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Zimmer
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 10/7/2009 8:12 PM (GMT -6)   
Diagnosed last week.......3+3=6 on Gleason scale.....10 Biopsy specimens 3 positive all on one side, PSA was 4.37...I am 58 yrs old, appointment in London Ontario with Doctor Chin but not until mid December....should I be concerned about time frame I want this out of me with robotic arm asap but may not be for months until that is possible....any ideas on time frames for this....thanks


















p

Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/7/2009 8:23 PM (GMT -6)   
Hi Zimmer and welcome to the forum, although I wish you didn't have to be here. :-)

PCa, especially a Gleason 6, is fairly slow growing, so a two-month delay is not unreasonable. I suggest use the time profitably to research the options thoroughly. With your numbers, Active Surveillance (aka Watchful Waiting) or brachytherapy are also reasonable treatment options, although I understand your want to be rid of it as soon as possible.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
ED:
After a learning curve, Bimix injections (0.2ml) are working well. VED also works but we find it inferior to Bimix.
14 months: Occasional nocturnal erections.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/7/2009 8:24 PM (GMT -6)   
Look, I'm not expert ---- there are many here who can tell you more than I. But this is a no cause for panic situation. Better you don't have PCa? Yes. But from what you say if you're going to have PCa you're starting off right. A Gleason 6 is low risk disease and it seems to be all on one side.

I strongly recommend the only thing you get underway on is getting your slides reread and that whoever you chose to reread has lots of experience looking at prostate tissue. If the second pathologist agrees you're a Gleason 6, and if your PSA hasn't been shooting up, you're in great shape --- well, aside from the cancer that is.

Right now, if you're anything like me, you're not a happy camper. But, remember, this has likely been with you for several years now. The only difference is you know about it. With a Gleason 6 you've got lots of time to be cured of this disease. Doesn't mean you don't research your options and move ahead, but you have time to make the decision.

I'm sure others will chime in but I'm sure they'll be telling you, "no cause for panic," and I do urge you to get a second reading.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/7/2009 8:46 PM (GMT -6)   
I think the other guys are correct. Actually it may be a good thing for you. You really do need to spend some time learning about this monster, so that when you do talk to urologists, surgeons and oncologists, you understand what they are talking about.

Also, if you believe surgerey is the correct option for you, be sure you understand the pros and cons of surgery,as well as other options such as Brachytherapy or radiation. Incdontinence and ED are the two major side effects, Many guys don't really let that sink in in the pre=sugery stage, and then later begin to understand what it really means to their lives, for the rest of their life.

Not sure how the medical system works in Canada, but second opinions are always good for PC. Look for doctors who have a signicant amount of exoerience with robotic surgery, and are people that you trust, and even like.

Good luck, stay with us here and we will try to help you.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Doc
New Member


Date Joined Sep 2009
Total Posts : 18
   Posted 10/7/2009 8:49 PM (GMT -6)   
Welcome, Zimmer. Best to do some research now. Robotic surgery is a good option at your age, but there is no need to make that decision or initiate treatment right away. Gleason 6 disease on one side of the prostate buys you time to approach this thoughtfully. If your situation permits, you may even want to take a vacation or long-postponed trip now because travel and leisure will be more challenging for several months during the post-op healing period. If you do choose surgery, I would recommend that you do LOTS of kegel exercises, starting soon, in order to minimize post-op incontinence. That's the one piece of advice I wish someone had given me when I was in your situation! You should do fine. Just take a deep breath, plan your strategy, and check with others on this forum who have gone down whatever path you choose.

Doc
PCa Dx 07/09: 3+3 in 2 cores
Age at Dx 54
daVinci RRP 09/17/09
Final path 3+3, <5%, margins neg, pT2a.
 


dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 10/8/2009 4:30 AM (GMT -6)   
Zimmer, similar numbers to yours, psa slightly higher. I was advised to do pelvic floor exercises from the point of diagnosis. I then decided to go the way of Davinci. I again started exercises about 10 days post op and I really think that they helped a great deal. I shall continue to do them on a regular basis. I am now nearly 5 months out  and incontinence is not a problem as I am 99.9% dry. Ed is the next hill to climb. Good luck with your future decisions. An English patient.
Diagnosed February 2009. Gleason 6, Psa 7.2, 12 core biopsy, and then Mri scan, which showed organ specific.
DaVinci at Addenbrookes, Cambridge, England 18th May 2009.  Nerves removed one side.
Catheter in for 8 days, no pain, no post op problems apart from an infection, cleared with antibiotics.
Some aching around the penis, which still occurs.
6 week psa 0.1, post op pathology all good, confirming pre op tests. Ed a problem, no treatment as yet.
Light ladies pad during the day, just to control a slight dampness and a Tena for  men pad at night for occassional leakage.
Awaiting 3 month consultation at the moment.
Sept 09 - still awaiting consultation. 99% dry during the day, tena pad at night just in case.
Sept 18th 09. PSA less than 0.1
Sept 29th follow up consultation at Addenbrookes. All ok at the moment
Virtually dry at the moment.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 10/8/2009 5:39 AM (GMT -6)   
Greetings, Zimmer.  Welcome to the club no one wants to be a part of.  You are getting some good advice here.  I would simply reinforce a few of the points.
 
1.  As hard as it is to do - don't panic.  You have lots of time.  Take this time to do a lot of research and to get  your slides read by a second lab doc.  Even if you could get treatment immediately, most doc's want you to have 6 weeks to 2 months after the biopsy for the prostate to heal before they will do anything so you have some time.
 
2.  Look at all the options.  I chose surgery and I believe it was the right choice for me.  That being said, there are other good options that are the right choice for a lot of people.  Do the research on all of them and make your decision.  There is not one right decision for everybody - but there is a right decision for every individual.  Make your decision and then don't look back - just begin preparing for successful treatment.
 
3.  Rather than doing kegels, my doc said each time you urinate stop the stream at least 5 times between now and the time you begin your treatment.  In reality that is virtually the same as a kegel but you know you are doing exactly what you need to do.  I had six weeks from diagnosis to treatment and it certainly worked for me.  After my catheter came out I did the same thing for a few days and was pretty much dry. 
 
4.  You are among friends.  Please feel free to let us know how things are going and to ask questions.  One of the most valuable services this group provides is to share our experiences with those that are just beginning.  Look forward to hearing from you again soon.  David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/8/2009 6:45 AM (GMT -6)   
Hi Zimmer,

Welcome aboard to the forum where you will get a lot of support and answers to your questions. None of us wants to be here, but this is a great support environment that you will not regret joining. Your questions will be answered and you will move forward better equipped to make the very personal decisions that lie ahead.
 
I just had my Da Vinci Surgery last Tuesday in London Ontario with Dr. Pautler. He is Dr. Chin's associate in the Urology department. I waited seven months for my surgery. It was a first class facility and the people treated me extremely well. I have nothing but good things to say about my experience there. If you need any information about this process and the London facility, just ask.  Or, if you wish, contact me 'off forum' at my email address in my profile. 
 
Keep well,
Regards,
Bill


Pre-Op
Age 64. Diagnosed with Pca January 2009, PSA 5.6, Gleason 3+3=6, T1c, TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear. Robotic Assisted Laparoscopic Prostatectomy surgery for treatment - September 29/09.  Pre-op PSA down to 5.28 which I atribute to visualization techniques and a new vegetarian diet. Post-Op
Robotic Prostatectomy done 09/29/09, back home 10/02/09.

Post Edited (Modelshipwright) : 10/8/2009 7:07:24 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/8/2009 8:19 AM (GMT -6)   
Bill, I hope you are still recovering well back home. Looks like you are coming up on one week from the hospital. Have you been back to the doctor yet, still with your catheter?

It is nice being on the recovery side, less stressful to me then all the months of testing and worrying and waiting before time.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/8/2009 11:10 AM (GMT -6)   
Hey David,

Thanks for asking. I am recovering very well and feel great. No pain and I am able to walk outside every day. The catheter comes out next Wednesday and I should get the path results. Got my fingers crossed on that one.

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I atribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 657
   Posted 10/8/2009 11:42 AM (GMT -6)   

Welcome!

Glad that your with this forum it has been a gift from God to me.

I’m in that newly diagnosed status myself. I have the robotic surgery scheduled for November 2 2009 in the good city of St. Louis Missouri. I’m also wishing that I could have had it done the day after the biopsy. After reading everything that I can get my hands on and receiving a ton of really sound advice I understand that I need to be calm but I’ll be darn if I’m going to lie to you and tell you that I’m good about the delay. Not a second of the day goes by that I’m not thinking about this process. I already have my wife asking about the appropriate pads to use post operatively. And checking into the availability of radiation therapy if I’m going to need it. I’m just starting back to my running, I do 24 miles a week and that has actually given me some mental rest. I’m going to try to do a bow hunt Friday something that I normally love to do but haven’t had the urge. I think  that it may help get me back to an area more normal (may be looking for a new wife if I stay in this mood...lol). I am acutely aware that these delays are scientifically acceptable but as you can see it really ticks me off. Good luck to you and Godspeed.

Jack


Age: 51 years, 2 months
Overall Health: Excellent
PSA: 08/31/2009   6.8
DRE: 09/10/2009 "nothing really" ????
BXY: Scheduled at 08:30 on 09/24/2009
GLEASON 3+3=6
Cores 10 of 12 positive
SURG: da Vinci Scheduled for November 2 2009 
 


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 10/8/2009 2:26 PM (GMT -6)   
Zimmer,
With a low PSA Gleason 6 you have about a 95% chance of being cured regardless of the treatment option you choose and that includes Active Survelience. You chance of dieing of something other than PC is about 99%, so there is no need to panic or rush to a treatment. As others have urged, research all options, seeds, surgery, watchful waiting. IMRT and Proton. Since the cure rates are similar you may want to pay attention to the side affects which are different and in some cases permanent that will affect your quality of life. You may want to make a list of all treatment optons and their pros and cons to help you reach an informed decision.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/8/2009 2:44 PM (GMT -6)   
Bill, keep us posted. Bet you will be glad to get rid of your rubber snake, and I hope and pray you have a clean pathology report next week.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/8/2009 2:47 PM (GMT -6)   
Why is everyone assuming Zimmer is panicing? That puzzles me. He is going through the same process as the rest of us. With his stats, looks like he has many options, so as someone else added, in the time in between, check out all options, and make darn sure that this is what he wants to do, no re-do's as we all know.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 10/8/2009 6:51 PM (GMT -6)   
David,
Just about everyone panics when they get the DX and the 1st thought is to take care of it as fast as possible. As we all know now, because we have been through it, that this is an unproductive approach.
We should continue to preach to newcomers that they should take their time and research all options.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/8/2009 6:55 PM (GMT -6)   
John, I fully agree with the second part of your post, about preaching to the newly dx about options and taking their time.

The first part, not everyone panics, I know I didn't. Guess it how one defines panic in this situation.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


TeddyG
Regular Member


Date Joined Apr 2009
Total Posts : 133
   Posted 10/8/2009 7:28 PM (GMT -6)   

Zim and guys,

The process of digesting the fact that you are one in six or seven men and "why me?" was horrible for most of us. Then we got busy studying and deciding. The fact is Zim, that it will fill up all of the space in your head when you are not focussed on something else. We have been right where you are and regardless of what we may call the mindset i.e., panic, shock, anxiety, hyper-focussed, etc., you are on track to deal with it.  Surgery is not recommended until you are healed internally from the biopsies so usually it is 8 weeks or so. I know that I wanted it "OUT of me, STAT!" but once I studied the options and made the decision and got it on the calendar, I calmed down. Nevertheless, it still was never far from the front of my mind.

Best wishes through the process, and it is a process.

Ted


Background:
Age 55, two teens, very fit cyclist (avg 2000+ miles per year) and weight, diet, etc. consistent with good habits. Stressful job as attorney; very supporting wife who is helping me through every stage of this war.
Stats:
2006 PSA - 1.5
2007 PSA - 2.3
2008 PSA - 5.3 (18 mos.)
2009 Jan. 20 - Biopsy 12 samples
        Feb 3 Dx 2/12 samples positive, low volume  (5% and 7-10%)
Gleason 3+4, later downgraded by second opinion at Johns-Hopkins to 3+3, but "it's still PCa" as my Doc said.
Laproscopic surgery April 9,  University of KY Medical Center, Lexington, 3 days in hospital, catheter removal April 21.
Pathology: clear margins, no cancer in prostate: told that this is very rare and Doc has only seen it in 3 out of over 1400 cases; I rearched the concept of "vanishing cancer" and found a tumor classification of tP0 and asked Doc if it applied to me. He said that it was unlikely because if a pathologist had done a much more detailed analysis of the tissue, he would likely find more foci somewhere, and biopsy found "needle in the haystack as opposed to the tip of the iceberg"; Nevertheless, it is a blessing;
Regardless of the science, my family says "miracle."
Now working w/ post-surgery issues....
 


*Optimist*
Regular Member


Date Joined Jun 2009
Total Posts : 35
   Posted 10/9/2009 11:43 AM (GMT -6)   
Hi Zimmer:
 
I am also a Canadian - living in Ajax.  My advice is to take it slow and do lots of research. When I was first told I had cancer my first impulse was to have it removed ASAP but after meeting with my Urologist and a Radiation Oncologist I decided on Active Surveillance until something indicates disease progression. I am 8 months into this and have had one PSA test at 6 months that showed no PSA rise - it actually dropped a little. Next test is in February and I believe I am to have a follow up biopsy shortly after that. I will say that you have to be prepared mentally with this approach - most days I am not too bothered about having cancer and not treating it but once in a while you can have days where you question yourself. I think this is normal and as time goes on the days like this are getting to be fewer and farther apart. Best of luck to you what ever your treatment decision is.
Oct/07: PSA 2.63
Jan/08: PSA 2.32
July/08: PSA 4.30
Jan/09: PSA 3.48 / Free PSA 10%
Feb/09 - Biopsy - cancer diagnosed
Age: 55 - Status: Active Surveillance


Zimmer
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 10/9/2009 1:47 PM (GMT -6)   
Thanks everyone for your replies, it has given me a whole new perspective on what is going on with me. I had made up my mind before coming on this forum to just get rid of this, but as I have read and heard from everyone there are choices that I have and to just take a deep breath sit back and look over all my choices which I will be doing in the next 2 months......thank you everyone for your support and advice and good luck to everyone...Zimmer

Dandapani
Regular Member


Date Joined Jan 2009
Total Posts : 62
   Posted 10/10/2009 7:23 PM (GMT -6)   
I was 3+3 and voluntarily waited 3 months for a better work/vacation schedule to have my surgery. Doctor was fine with it.
Dan

PC diagnosis @ 53 YO
PSA: 3.4 - 3.7 for preceeding 10 years, new GP advised Urologist visit

09/18/08 12 plug biopsy
09/29/08 PC diagnosis, 1 of 12 plugs, 5% cancer, Gleason 3+3 (6), left side plug w/cancer
12/17/08 da Vinci robotic radical prostatectomy, lab confirmed biopsy, 5%, PIN rest of prostrate, negative margins
12/29/08 catheter removed

03/24/09 1st PSA blood draw, < 0.1% "undetectable"
07/07/09 2nd PSA blood draw, < 0.1% "undetectable"
10/06/09 3rd PSA blood draw, (waiting results)

current status: continent with some stress incontinence; essentially ED, no luck with oral drugs, but doing therapeutic vacuum pump.

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