First Radiation Treatment Completed

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 11:19 AM (GMT -6)   
Just got back from the radiation clinic.  One treatment done, thirty-eight to go!  (Don't worry to my distracters here:  I won't give a day by day blow of radiation treatments, but for the sake of our new people, and introduction first hand to the process I believe is educational.  And please use  the "block user" feature if my posts annoy you, that is what it is there for)
 
With the suprapubic catheter in place, there was no drinking or trying to hold in vast quanities of water ahead of  time, that is a blessing in itself.  They were able to work around my new catheter without any problems, and were quite careful not to hurt me where it exits my body, as it is still very sore 4 days after surgery.
 
I was placed and positioned into my body mould on the table under the machine.  They re-marked me as some of the previous marks were faded out after 2 weeks.  Then they give you a rubber do-nut thing to hold onto and to give your hands something to do.  The machine made two conventional x-ray passes.  They said they would do that each day, and its for a final alignment with all the tattooed dots on me.  Then it was show time.
 
You don't move.  Literally, you are on a fixed table.  The IMRT machine moves around you.   It positioned itself at weird angles around me and then would zap, you hear the actual zap, but couldn't feel anything.  The machine moved altogether 7 times, so that could radiate me in different doses in different areas of the prostate bed.
 
It took about 20 minutes from start to finish.  For now, they have changed my regular zap time from 1130 to 230 PM, subject to change.
 
I talked to my radiation oncologist when finished.  She said she did increase the length of the treatments and the total greys higher, about to the point of a primary treatment.  She determined that the PC in me was very agressive right from the start, both pre-surgery and post surgery, and that anything less than this dosage might prove to be entirely ineffective.  I have to trust her judgement on that point.  You only get once chance with this salvage treatment, so I guess the more the merrier.
 
The staff was great and caring, the equipment state of the art.  I asked if they ever did Proton, and they said no, and that they never would.  Something about the insurance companies don't feel inclinded to pay the difference in price over IMRT treatments, and that it would really limit their customer (patient) field to justify the hardware and training.
 
Back home resting, the new cath is working well ,but after 4 days, still pretty sore.  Hoping that will improve soon.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/5/2009 11:56 AM (GMT -6)   
David, glad to hear that your experience this morning was a positive one.

Yes, our doctor will be using IMRT on John. In fact, she gave us a tour of the treatment room and showed up the machine and the laser beams they use to mark your coordinates. It was all quite fascinating.

Good luck with your treatments this week, and do keep us posted. I am especially interested in your experiences and have cut and pasted your post this morning into an email I sent to John at work.

You continue, as always, in our thoughts and prayers.

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Appointment with two radiation oncologists on September 29 and October 2.


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/5/2009 12:08 PM (GMT -6)   
David, glad the first treatment went well. Keep us posted. we care.

My father-in-law had 37 radiation back to 13 years ago and he is doing just fine. You are doing great.

Good luck and wish you recover soon.

Jennifer
husband 55 years young
PSA July 2009 5.5
Diagnosis confirmed Sep 21, 2009
12 Needle Biopsy = 7 clear , 5 postive
<2%, 10%, 25%
Gleason Score (3+3) 6 in all positive cores
stage T1c
May be Surgery, but where? who?


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 12:16 PM (GMT -6)   
Sephie, good thing about HW, there are usually people ahead of us in exeprience, and then we can pass it on the next group of new folks, all first hand experience. I was fasicnated by the machine, it was two tone, ivory and yellow, and had 2 tv screens that the patient could see from any angle. Today, there was only background music which was fine with me, because I was much more interested in the actual process.

Give my best to John. Got a long way to go, my dr. said she would work with me on any potential treatment side effects, she went through t he trouble to read the notes on my case 10 years ago when I had previous radiation, and saw what a hard time I went through. She is trying to make it easier. She spoke to my uro/surgeon who told her how frustrated he is with all these blockages and strictures, said it just wasn't normal. More vindication for having this SP catheter installed for the duration.

Jennifer, thank you too. Glad your father in law is doing well after all these years.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 10/5/2009 12:50 PM (GMT -6)   

Greetings, David.  Glad it went well and trust the future ones will go just as well. 

Trust the job interview process is going well.  I know it's difficult to have 2 distinctly separate tracts - cancer treatment and job search.  Hang in there - something good will happen on both fronts.  David


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 10/5/2009 1:32 PM (GMT -6)   
 
 
David,
 
Glad to hear the first treatment went well and I find all your information very helpful.  Who knows what we all have coming down the road.
 
Jerry1 
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  3+3= 6 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
6/12/09 new gleason score of 4=4
Developed stone in bladder may require surgery
 


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 10/5/2009 2:00 PM (GMT -6)   
David,

Thank you for the post. Although I am hopefully confident that I won't have to go through radiation, I appreciate you taking the time to post the first hand knowledge.

I am sorry you are going through the soreness bit, but I am glad the SP seems to be working out for you. I just can't figure out why you are having the soreness with it and I did not.

Rest up, feel better and good luck with the findings from the job interview.

We leave for TN on Thursday. Should be in your neck of the woods sometime late next week.

Be well my brother,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 10/5/2009 2:46 PM (GMT -6)   
David,
Thanks for the report and for the insight into a first IMRT treatment. I expect that I am a few weeks behind you.
What did you finally decide to call the supra-puber? I wonder if they used a #2 Phillips head screwdriver on you instead of a #1. I understand the #1 is much less painful. Oh well....
Al the best.
Roger

 Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.

2/6/09              Routine physical, with DRE and PSA Test. PSA 4.02.   Referred to Urologist.

4/20/09            TRUS  w/needle biopsy

4/23/09            Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.

                        CT scan and Bone Scan both negative. Stage T2C.

8/27/09            DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.

9/8/09              Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion.  Stage T3b.

9/30/09            PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Prostate Oncologist and Radiation Oncologist. Appointments set for 10/8.

 

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradually getting better, with dramatic reduction in leakage around 9/20. Currently on 1 pad during the day and one at night (for security). Actually totally dry at night. (Pressure off the bladder neck?)

 

“I’d rather die while I’m living, than live while I’m dead.” (Jimmy Buffett. Changes in Latitude, Changes in Attitude.)

  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 2:50 PM (GMT -6)   
David/CPA - thanks, yeah, it was weird last week - Wednesday all dressed up for a formal/technical job interview with a defense contractor, then Thursday morning - being prepped for surgery. Two different worlds, hardly a chance to get bored.

Jerry - thanks, thats for sure, so I like to read all the stories, never know when one might travel it next.

Sonny, I hope and pray you never go down this path. Trusting your surgery did the trick, that was my original aim too. On the SP catheter, two reasons I think for the pain. Yours, I bet you money, being only for a few days, was probably much smaller in diamteter. This one is for long term use, and my surgeon specifically said he was going for the largest diameter he could put int, as it will have to be there up to 3 months, longer if things get complicated. Plus, yours was just one more hole along with your robotic holes. This can be best compared to a very deep puncture wound, had to get through all of me (there's a lot of me), plus the bladder wall. It is healing clean, but hurts deep at times, even 4 days out. Still glad I did it, and so was my rad. oncl. today when we spoke, she thinks it was in my best interest for the near future, to eliminate one more source of irratation and pain, and to avoid any ER type dealings with another blockage. Even the day before surgery, my bladder neck was quickly closing up again.

Hope you are still on the super healing path.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


6071
Regular Member


Date Joined Jul 2008
Total Posts : 112
   Posted 10/5/2009 2:51 PM (GMT -6)   
hi dave
glad to hear it went ok to day good thing about the no drinking or trying to hold water ahead of time
i find it hard at times to hold it in and if you go you have to start again we drink the water about 30 min
before treatment
I talked to the radiation oncologist last week to increase the length of the treatments and the total greys from 66 to 72 but the standard hear is 66gys for no reoccurrance and we use the The Phoenix Definition Of Biochemical Failure
i still get Panic Attacks when the table is jacked up but i only have 6 treatments more to go
do you have foods and drinks to avoid
i am getting IGRT Photon Radiation Therapy 3DRT
The machine is a Elekta Synergy Linacs linear accelerator
no side effects as of yet a bit tired
wall dave is has be a long year for you i hope this is the last of the hell for you
good luck with the rest of the radiation


Age 61 at DX
Biopsy 7/2008 Positive 1 of 12 cores positive 3+4 5% To 10%
Open Radical Prostatectomy 15/10/2008
Stage pt2c
Post op staging Gleason's Score 3+4=7
apical margin is focally positive
no extraprostatic extension
Seminal vesicles and lymph nodes clear
Catheter out on the 13/11/2008
4 week PSA < 0.1
26/1/2009  < 0.1
20/4/2009 < 0.1
11/6/2009 ultra sensitive psa 0.07
20/7/2009 < 0.1
26/8/09 Starting IGRT 
 






Post Edited (6071) : 10/5/2009 3:16:04 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 3:10 PM (GMT -6)   
6071,
thanks for the encouragement. glad you are almost through yours.
I am on the Novalist Machine, not sure what model, will find out, and mine is IMRT.

My rad. doctor feels strongly that I needed a min. of 70 greys, due to my pre-surgery and post-surgery psa velocity issue

It only because of the installation of the suprapubic catheter that is keeping me from the drinking and holding the water issue. when i was done today, simply went and emptied the leg bag and drove home.

Being in the machine doesnt bother me, over the years, got use to that with other radiation treatment, multiple MRI's etc. It does bother some people. I just close my eyes and daydream, while they had happy music coming through speakers. Learned a long time ago to hold still for long periods of time. The one treatment person said that I was like a corpse on a tray, made me laugh.

good luck to you, brother, on the rest of your treatment.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 10/5/2009 4:17 PM (GMT -6)   
David: It's about time you got a good break. So happy that it went well for you.

You are the bomb!

Jeff T
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 4:43 PM (GMT -6)   
Thank you Brother Jeff, getting going is half the battle. Hope you are still on the mend.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


T40
Regular Member


Date Joined Oct 2009
Total Posts : 103
   Posted 10/5/2009 4:50 PM (GMT -6)   
You have a great attitude. Thats more of the battle then most will admit to.
Age 40
Pre-op PSA was 5.8 from wellness test on May 19, 09
Follow up test from uro was 4.6 with a 9.3% free psa
Gleason 3+3 in one core, 3+4 in second core of 12 samples taken
Uro recommended Robotic for someone of my age. My research confirms.
Surgery performed August 19th, 09.
One side nerves spared. Nerve graft on other side.
Six weeks incontinence almost over. ED a work in progress but seeing some response.
Post op October 2nd, 2009 All margins were negative. PSA results in a few days.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 5:32 PM (GMT -6)   
T40, that attitude , if that what it is, is a strong will to survive this beast, and to enjoy my wife and family a few years later. Thanks
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


divo
Veteran Member


Date Joined Jul 2008
Total Posts : 637
   Posted 10/5/2009 5:52 PM (GMT -6)   
Hi David,
You sound strong my friend! I'm Happy that you have such a caring doctor and with your tremendous attitude you will have these next days behind you quickly! I saw a quote today...: "The state of your life is nothing more than a reflection of your state of mind," Your state of mind has always been cheerful, positive, encouraging, and kind. Best of luck to you....Diane
Husband Pete
dx Jan 2001 gleason 4 + 3 PSA 16.5
Seed implant and conformal radiation and Lupron from Jan 2001 to Jan2002
2005 Dec PSA began to rise from .5 to 8 within 6 months
Salvage surgery at MSK 9/06 Dr. Eastham
Fistula operation 2/07 MSK Dr. Wong
Many cystoscopies and ER visits with strictures
Catheter for one year....Catheter taken out Sept 07..
Total Incontinence since then....
PSA .52 3/08
AUS Operation at MSK Sept 8 2008 Dr. Sandhu
Activated Oct 28th Dr. Sandhu..MSK
Some difficulty with AUS arising Nov 10 2008
Meeting with Dr. Sandhu to discuss AUS problems and new PSA test Dec 11, 2008
PSA .6 12/08
AUS improving..only 2 pads a day and one at night
Complete hip replacement surgery Dr. Waters Gainesville, FL 1/9/09
Hip replacement total success..pain gone!!
PSA .7 2/10/09
PSA .9 8/29/0


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 6:07 PM (GMT -6)   
roger, thanks, not sure about the name. am convinced is was a large phillips head, feels like one every time i bend forward or lift any weight against that area. right now, the new one is my best friend and keeps me from worrying about an inpending blockage.

diane, thanks of course. hope pete is doing well too. the new radiation oncologist is great, and her reputation i heard from a couple of her patients that i know have proven true. very dedicated, very on top of things, need that kind of assurance right now.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 10/5/2009 7:59 PM (GMT -6)   
David,
I'm glad your first treatment went well withe no problems. I would like you to keep us posted on your progress particularly if you have any side effects in the future. Good luck.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/5/2009 8:45 PM (GMT -6)   
EdC,
Thank you. Was really apprehensive, but still mustered up the ability to drive myself there and get started with it. The care of my new doctor and her staff made a big difference in how I reacted to it. I know this SRT is for my own good, has been well thought out, etc, its just my way of coming to terms with it. We all know, that PC doesnt' play fair or consistent, you can't out think it, you have to fight, regroup, and fight again, and perhaps again and again. Talking through the doubts, concerns, fear and even pain helps in this process, we all do it, perhaps in our own way. In the end, couldn't have been any more compliant if I tried. Got a long way to go yet, but that first one is behind me, kind of like that dreaded first day on a new job. As a group, I think sometimes we tend to over think every last detail, and I feel that is normal. We are dealing with a tough, tough enemy, and education and knowledge is the best weapon we can have, not discounting the value of one's personal faith. But sometimes knowledge can wear one down emotionally. My best to you to, brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Hopeful in MD
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 10/5/2009 8:59 PM (GMT -6)   
Hi David,
 
You are awesome!  I have been following your journey and have the greatest admiration for you.  My wife and I pray for you every day.  We think it's about time you got some relief.  You certainly have wonderful, caring, doctors and that has to make a big difference in how you deal with the treatments.
 
Even though I don't post often in your thread, you are often in my thoughts.  I want you to be well and I won't take no for an answer, so there!  I pray that the SP pain will fade rapidly and that you will feel much better soon.
 
Gene in Md
 
 
Hopeful in MD
Age 70.
Dx Dec 07. PSA 8.4. DRE confirmed tumor. Three of six biopsies positive. Gleason: 6 (3+3).
Seed implants Iodine 125 Jan 08.
PSA's 3.9, 1.7 after implants. 
Rising PSA's: 2.3, 3.4, 3.9, indicating  seed therapy not working. 
April 09 began hormone injection therapy with Lupron 30 MG ea. 4 mos.  Side effects - hot flashes, about 1 an hour, initial severe fatigue. Gone as of mid-July. Jun 09 - Oncologist DRE negative for nodules - hooray!!! Aug 09 - PSA 0.5!!!  Lupron is working! Aug. 21 - 2nd Lupron shot.  Flu-like symptoms. Aug. 31 - hyperbaric oxygen chamber treatments for rectal bleeding. At least 20, possibly 40 or more.  Sep. 10 - dx radiation proctitis after sigmoid exam. 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/5/2009 10:34 PM (GMT -6)   
David, first I thank you for the report. I came here to see if you'd checked in, and I'm delighted it went so well. May your last go as well as the first and this be the end of it.

Second, what kind of gullywhump is this: "(Don't worry to my distracters here: I won't give a day by day blow of radiation treatments, but for the sake of our new people, and introduction first hand to the process I believe is educational. And please use the "block user" feature if my posts annoy you, that is what it is there for)" I think the radiation addled your brain! Detractors? Annoy? Your posts are the heart and soul of this group. No one is more followed, or beloved. You post a simple 'hello' and within an hour 19 fans have responded to say hello back. You bring the lurkers out of the closet. Enough of this detractor talk! Keep that up and I'll have to come to Orlando in February to personally give your head a slap up and knock the silly talk out.

Third, I'm going to be watching for 38 reports checking in. I know, and all of us here know, that we may well be following in your foot steps and we want to follow your journey so you may map the territory for us. As Shakespere would have put it: "Write on McDavid and cursed be he who first calls enough!"

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/6/2009 7:07 AM (GMT -6)   
Thank you Gene, and Mrs. Gene, keep hoping that each effirt I make will be the one that gets me out of the hole here, and back to a more normal life, one where you aren't constantly dealing with or fighting medical matters. Starting to feel like a professional patient, wonder if I can put that on my resume? Just kidding.

Sheldon, let me be most polite and politically correct here. I put a disclaimer on the top of this thread, because not everyone shares your kindness, patience, and understanding. A couple of somehwat regulars here went over the top with me, lots of jealousy (?) snide remarks, back biting. It was reported, our good moderators took care of it in a proper manner, so it's over with as far as I am concerned. I never, ever hold grudges, and for me to be forgiven, I have to forgvie others. Blessed are the peacemakers. So we will let it go at that.

My problem as I see it, is that I post from the heart. My post generally don't look like I am trying to pretend to be a doctor or medical professional, that I am not.. I know I have fears, anxities, worries, dread from dealing with my PC, I have also had my share of scares and endless sources of pain. To me, this journey is never ending starting with 3 biopsies, a complicated surgery, 3 corrected surgeries since then, and now on catheter #8. Since last November 14th, I have been on a catheter for a total of 107 days and growing.

Since I feel all this hurt, all I try to do here is help in reverese, my post are never meant to be pages copied and pasted out of medical books, I am concerned about the hurts and feelings of my fellow brothers and sisters who are equally effected by our blight, PC. If a man says that he's not scared in his PC journey, I know he is only fooling himself, there's plenty to be scared abot. Sometimes, I have to force myself to take one step forward and move ahead. Its often not easy. Just like with this SRT, didn't want to go yesterday, thought of a thousand reasons to turn my car around, but I didn't, I went anyway, and worked my way through the problems and got it done.

Yes, I may post more than others, but its not a contest to me. There's no trophy or prize at the end. As a writer, I am use to putting together a 125,000 word book in a few months, or to write a lengthy magazine article or essay, so for me, writing a bunch of small posts on a regular basis is easy work to me.

Just my way of expressing both my creative side and my compassionate side. As a moderator said, if there is anyone on HW that annoys or aggervates you, instead of getting into an ugly war of words, which will be later regretted, just put the person on a "block". That way you won't even see their posts. I think that is a wonderful solution. You can't please everyone, wish I could, but wouldn't be reaslistic.

So until Peter, the owner of HW, the majority of our moderators, and an obvious majority of regular posters tells me to exit, I intend to continue this ministry of help for as long as I can.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/6/2009 7:41 AM (GMT -6)   
David, I check this forum several times a day LOOKING FOR YOUR POSTS! You are one of the best here, and I personally would be sad if you felt the need to no longer post here.

I've seen some of the posts you referenced and it made me so sad since I firmly believe that your sole intent is to help the rest of us along this journey.

Keep on truckin' ... we need you.

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Appointment with two radiation oncologists on September 29 and October 2.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/6/2009 7:54 AM (GMT -6)   
Sephie and John, bless you, and we should keep on trucking together, we really are all in the same fight here, so we shouldnt be against one another, the devil loves division they say. For any of us to make it through this, we need one another. I don't see any one person being better than another, same enemy - PC - different story, diffferent struggle, different battle. Our brotherhood is the single greatest asset in this war. One for all, and all for one, I believe that from my heart.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/6/2009 8:08 AM (GMT -6)   
Good Lord, David, I can scarce believe what you have recounted ---- I find it more than difficult to believe and if anyone but yourself had told me this story I'd have said, hoooey.

You are indeed the heart and soul of this group. PCa is as much an altered state of mind as it is an altered state of the body. You have the insight, wisdom, openness, willingness, talent and above all the honesty, to address in writing that which haunts us all. I have seen you reach out on countless occasions to new arrivals and old timers alike with excellent advice, both medical and mental, care and compassion.

I'm proud to call you friend, and as a PCa person I find coping easier knowing you're in my corner.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    

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