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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/8/2009 2:36 PM (GMT -6)   
For those that were interested, thought I would continue the Salvage Radiation Treatments I am in the midst of, as the original thread was getting kind of long.
 
Today was 4 of 30 scheduled.  Got there ahead of time, no one else in waiting room, thought, oh this will be fast.  Wrong, again, for 3rd day all kind of alignment problems, they had to stop in the middle and come out and readjust after the zapping began.  They said I was wiggling below the waist, but I swear I was as still as a corpse.  Finally, they continued,  today was different, the first 3 were zaped in 7 positions of the machine, today, it was 9 positions and zaps.  Was told it would vary as the radiation oncologist studied the previous zaps.
 
On the SP Catheter, today was the 8 day on it, finally not as sore, think the suture is healing at last.  But have started to get some weird bladder spasms, quite different than all the ones I got on the Foley catheters.  This balloon sits up higher in the bladder, and the spasms feel higher up too.  Hurt pretty bad, but not as long or as deep as the other kind.  Hope they don't increase, no fun.  May have to hit the ditropan sooner rather than later.
 
After wards, visited my son nearby working, but within an hour of the treatment, started getting that yucky low level nausea again.  Four treatments, four bouts of nasuea, so much for not feeling it.  lol.  It was like this for me before with radiation 10 years ago.
 
All I know, the last 35 sounds like a long time in the making.  If still nauseated after tommorows 5th, will talk to the dr. Monday when I see her again and let her know.  At home resting, sure don't want to eat anything.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/8/2009 2:45 PM (GMT -6)   
Oh David, sorry you're still feeling the nausea. I think that's the worst feeling in the world!

John had his CT scan and bone scan this morning, and it was all much easier on him than I thought it would be. The bone scan was clean (thank God). The radiation oncologist already has the tests in hand but is out of the office til Wednesday. Once she's back, I assume she'll review everything and set up a treatment plan.

I'm glad today is over (and so is John).

I hope that you get a chance to rest up this weekend and recover from your ordeal. Any idea why they're having problems lining you up for treatment? By any chance do you think the wiggling might be coming from the bladder spasms (just a thought)?

Be well, dear friend.

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Appointment with two radiation oncologists on September 29 and October 2.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/8/2009 2:53 PM (GMT -6)   
Sephie, glad John's tests came out clean, that was leaning in his favor. His radiation oncologist will need proper time to plan his treatment, just like mine did. She wanted to look at every slice of every scan they took, she read all of my surgical notes, and even went back 10 years ago to study the previous cancers I had then, and the radiation I took back then. While I do not like this SRT, I feel like I am in safe and educated hands with this doctor.

I never felt a wiggle, that's subjective and I am laying on my back on a hard table with this silly body cast below my waist. Not much way to move, lol. BTW, never had a spasm lying down, usually standing up, often if I am running water from a faucet. Weird.

I have always been hyper sensitive to meds, OTC and prescription, so I am not surprised on the nausea front, in my previous radiation (head and throat), I was getting burned like a bad sun burn within the first week of treatment, they said that wouldnt happen for 4-5 weeks. Every body is different in how it reacts.

My best to John, and you, and yes, looking forward to a repreive on the weekend. Its my mother's 82nd birthday and I am suppose to be taking her to lunch.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/8/2009 2:58 PM (GMT -6)   
David

Glad one more is done!

Sorry for your nausea and catheter discomfort. as far as nausea, one of my uncle is fighting with lung cancer and is on chemo treatment. he was told by doctor that he need intake good nutrition meal to gain strength even he has nausea and doesn't feel like to eat. I know it is hard. My uncle lost quite bit of weight because the chemo treatment.

take care and wish you feel better soon.

Jennifer

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/8/2009 5:04 PM (GMT -6)   
Jennifer, last time I was on radiation, which was around 35 treatments, I lost over 25 lbs. It's a tough diet, but it works lol
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/8/2009 10:18 PM (GMT -6)   
Was reading an article about radiation sickness, that even at 1 - 2 greys daily, a person can get nausea and vomiting, so I am in the range for the nausea attacks I have been feeling this week. The one tech on the machine said there was no way I could be feeling nausea. Told her there was no reason I would be lying, as I rarely if ever experience nausea normally. Should have printed off the article and had her read it tommorow.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 10/9/2009 4:33 AM (GMT -6)   

Hi David.  Sorry about the nausea.  I don't get it often - last time my doc gave me some fancy pill that cost about $20 a pop.  I took about 3 at the prescribed intervals and nothing - no help at all.  My wife the nurse called the doc's office and said these aren't working - he needs the old fashioned treatment.  Sure enough just a couple of hours after using the suppository my nausea was much better.  Sometimes newer isn't always better.  Just a thought.

Trust you will have a good weekend - get some rest.  Just discovered another thing we have in common - my Dad will be 82 in just a few weeks.  My Mother is having knee replacement in a couple of weeks so we are going to see them and then my wife the nurse will stay for about 3 weeks to take care of them during my Mother's recovery.  I not only have a great wife she is an excellent daughter-in-law as well!  David


Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 10/9/2009 6:30 AM (GMT -6)   
David,
You may have mentioned in a previous post but why do you need the cath with radiation? Is that needed for you due to other problems you have had? I know you have been down a long journey but keep fighting.

Larry
Father treated for Prostate Cancer in 1997 with Proton Beam - Still doing well.
My Stats
Age at diagnosis 54, PSA 5.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
 
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin 1.8 cm in length Noted in Right Apex


JoeyG
Regular Member


Date Joined Jul 2009
Total Posts : 162
   Posted 10/9/2009 7:11 AM (GMT -6)   
David,
 
I haven't been keeping up with the boards so I want to tell you God Bless. You are a very brave man and I , as everyone else here, wish you all best through the next 5-1/2 weeks and beyond. Do talk to your doc about the nausea...there are things that may help and worth trying.
 
Joey
 
 
Age -57; Diagnosed 10/05 PSA 13.4 GS 9 Organ confined (T2B)
Cryoablation 4/06 Allegheny Hosp-Dr Ralph Miller (Cohen/Miller)
Post Cryo Nadir 8/06 0.2
Rising steadily to 0.7 4/09 :-(
Steady at 0.7 (7/09) (Pomegranate???)
Looking to take next steps soon
Hoping to qualify for salvage cryo or radiation


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/9/2009 8:20 AM (GMT -6)   
Larry, the in-dwelling catheter (SP) was decided on by my uro/surgeon, my radiation/oncl and myself as a group. I was already facing another stricture or closing in the bladder neck despite having laser surgery to correct it a month before. They knew the radiation would cause swelling in that area, so instead of waiting for me to have to go through another emergency dialation or correction, to go ahead and put in a long term catheter to eliminate the risk and worry. I will have this one in place until sometime in Demember, the earliest possible removal time.

Joey, thanks, will talk to dr. on Monday, I still have almost 7 more weeks of this to deal with.

David/CPA, yeah, lots of common ground. My mother has always watched out for my mother, espec. in medical matters. She helped my mother through a quadruple bypass a few years back, her COPD, he recent stroke, her recent broken ankle, etc. My mother is extremely difficult to get along with or even to like, just being honest. But my wife has never lashed out at her in over 35 years. Truly a professional attitude at all times.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 10/9/2009 9:43 AM (GMT -6)   
Hi David,
I believe all it takes is a few millimeters of movement to detect. I still think it's good news that they can detect the small movements and fix the alignment before and during treatment.

Divide it up into thirds.
Before you know it, you'll be at treatment 12, where you'll be 1/3 done - treat yourself to something. Then next thing you know you'll be at treament 24...2/3's done!

Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 10/9/2009 9:52 AM (GMT -6)   
Purgatory said...
Was reading an article about radiation sickness, that even at 1 - 2 greys daily, a person can get nausea and vomiting, so I am in the range for the nausea attacks I have been feeling this week. The one tech on the machine said there was no way I could be feeling nausea. Told her there was no reason I would be lying, as I rarely if ever experience nausea normally. Should have printed off the article and had her read it tommorow.

David, you might want to think about eating a bland diet and several smaller meals per day instead of three meals.
 
 

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 10/9/2009 10:06 AM (GMT -6)   
Sorry about the nausea. I sure hope that it gets better moving forward. I would hate for you to have this for the next 35 treatments.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/9/2009 2:25 PM (GMT -6)   
Well just got home from #5 and last of the week. Took 50 minutes, again, lots of alignment problems, not even sure the operators knew what was going on. They said they were watching me with a camera and I was not moving, but the machine noticed movement. They had me in the f irst firing position, and had to abort, and bring the machine all the way around and start all over. Kind of hard to hold still that long in an uncomfortable position. I will have a new list of questions for the radiation oncologist on monday.

For the record, have felt nausea on all 5 days. Not severe, but reminds me of the miserable feelings I felt 10 years ago getting radiation.

Looking forward to the break this weekend from it.

David in SC

Hard to believe 7 more weeks of that
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/9/2009 2:28 PM (GMT -6)   
Squirm the good thing about all these delays, the machine wont fire radiation until all the parameters are met, and there is no override of that system I am told. And eating, lol, I am lucky right now to eat 2 small meals a day. When I get nausated, last thing I want to do is eat anything. Had some mild soup for dinner last night late, and that was all I could handle.

EdC - will talk to the doctor about that on Monday. That's why I lost so much weight last time I went through radiation.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/9/2009 4:52 PM (GMT -6)   
Sounds like you and your rad onc will have a nice little chat next week - I'm sure she can do something about the nausea. Hopefully, she'll also have an answer about why the machine stops. Maybe there's something amiss with the cast they're using - hope the answer is a simple one.

Be well, and rest up.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8 (bone scan clean!).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/9/2009 5:47 PM (GMT -6)   
Hey Sephie,

Sure my safety is paramont with these alignment problems. And even though it is expensive and sophisicated, still just a machine, no better than its operators.

Planning on a good chill weekend.

Hope you and John are well too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/9/2009 7:50 PM (GMT -6)   
I am open and have a good line of communication with the machine techs/operators, but not going to pretend its my field of expertise. The other issues I will do the sensible thing ,and report to my radiation oncologist on my Monday meetings. Got a good list for this coming Monday already.

You worry too much about being technically correct all the time ,if that is your bag, then so be it, no harm, no foul. Just a layman patient trying to explain the processes and experience in every day talk.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 10/11/2009 4:11 AM (GMT -6)   
David,

Been on the road and just had the opportunity to check in. Man it sure seems like you are way overdue for a little break in the problems with everything arena. Will be sending a few extra prayers your way for a little relief.

about the alignments problems, I would be inclined to ask the oncologist to do a little checking about how long they have had the machine, other alignments issues, tech experience levels and so on. Maybe the dern machine is due for it's 3000 mile oil change, lube job or whatever and it's time to bring in the mechanics to check it out. Sure seems like a little too much. Have her ask if the others going through the treatments at the same time as you are having the same issues. That would be a quick check and validation of what is going on.

Oh yeah, and about the tech who says you shouldn't be having any nausea problems. Don't say anything, just go right ahead and barf all over their shoes. Tell them that it's just a figment of their imagination.

Looking forward to seeing you at the end of the week. Hope you are feeling up to it. Send me an email if you aren't.. You aren't that far from my sister's place in Atlanta. I'll just make it up the next time I go see her.

Take care brother, blessings and prayers are with you always.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/11/2009 7:36 AM (GMT -6)   
Hey Brother Sonny,

Figured you were on the road. Glad you checked in. This IMRT is their new baby, so that may be part of the problem, the alignment is on a list of questions for my Rad. Oncol. on Monday. Still, rather them be safe, then me be sorry for being radiated in the wrong place at the wrong dose.

Haven't been nauseated enough yet to want to puke ,just to feel weak and miserable. But good idea. Will be discussing the attitude with the doctor too.

Be careful on your travel. I hate the thought that you will be shorting a family visit on count of me, you don't have to do that if you don't want. Your family is most important to you, of course.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 10/11/2009 8:24 AM (GMT -6)   
David,

Ain't planing to short the family on this trip. Seeing you and having a chance to talk in person is a part of the trip. It was planned before I left Orlando and nothing is changed unless you aren't up to it. I'm in middle TN right now, heading to east TN in a few days, then down to Easley to stop by your place, then on to Atlanta to see my sis before heading home.

See you in a few days. I'll call with that 36 hours notice you need.

Hang in there. May your days get a little better every day.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/11/2009 8:40 AM (GMT -6)   
Sonny, I would always be home from radiation treatment by 4 PM, even if they are running late, and the wife, no matter what, would be home by 6 PM.

If this place was only about cold, technical, medical answers/subject, be rather boring. If I wanted that, would keep seeing my doctors more often. It's the warmth, the support, the care, and brotherhood in the truest sense that makes us a complete family here. People say "get a life", this is part of my life, it helps me immensely getting through each day of this unpleasant journey.

I enjoy the joking that takes place, have to lighten it sometimes, PC a way too serious and it can be depressing. There are very few experiences expressed here that haven't been felt by someone else at one point or the other. That's comfort in itself.

Some families get along, some don't. I like to think we at HW prostate cancer get along fine, most of the time. People just need to learn to agree to disagree more often. None of us our medical experts, and all opinions if presented in a civil way are of equal value.

Enjoy this trip. Got to be good for your head.

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/11/2009 9:33 PM (GMT -6)   
Definitely be making an unscheduled visit to my uro/surgeon in the morning. Been in a lot of deep pain deep down inside the SP catheter tube. My wife checks it and checks the gauze every day, been 10 days now since the surgery. The outside portion that can be seen appears clean and clear. But pain been pretty sharp since Saturday evening, and twice this evening, fair amount of fresh blood accumulating in the bag. Hoping its not some kind of infection on the bladder side of the catheter. Want to know what is going on before I submitt to tommorow afternoon's radiation treatment.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 10/11/2009 10:09 PM (GMT -6)   
Hi David,

I hope things check out okay with the catheter and you are relieved of the pain.

Hang in there, buddy.

All the best,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 = 0.06 (hmmm...);
Latest PSA 09/09 <0.04 (back to undetectable)


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 10/11/2009 10:25 PM (GMT -6)   
Sorry to hear that David, perhaps it is an infection....hang in there...
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