pathology, etc. such as appears in our signatures. In the upper left of the sceeen if you click on "control panel" you'll be able to go to edit profile and add this information, including his age, 46, which you've given. Thanks!

One thing I've learned from my own experience, and different swellings, and such, is that surgery is a major assault on our innards and each body has a unique reaction, and combination of reactions, to this assault. Another thing I've learned is that time mostly takes care of most issues. BUT that doesn't mean you don't want to be all over this and get answers. Please keep us posted.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 10/4/2009 6:49 PM (GMT -6)   
Hello Bernimaree,
 
I did not have surgery but did have a "full pelvic" radiation to target the lymph nodes. I was told that there was a chance of swelling in my lower extremities as a result of this. The swelling is caused by the build up of lymphatic fuid. I did have one episode of swelling just behind my knee with a moderate bit of pain. I would suspect that since your husband had  his nodes removed that this is the source of the swelling. I do  not know if it gets better with time but I have had only the one episode in more than 18 months.
 
Best of luck to the both of you.
Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
 
 
 


brainsurgeon
Regular Member


Date Joined Jul 2009
Total Posts : 137
   Posted 10/5/2009 3:51 AM (GMT -6)   
Your husband sounds like he had/has a collection of chyle (lymphatic fluid) in his pelvis. If large, this could hamper the return of blood from a leg and cause swelling and pain. The chyle collects because of the surgery on the pelvic lymph channels. It is not a common complication, but it is one that can occur. I got the impression from my doctor that this was usually treated with drainage and time. The leg swelling is worrisome because with poor venous return, a situation could arise with blood clots forming in the leg. This could be serious. A pelvic ultrasound test should show if there is a cyst and how large it is. If I were you, I would play "the squeeky wheel gets the grease" with my doctor and impress him with your concerns.

Hopefully, this situation will resolve with the passage of time.
70 years old USA citizen
Prostatic carcinoma dxed June 2009 by PSA (7.0) and then Bx
PSAs yearly since 2001 ranged 1.52 to 7.0
Neg. CT and BS
4 of 8 biopsies positive (all right side) Gleason Score 3+4=7
Robotic assisted total prostatectomy and node excision July 2009 in Luzern, Switzerland
pT2c G3 pN0 (0/14)
Catheter out in 5 days (home in 3 days)
No incontinence
Potency: beginning tumescence??? at 3 weeks post-op


Berniemaree
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/5/2009 6:20 AM (GMT -6)   
Thankyou so much for your reply. Unfortunately no one has told us what we want to hear in regards to what my husband is suffering from post surgery. What I have read from your post makes sense. I have been researching possibles but do not want to self diagnose. The frustration here is that the GP (not our normal one) who sent Adam for his blood test failed to act on things when the swelling started. All Adam (husband) was told was that it was something that he had seen before and that Adam would have to deal with long term. (I am thinking, and only thinking mind) that he may have thought Adam had lymphedema. We did get told possible vein blockage, with one Doctor even saying a clot....but no clear answers as yet.. We are going back on the 8th for possible more drainage and hopefully clear answers as to what the cause and appropriate management could be. Adam is feeling better each day but still needs to rest so as not to start the tightness and pain in his leg again. Today he has also had blood in his urine, which before today was clear. he felt like he passed something the size of a grain of rice before the urine ran cloudy....Not sure what this means???
Again thankyou for your reply and support to my post.
Bernie
Age 46 in Aug '09 at news of 12 of 12 biopsies positive
gleason score 9
 
September 11th radical prostatectomy, Lymph nodes and surrounding tissue removed. Nil nerve sparing.
Home after 3 night stay
4 days post surgery breathing difficulties with chills and a temp, diagnosed with a chest infection
Approx 11 days post surgery, right upper leg swelling, with tightness when walking and extreme pain in groin area
Chills and temp still eveident but nil for any sign of infection
CT scan on 25th Sept 200mls fluid drained. Catheter removed  25th Sept
Pathology report good, with clear result with only a few spots outside the prostate, on a watch with PSA
Possible radiation followup in few weeks
small leakage problem at night but good during the day, with some emotional issues re: nerves and leg
Approachng a positive outcome
   

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/5/2009 8:07 PM (GMT -6)   
Hi Berniemaree,
Welcome to HealingWell. I was on the Support Prostate Cancer Awareness page at Facebook and saw you were sent our way by one of the members there. Your husband is having a unique post operative issue that was somewhat close to an experience I had. I had an issue in my left leg for about a month. Doctors thought it wasn't too unusual and it did eventually go away. Basically, I had no lateral movement of my left leg. If I hung my left leg over the side of the bed, I could not move it back onto the bed. My brain was telling it to move but it did not move. I was able to walk ok but it took a month to get full mobility of that leg back. Doctors attributed to, like yours says, the pinching of a vein during the procedure.

I believe that it is possible that your husbands infection can cause complications as well as the surgery. I would bet if it worked out like it did for me that he will feel much better soon.

I have many friends in the land down under. In fact I met most of them through prostate cancer. One day I hope to meet them in person. They feel like family to me...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Berniemaree
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/6/2009 12:12 AM (GMT -6)   
Thanks Tony for your reply....My husband is a very unique person and a positive one. He was having a lot of trouble with his right leg, especailly when it came to moving it or trying to lift it. At times, because of the swelling he had to use both hands just to lift the leg. Each day the leg is feeling better, again if he does not do too much. It will be a month since surgery on the 11th Oct, so I guess it is still only early days. But trying to keep a man quiet who is usually climbing up and down a ladder, or out bush walking is some what difficult. And as we are heading into the warmer months down here, I can only hope that recovery is alot quicker for him. I have recently joined the prostate awareness group here in our home town and have met some really lovely people. I am hoping to become alot more involved in the research of all cancer further down the track, as besides Adam being diagnosed I have also lost two (2) sisters to the disease, so I have been on the cancer track before....
Thanks for your post again and maybe one day, a visit to down under won't be that far away!
Bernie
Age 46 in Aug '09 at news of 12 of 12 biopsies positive
gleason score 9
 
September 11th radical prostatectomy, Lymph nodes and surrounding tissue removed. Nil nerve sparing.
Home after 3 night stay
4 days post surgery breathing difficulties with chills and a temp, diagnosed with a chest infection
Approx 11 days post surgery, right upper leg swelling, with tightness when walking and extreme pain in groin area
Chills and temp still eveident but nil for any sign of infection
CT scan on 25th Sept 200mls fluid drained. Catheter removed  25th Sept
Pathology report good, with clear result with only a few spots outside the prostate, on a watch with PSA
Possible radiation followup in few weeks
small leakage problem at night but good during the day, with some emotional issues re: nerves and leg
Approachng a positive outcome
   

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/6/2009 12:32 AM (GMT -6)   
Yea me too. My mother was diagnosed with cervical cancer just New Years day 2008. She died two months later. It just seemed so wrong to lose her so fast. about ten years earlier my step father died of lung cancer on the same day my wife miscarried a late pregnancy. But my wife and I do believe that that baby did make it to heaven, and I do believe that my loved ones are together...

I also believe that Adam and I will be around for many years to come...Maybe have to talk about it when I get down that way...:-)

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Berniemaree
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/6/2009 12:51 AM (GMT -6)   
My first sister, Clare was diagnosed at 34 of bowel cancer in 1995, with my other sister Teresa being diagnosed with lung cancer in early 1996. Unfortunately Teresa only lived for ten weeks after being diagnosed, and died on the 13th March, 1996. Clare went on to live until 13th March 2000. Both died on the same day, four years apart, with us celebrating the life of both and still grieving the loss of both on the same day.
We have come a long way in cancer research and I know Adam will be around for a long while to come yet....who else would be able to put up with me!!
Bernie
Age 46 in Aug '09 at news of 12 of 12 biopsies positive
gleason score 9
 
September 11th radical prostatectomy, Lymph nodes and surrounding tissue removed. Nil nerve sparing.
Home after 3 night stay
4 days post surgery breathing difficulties with chills and a temp, diagnosed with a chest infection
Approx 11 days post surgery, right upper leg swelling, with tightness when walking and extreme pain in groin area
Chills and temp still eveident but nil for any sign of infection
CT scan on 25th Sept 200mls fluid drained. Catheter removed  25th Sept
Pathology report good, with clear result with only a few spots outside the prostate, on a watch with PSA
Possible radiation followup in few weeks
small leakage problem at night but good during the day, with some emotional issues re: nerves and leg
Approachng a positive outcome
   

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