Long Road to Recovery - pads,pills,shots, - Does size matter???

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Bigdawgsprtctnsrv
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 10/10/2009 5:34 AM (GMT -6)   
Hey all - first let me say I love this forum - I've learned more from this than my doc...I am a 48yo who is now 2 years post op. cancer free!!!. :-)   But...am one of the one who's recovery has been looong!! still having issues w/ leaking - all stress related - coughing, sneezing, lifting heavy items etc... still using about 1 pad a day and 1 pad at night - talked to my uro. who gave me information on " quality of life" procedures that would take care of this  -but like others on here my ins. is a no go. shakehead   I  had tried all three ED pills with little to no success - started injections 9 mos ago -  instant success and have even lowered my dosages over the last 3 mos. Still try the blue pill on occassion - sometimes works - just recently obtaining noctornal erections... am thinking this is a good sign.  my question all be it embarrassing is about size - I am quite smaller in both length and girth than pre-op. I mean a lot smaller!! Has anyone else expirenced this? we all talk about getting our function back and how great it is - and beleive me I am happy with that - but being half the man I was before is not what I expected - any input or is this just another "issue" the docs dont really talk about too much?? 

46 yo male
Routine exam 7/07 showed PSA more than doubled in 1 year - 2.9%
DRE w/ biopsy - Gleason Score 3+3=6
Positive 2 of 12 @10% confined to lower left lobe
Divinci surgery 9/11/07
Post surgery undetectable <0.01
10/08, 1/08,4/08 all < 0.01
6 mos - still problems w/ incontience(stress-laughing,coughing etc..)
1 pad per day - 1 per night
ED - lots of desire - excellent sensation - but no lead in pencil!! 
 
 
 
 
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 10/10/2009 6:31 AM (GMT -6)   
Hey Bigdawg,
I'm with you, pal. I too got a lot smaller. I'm at 11 weeks. When I sit at the kitchen table and look down into my pants sometimes I see a second navel. The doc said it I could lose 1/2 inch. I think they tell you that so you agree to get on the table.
To those who say size does not matter I say: it matters a lot when urine rolls down your scrotum.
I don't have a solution for you. I'm just offering myself as a data point for your study.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/05 10 weeks, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/5 10 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks - 0.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/10/2009 6:45 AM (GMT -6)   
Good Morning BigDawg:

Clarify one point for me please, brother. When you say you are much smaller, are you talking about when flacid? when erect? or at both times?

I am noticable smaller when flacid only? Thought I had lost half m weiner at first. But when I am errect, same size as pre-surgery, was one of the fortunate few that didnt experience any ED.

The way my surgeon explained the loss, and we did discuss this ahead of time. It's not that there is any true shortness. When they attach the urethra back to the bladder neck, which of course is attached to the bladder, the position and weight of the bladder pulls in the flacid penis inward. Before your surgery, the bladder was attached at two points, and now it kind of is on a swinging hinge.

Since my errections are 100% natural, they might be strong enough to pull out to the full pre-surgery length, just a guess on my part. Since I have never used errections drugs, shots, or pumps, I don't have any way of knowing the difference in quality of errections.

I hope this info helps.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - first treatment IMRT.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 10/10/2009 2:37 PM (GMT -6)   
Hey Dog, I can tell you for sure I am shorter. I did ask the Dr. "What did you do to my D...!: He laughed. I did not. the he gave me some cockeyed explination. I will tell you that I have success with pumping to get the size back. And I do pump every day for that reason.

If you have any more questions feel free to shoot me an e-mail

Jeff T
Cajun Country
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 10/10/2009 2:52 PM (GMT -6)   
You know there is something to be said for having a small one. I don't have to worry about getting it caught in my zipper, or fear cold, deep urinal water.
I pump about once a week - I should get busy.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/10/2009 4:20 PM (GMT -6)   
Jeff,

But you can roll out of bed at night now !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 10/10/2009 4:30 PM (GMT -6)   
And not trip over anything! Yep. There's always a silver lining.
Jeff

clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 135
   Posted 10/10/2009 5:02 PM (GMT -6)   
We have always heard that size matters, so guess we need to trust the women's thoughts on that.  But, regardless, the surgery has shortened things at this household, but like some have written in this forum, my actual erection size is unchanged, so far !!!.  But, my surgeon's physician assistant told me this past Monday when I saw him in clinic for instructions on injections, that if I could not afford the Cialis that they want me to take daily, that I need to use the pump at least once a day, and perferrable twice a day.  He claims that there are new studies out there that demonstrate that pumping to improve venous blood flows into the penis will greatly assist in decreasing fibrosis of the tissues, and improve overall erectile function over time, with or without ED drugs/injections.
I will attempt my first injection at home tonight, and with any luck wake tomorrow with a big smile, and hopefully no visit to Emergency Department to have the dude deflated.
SO.........  keep pumping guys, and don't get discouraged.
 

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/10/2009 5:11 PM (GMT -6)   
Pump it up big fella !

Wishing you every success !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 10/10/2009 6:31 PM (GMT -6)   
Greetings, Bigdawg.  Flacid - I sometimes have to look closely just to make sure it's still there.  It has gotten so shy it tries to run and hide sometimes.  Erect, I am back to basically the same as before surgery.  I would say that before I started taking cialis and levitra, my erections were not as firm nor as large as presurgery.  As soon as I started taking the ed drugs my wife said I was back to presurgery in every way.  Hang in there - we trust it will continue to improve.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


Dandapani
Regular Member


Date Joined Jan 2009
Total Posts : 62
   Posted 10/10/2009 7:19 PM (GMT -6)   
I was unhappy I had no shoes, until I met a man who had no feet. :)
Dan

PC diagnosis @ 53 YO
PSA: 3.4 - 3.7 for preceeding 10 years, new GP advised Urologist visit

09/18/08 12 plug biopsy
09/29/08 PC diagnosis, 1 of 12 plugs, 5% cancer, Gleason 3+3 (6), left side plug w/cancer
12/17/08 da Vinci robotic radical prostatectomy, lab confirmed biopsy, 5%, PIN rest of prostrate, negative margins
12/29/08 catheter removed

03/24/09 1st PSA blood draw, < 0.1% "undetectable"
07/07/09 2nd PSA blood draw, < 0.1% "undetectable"
10/06/09 3rd PSA blood draw, (waiting results)

current status: continent with some stress incontinence; essentially ED, no luck with oral drugs, but doing therapeutic vacuum pump.


Bigdawgsprtctnsrv
New Member


Date Joined Dec 2007
Total Posts : 5
   Posted 10/11/2009 2:30 AM (GMT -6)   
Thanks for the input all - it's also nice to keep some sense of humor that only we can understand.. Sounds like maybe I should inquire about pumping as I havent tried this yet. To answer some of the questions I am talking about both flacid ( lets just say that the turtleneck is always rolled up!) and w/ erections which is what I most concerned about. I have been using Edex injections since 3/09 - it works and as stated before I've had to cut the dose down but overall am 1/2 the man I use to be...
48 yo male
Routine exam 7/07 showed PSA more than doubled in 1 year - 2.9%
DRE w/ biopsy - Gleason Score 3+3=6
Positive 2 of 12 @10% confined to lower left lobe
Divinci surgery 9/11/07
Post surgery undetectable <0.01
10-08- 8/09 - still <0.01
24 mos - still problems w/ incontience(coughing,sneezing etc..)
1 pad per day - 1 per night
Viagra - little succsess 
Edex injections - 3/09     
 
 
 
 
 
 

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