I agree with your sentiments on your post about ED, it is a blind crapshoot at best. Even in our small gathering of men, look at the vast variety of post surgery/treatment ED scenarios we have going. There are men that have been to the best of the best nerve sparing surgeons, had that done, and respond poorly to any ED treatment. Like you say, some for weeks, months, or even years, and for a few unfortunate, never again on their own. Then there are those that respond well with only one nerve bundled left or spared. I agree too, as much as I like my uro/surgeon, we spoke very little about ED implications pre-surgery in our talks. It was a given that more then likely I would lose it for a while or a long time. At my 3 month meeting post surgery, he seemed totally relieved that he didn't have to give his standard talk about "let's now talk about ED", because I was one of the rare fortunate ones, and had absolutely no ED problems post surgery, with only one nerve bundle, in my case, left alone with the surgical notes marked "appears damaged". I felt like I won the lottery on that one, as my wife and I fully reconciled to the fact that I might not work down there either for a long time, or even perhaps never.
The only thing I worry about in this thinking, is if all the facts were fully disclosed and all the data were out there, how many men would forgo treatment of their PC in exchange for not dealing with these major side effects?
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out 38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.