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stumac
New Member


Date Joined Oct 2009
Total Posts : 3
   Posted 10/11/2009 1:48 PM (GMT -6)   
Having had a radical prostatectomy in may this year 2009, I had to have non nearve sparing and the surgeon told me Viagra wouldnt work since then I have not seen the surgeon . But the doctor at the check ups and my gp are both giving me viagra which has no effect at all. Has anyone else had non nerve sparing and have they tried vaccum pump and does it work. cool cool yeah

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3744
   Posted 10/11/2009 2:16 PM (GMT -6)   
I had my surgery in July. One nerve gone one nerve "partially spared" whatever that means. (I know it meant I didn't grab the surgeon by the throat when he told me.) I was given Cialis and a pump.
There is another site that discusses this subject in more detail than would be considered appropriate in "mixed company" site such as this. It is called franktalk.org and has been mentioned on this site before. One of the members on HW started it for these types of discussions/questions. There is a lot of discussion and info about pumps, injections, etc.
Good luck,
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/05 10 weeks, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/5 10 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks - 0.05


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/11/2009 4:52 PM (GMT -6)   
Yes a pump should work, provided you have reasonable circulation down there. I am non nerve spared and get reasonable results, but not fantastic. For fantastic, try injections!

My take on Viagra and the like is that they work on the blood supply, opening up blood vessels. However with non-nerve-sparing, it usually not the blood supply that is the problem, rather it is the nerves not sending signals to the blood vessels.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: ? (next week)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


rondeb
New Member


Date Joined Jul 2009
Total Posts : 8
   Posted 10/11/2009 7:19 PM (GMT -6)   
I am non nerve spared, Viagra did not help. The pump has not yet help either they say with pactice it will. i go  have psa done oct 26 see urologist oct 30 and ill ask about injections . had surgery nov. 19 . 3 months after had 36 treatments of radiation. psa was 1.5,  4 weeks after radiation. hopefully oct 30 it will be good news .
combine gleason score7 ,with isolated foci of 8
extent of invasion [tmn}73bnxmx
lymph examined n/a
margin 1 mm from ottermost bladder neck inked margin posiitive margin, 1 mm from posterior black inked margin ,positive seminial vexicle sorttissue margins blue ink
extraprostatic extension :yes
seminal vesicle invasion: yes
8o % involved on the right
60% involved on left
there is also pobable lymphovascular invasion section
8 out of 12 cores vancer


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 10/11/2009 7:35 PM (GMT -6)   
I had non-nerve sparing in Feb. 2009 and my doctor told me that ED meds will not help. He suggested to use the pump daily to make sure that blood will flow and help the healing process and the nerve regeneration. I did use Viagra 3 times and had no effect at all.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


T40
Regular Member


Date Joined Oct 2009
Total Posts : 103
   Posted 10/11/2009 8:27 PM (GMT -6)   
It is like anything else. Use it or lose it. I am amazed at the number of guys here who can't find the time....can't be bothered....tried it once and didn't like it...

I am using the pump every morning and every evening for therapy. Haven't missed a day. I use the viagra 100mg MWF without fail. I am only 7 weeks out from surgery and I plan on following this until they tell me to change it up. Can't find time to spend 10 minutes with a pump in the morning and another 10 in the evening? Insanity....

Do I like it? NO! Will that deter me? Heck NO!
Age 40
Pre-op PSA was 5.8 from wellness test on May 19, 09
Follow up test from uro was 4.6 with a 9.3% free psa
Gleason 3+3 in one core, 3+4 in second core of 12 samples taken
Uro recommended Robotic for someone of my age. My research confirms.
Surgery performed August 19th, 09.
One side nerves spared. Nerve graft on other side.
Six weeks incontinence almost over. ED a work in progress but seeing some response.
Post op October 2nd, 2009 All margins were negative. PSA results in a few days.


stumac
New Member


Date Joined Oct 2009
Total Posts : 3
   Posted 10/17/2009 3:27 AM (GMT -6)   
Piano said...
Yes a pump should work, provided you have reasonable circulation down there. I am non nerve spared and get reasonable results, but not fantastic. For fantastic, try injections!

My take on Viagra and the like is that they work on the blood supply, opening up blood vessels. However with non-nerve-sparing, it usually not the blood supply that is the problem, rather it is the nerves not sending signals to the blood vessels.
 
Thanks piano

How do the injections work are they difficult ,painful and are there any side affects

  PS Keep parictice going on piano Ive been playoing since age 7

 

Post Edited (stumac) : 10/17/2009 2:32:03 AM (GMT-6)


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/18/2009 9:17 PM (GMT -6)   
stumac said...
How do the injections work are they difficult ,painful and are there any side affects

PS Keep parictice going on piano Ive been playoing since age 7

I have recently stopped injections, and yes, they worked well for me. Pain was very minor as my wife administered mine while I bravely (!) looked away.

I used 27g needles, too coarse as it turned out -- the recommendation often seen here is for 31g. After 100+ injections, I noticed a very slight bend to the left that I didn't have before, and think this may be caused by scarring at the injection sites. But no other side effects.

So as a trial for a few months, I will use just the pump and see how that goes -- this won't preclude a return to injections some time in the future. But as I am seeing some small improvements on the ED front, I'm hoping that won't be necessary.

Re the piano: I took up classical piano for the first time five years ago, and practise about an hour each day. That was part of the reason for choosing my screen name. The other part is that "piano" in music means "soft" -- the state of my erectile department. :-)
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: ? (next week)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


stumac
New Member


Date Joined Oct 2009
Total Posts : 3
   Posted 10/19/2009 8:14 AM (GMT -6)   
 Thanks for your reply never thought about Piano / soft , its good to know about the injections. I have a pump on order will give it a try first . Dont know why doctors are giving me viagra on my consultation befroe the op with the surgeon he said it wouldnt work, suppose they are going through ste processs ??
 
Keep up the practice have you tried Chopin.. will keep you posted about the pump

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 10/19/2009 9:03 AM (GMT -6)   
stumac, the viagra before and after surgery is to help with blood flow and infusion of tissues. It isn't really for a sexual use now, but to keep a good supply of fresh blood to the area, to promote healing and regeneration from damage leftover from the surgery. If it works for any ED now, then you got a bonus...lol smilewinkgrin
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN

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