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maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 10/9/2009 8:17 PM (GMT -6)   
Hi everyone, just wondering, many times when I meet new men, (and I do meet a lot within the lawn bowls game) I bring up the subject of Pca and tell my story and stress the importance of testing and dre, I get perplexed when I am asked "are you cured " of course I say no, so in my situation I guess I have to say that I HAVE Pca, not I HAD Pca.

What do you say when asked? you HAD Pca or HAVE Pca, just interested to know.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd Augiust 09 0.6


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 10/9/2009 8:29 PM (GMT -6)   
Mal,
I always tell who ever asks me that I'm in remission from
PCa.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 10/9/2009 8:35 PM (GMT -6)   
I simply keep that information to myself. It is not fodder for casual discussion.
To family and very close friends that absolutely need to know I just say: "I had the walnut taken out a couple of months ago. I feel fine. I even went jogging this morning. I am a lucky guy."
Very, very close friends, my wife, and you guys know I still wear pads.
Like my toothbrush or a Peanut butter cup, there are some things I do not share with others.

If I absolutely have to talk about PCa then I would use the third person. "I know a guy who..." But that situation has not arisen.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/9/2009 8:39 PM (GMT -6)   
I say I still have it, as it is obviously not cured with my re-accourance going on. I am very open to those I know about it, makes it less scary to others when they know something about what is going on with me.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4271
   Posted 10/9/2009 8:58 PM (GMT -6)   

Mal, interesting question.  Actually, the subject of PCa comes up fairly frequently in discussions as I have been quite open about my disease so guys seem comfortable asking about it.  With one in six men getting it, most of my cohorts (who are in their 60's) are quite interested in the subject.

As I consider your question, I think my response is generally that I HAD PCa.  Maybe that is because I have no SE's, am not dealing with any resultant issues and believe in my own little head that it is a past issue.  However, when asked, "Am I cured?", I generally answer, "I hope so, but will never know for sure until they do my autopsy in 30 years".  Then I tell them that I will have annual PSA tests that will be my indicator.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!

maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 10/9/2009 9:14 PM (GMT -6)   
Thanks guys, for the replies, sharing and bring attention to Pca, I feel is our duty, after my dx, a great majority of my bowling club went for tests, guess what? 3 of them were checked and all 3 had early stage Pca, with no symptoms, 1 other is under watchful waiting, so I guess talking about it pays off sometimes, I'm with you David, good luck with the salvage radiation.

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd Augiust 09 0.6


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/9/2009 10:27 PM (GMT -6)   
Mal,

Glad your bowling team guys went and got checked, sorry they came back with a PC dx, but more importantly it has now been caught.
I will never understand how anybody could possibly object with a clear conscience to early testing, even if it is just at the PSA level.

I am trying to talk a long time business friend of mine, aged 64, into getting tested. He is self employed, no health insurance, but financially ok. His father and two uncles died of PC. He knows all the details of my journey and is concerned, but not concerned enough to get tested. I have even offered to pay for the test. Part of it, he claims is because of his Morman faith, he will only see a Morman doctor, which in my neck of the woods would be hard to find. I think it's a classic case of being in denial. If he doesn't get tested, then he simply won't know.

There's only so much I can do as his friend. But I fear for him later being in a very advance case situation. The rest of his health history is pretty decent for the age.

Since I have no platform to reach the masses, I will just try to continue what I am doing, is to work with people that naturally cross my path in life, and are willing to listen to one's mans journey. In this case mine.

Despite the other medical maladies I have endured and survived in my life, Prostate Cancer has changed me forever.

My best to you ,brother.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 10/9/2009 11:10 PM (GMT -6)   
David, the most trying thing for me is to convince my son, who is getting near 40 to have the test, he says he is too young, I will not give up on this.
I too have come across quite a few men who just will not get checked out, it is frustrating!

take care David, Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept.
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd Augiust 09 0.6


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/9/2009 11:47 PM (GMT -6)   
Hi Mal, interesting question.

I don't hide it from anyone. I'm totally deaf in my left ear. Thanks to some sort of inner ear blow up I lost my hearing in that ear five years ago. In five minutes it was gone. I don't make a secret of that, and I don't make a secret of the PCa. I find it's better to get the elephant in the room named, and then move on.

When people ask me if I'm cured I tell them my doctor says I've a 90% to 95% chance it will never bother me again, "and so I'm going with those odds --- cure is the "C" word cancer patients like to hear!"

I find by answering the questions with a smile, and a laugh, it's no big deal.

Sheldon AKA Sleepless


Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/10/2009 12:40 AM (GMT -6)   
It depends on the circumstances. But I usually say that I have been diagnosed with advanced prostate cancer. I am not cured, but I am hopeful I can be.

If they ask for more information, i usually give it.

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 10/10/2009 5:44 AM (GMT -6)   
My status if asked or the subject comes up->Prostate Cancer SURVIVOR 
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/10/2009 7:58 AM (GMT -6)   
Mal,

My boys and I have talked much about testing. My oldest is 32, married, 2 kids. He agreed to get a baseline test at age 35, but now he says when he has his physical the start of the year, he will request the test then. Depending on the number, he will then determine the frequency. He said from age 40 on, he will definitely have one yearly.

My youngest son, 26, single and care free, has no problems of being tested at 35, until he matures a bit, he will just need to be reminded.

They have researched on their own, and realize now that their dear dad has it, they are at greater risk, and both are smart enough to know that early detection would be their best bet.

That's all I can ask for. Glad they both take it serious.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 10/10/2009 8:43 AM (GMT -6)   
Hi Mal,

I have learned to distinguish the difference between a general, polite inquiry as to my health and a genuine desire to gather information. When the nature of the question is in the fomer vein I usually reply that my PCa is in remission and being successfuly managed. In the later of the two it generally results in a more in depth discussion of diagnosis, significance of numbers (PSA, GS, Staging), diagnostic tests and treatment options. Some men (and women) genuinely want to know the detail. I share it in the hopes that I might cause another to seek early intervention.

Best to you,
Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Lupron injection on May 15 and every four months for next two years
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 to be full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones 
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
 
 
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 10/10/2009 2:11 PM (GMT -6)   
I prefer to say it is under control at the present.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 10/10/2009 7:40 PM (GMT -6)   
Greetings, Mal.  I have been very open with friend, family and colleagues - mainly because I have tried to encourage any one I can to get tested.  I usually say that with most cancers you have to monitor it closely for 5 years.  I believe I am cancer free but we won't know until later - in the mean time I'm a cancer survivor and grateful for it.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Dandapani
Regular Member


Date Joined Jan 2009
Total Posts : 62
   Posted 10/10/2009 8:06 PM (GMT -6)   
"I had my cancerous prostate removed. Currently undergoing monitoring..."
Dan

PC diagnosis @ 53 YO
PSA: 3.4 - 3.7 for preceeding 10 years, new GP advised Urologist visit

09/18/08 12 plug biopsy
09/29/08 PC diagnosis, 1 of 12 plugs, 5% cancer, Gleason 3+3 (6), left side plug w/cancer
12/17/08 da Vinci robotic radical prostatectomy, lab confirmed biopsy, 5%, PIN rest of prostrate, negative margins
12/29/08 catheter removed

03/24/09 1st PSA blood draw, < 0.1% "undetectable"
07/07/09 2nd PSA blood draw, < 0.1% "undetectable"

current status: 1 extra light pad/day, dry overnight; essentially ED, no luck with oral drugs

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