AUS implantees - please post with your current info

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RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 10/11/2009 11:25 PM (GMT -6)   
Gentlemen:
 
I am seeking posts from those of you who have had AUS implants 2 or more years ago.  I have seen posts from various people (KW, Gene214, CowboyBob, Divo, Berb, JerryV, and Salty Clark) who have undergone AUS implants, and all were enthusiatic about the device and their results.  But, people are usually ecstatic when they receive delivery of a new car.  After a while, some develop a different perspective.
 
I was wondering how everyone who had an AUS implant currently feels about his device.  Still happy? Any complaints?  Any complications?  Any warnings?
 
I currently am almost 11 mos. post-op per daVinci robotic surgery.  Total incontincence; complete ED.  I am contemplating an AUS implant, but I don't want to jump into it like I did with the daVinci surgery.  The reasons for prompt action are not as compelling.
 
Currently, my four concerns about the AUS implantation are:  (1) development of necrotic tissue under the cuff; (2) erosion of the tissue adjacent to the cuff; (3) migration of the device within my body, especially in view of my currently active lifestyle; and (4) infection.  Should I have additional concerns? 
 
Any information which you could share based upon your experiences would be greatly appreciated.
 
RHC Jr.
Last PSA prior to biopsy  -  11.9
Biopsy  -  8/7/2008
Cancer findings at left lateral and left medial apex of prostate
Gleason score  -  3+3 = 6
Staging  -  T1c
Prostate size/weight  -  128 cc./ 99 grams
Bone and CT scans  -  9/12/2008  -  both clear
Age at biopsy  -  65         Health  -  Excellent (other PCa)  (Lift weights, play golf & tennis (incl. singles))
da Vinci RP surgery  -  12/15/2008 at Naples Hosp.
Surgeon  -  Dr. Wm. Figlesthaler
Hosp. Stay  -  1 night
Catheter removed  -  12/23/2008
Post-Op blood tests  -  2/2/2009, 3/27/2009,  5/7/2009 & 8/12/2009          PSA  -  undetectable
Completed 12 weeks biofeedback, coupled with electrical stimulation  
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/12/2009 8:01 PM (GMT -6)   
RHC, I am right at a year of having my AUS. I am still very pleased with it. As far as your active lifestyle, you may still have some drips or dribbles. I still wear a regular Depends Guard when playing golf. But one pad will easily last 18 holes. Before the AUS I was soaking a pad every 4 or 5 holes. I really believe if you find the right doctor that does the AUS on a weekly if not almost daily basis (such as the doctor I used) you would most likely not have any problems at all. Like you, I also wanted to try everything I could before having all the "plumbing" installed. But, now that I did I kinda wish I would have done it sooner.
Good Luck,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/13/2009 9:59 AM (GMT -6)   
RHC,
 
I have had both AUS and IPP implanted for exactly 15 months.  No sign of any problem yet.  That's not to say I will not have any, but at the very least, I've had relative dryness and many, many intimate experiences with my wife for these past 15 months.  Like KW, although I did wait 18 months post surgery, hindsight:  I wish I'd done it sooner.  I now wear one small panti-liner per day.  I used to wear two of them, laying side-by-side, but I bought some briefs with a good pouch which keeps my thingy from flopping around and moving off the pad.  So, in my opinion:  It can't get any better'n that for a guy in my condition.  But like KW said, find you a good, very experienced implant surgeon, like he and I did.
 
Gene214


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 

Post Edited (Gene214) : 10/15/2009 3:25:18 PM (GMT-6)


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 10/14/2009 12:36 PM (GMT -6)   
Hi  This is Jerry V and my AUS doesn't work as well as some of the guys.  The doctor told me he did Salvage Urinary Surgery on me because of the condition I was in after two very painful installations done by a hack.  I am very happy with what I do ,however, and the doctor who performed this operation has done a thousand  operations on men who some other doctor screwed up.  I do wear a pad because I could stand there all day to have it stop leaking but I get by with one pad on most days and I am very greatful to Dr  Elliott for giving me a new life which is mostly dry.
 Hope all you guys are doing well and also you must remember that I am ninety years old and I feel great.
Jerryv 

RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 10/14/2009 10:55 PM (GMT -6)   

KW, Gene214 & JerryV:

I thank each of you for replying.  For those of you who have found relief through the AUS, I wish you continued success.

JerryV - I am a little concerned about your lack of ecstacy with your AUS, especially since it was installed by Dr. Dan Sullivan of Mayo.  It is my current intention to go to Mayo in Jacksonville, Fl. for a second opinion and/or evaluation, and to go to Mayo in Rochester, Mn. with Dr. Dan Sullivan, if that is their recommendation.

RHC Jr.


Last PSA prior to biopsy  -  11.9
Biopsy  -  8/7/2008
Cancer findings at left lateral and left medial apex of prostate
Gleason score  -  3+3 = 6
Staging  -  T1c
Prostate size/weight  -  128 cc./ 99 grams
Bone and CT scans  -  9/12/2008  -  both clear
Age at biopsy  -  65         Health  -  Excellent (other PCa)  (Lift weights, play golf & tennis (incl. singles))
da Vinci RP surgery  -  12/15/2008 at Naples Hosp.
Surgeon  -  Dr. Wm. Figlesthaler
Hosp. Stay  -  1 night
Catheter removed  -  12/23/2008
Post-Op blood tests  -  2/2/2009, 3/27/2009,  5/7/2009 & 8/12/2009          PSA  -  undetectable
Completed 12 weeks biofeedback, coupled with electrical stimulation  
 


Salty_clark
Regular Member


Date Joined Apr 2008
Total Posts : 95
   Posted 10/14/2009 11:03 PM (GMT -6)   
Hi..Salty here...long time since I posted anything on this forum mainly cause not much to report.  It has been 7 months since my AUS activation and it still works fine.  Oh, its not in the category of 100% absolute dry but very near to it.  I still get along without any pads at all...only time I get any leakage at all is when coughing hard or sneezing.  I just have gone about my business of trying to put my life back together after the bout with the cancer.  So far, doing just fine with PSA undetectable and the problems of incontinence and ED a thing of the past.
 
Best of Luck to Everyone.
 
Salty

Age 75 at DX 76 on 9 May 08
DRE positive with nodule 15 Jan 08
PSA 3.8 18 Jan 08
Biopsy 11 Mar 08 Gleason 8 (4+4) on the right 3 out of 12 positive <5%. Gleason 7 (4+3) on the left 1 out of 11 positive <5%.
Bone scan and CT scan Negative 12 Mar 08
Robot Assisted da Vinci prostectomy with Dr Fagin in Austin scheduled for 30 April 08.
- - - - - - - -
da Vinci successfully completed by Dr Fagin as scheduled.
Path Report:
Gleason downgraded to 3+4=7
Tumors confined to the prostate.
Bilateral tumor on right side 5 of 10 levels and on left side tumor present in 9 of 10 levels.
Margins Negative.
Extraprostatic Extension Negative
Seminal Vesicle Invasion Negative
Stage pT2c
As far as it goes between you, me and the fence post I am cured. 
06-24-08 <0.1 Undetectable.
09-23-08 <0.1 Undetectable.
01-10-09 <0.01 Undetectable. 
04-17-09 <0.1 Undetectable.
AUS/IPP installed by Dr Morey 1/21/09 Activation 03/09/09 successfully completed by Dr Morey...All Systems GO!  99.9% continent.


jerryv
Regular Member


Date Joined Jan 2008
Total Posts : 52
   Posted 10/16/2009 6:08 AM (GMT -6)   

I went to Dr Dan Elliott at Mayo and he is the best  for my condition because his job is to take cases like mine.  You can't make a silk purse out of  a sows ear.  There are no better at what he does than Dr Dan Elliott.  Say hello from me when you go there.

Jerryv


webstergl
Regular Member


Date Joined Mar 2009
Total Posts : 25
   Posted 10/16/2009 6:37 AM (GMT -6)   
RHC, if you shopping around and looking for good Post PC surgery Doctors check out Dr Allen Morey Utsouthwestern this is one of his specialties

http://www.utsouthwestern.edu/patientcare/doctor/findphysician/profile/0,0,94915_Dr_Allen_Morey_MD,00.html
Age 54 (Dx age 52)
11/06 severe prostate infection PSA was at 52
2/07 PSA still at 6.2
3/07 Biopsy
4/07 5 of 12 core samples positive with Gleason at 6 -7
6/07 Robotic Radical Prostatectomy
Pathology showed Cancer was organ contained
Last 4 PSA’s 0
11/08 Dx with BNC (Bladder Neck Contracture) due to scare tissue
3/08 balloon dilation
8/09 AUS implant now waiting 6 weeks for activation
10/12 AUS was activated life has gotten much better

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