4 Years and I'm still a Zero

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 10/12/2009 12:46 PM (GMT -6)   
Woo Hoo.  I just got my 4 year PSA test results and I'm still a Zero.  I know that I am one of the lucky ones here and wish that everyone could be doing as well as I am.  My only big gripe is that I still get no natural erections, but with Trimix I do just fine.  Until they find something better, I will continue to stick it to Mr. Happy. 
I don't talk much on the forum anymore, but I am here following your journeys almost every day and wish you all the best.  You are a courageous group.
 
Allan 
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.
PSA remains undetectable.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/12/2009 12:53 PM (GMT -6)   
Allan, glad to hear from you again, and doubly glad to hear of the zero's. You long term guys are a great example of what we are striving to accomplish. Thanks much
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 10/12/2009 1:30 PM (GMT -6)   
Congras times four!

Larry
Father treated for Prostate Cancer in 1997 with Proton Beam - Still doing well.
My Stats
Age at diagnosis 54, PSA 5.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
 
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin 1.8 cm in length Noted in Right Apex


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 10/12/2009 1:30 PM (GMT -6)   
Thanks for keeping us posted! Wonderful, wonderful news!!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 10/12/2009 1:51 PM (GMT -6)   
Great news on 4 years of zero! Thanks for posting. It gives encouragement to the rest of us.
Age 51
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED. Levitra works well for me
PSA 0.00 at one year post op


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/12/2009 2:41 PM (GMT -6)   
Allan, thanks for posting the good news, 4 years, that a great accomplishment. gives hope to many others here.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 10/12/2009 2:44 PM (GMT -6)   
Allen, Thanks for posting you give us all hope.

Jeff T
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 10/12/2009 3:43 PM (GMT -6)   
Do we get cigars or anything ?

Thanks for posting. It does or hearts good. Seems like we mostly hear bad news on here.

Congrats !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/12/2009 4:19 PM (GMT -6)   
Great news! I hope it continues.

Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I atribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 10/12/2009 4:29 PM (GMT -6)   
Congratulations Alan,
You are setting a good example for us to follow. Keep up the good work.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/12/2009 4:33 PM (GMT -6)   
Hi Allan,
Keep it up...er, the zeros that is. Er...never nimd. Great job Allan...

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


B&B's World
Regular Member


Date Joined Mar 2007
Total Posts : 120
   Posted 10/12/2009 9:51 PM (GMT -6)   

Thank you so much for posting that!  We have 2 1/2 years of zeros and it is comforting hearing about the success of a four year old!

Becky


Age 51

Gleason 3+3

PSA from 3.2 to 4.3 in one yr

Biopsy 11/06

DRE negative

4 of 12 cores positive, one lobe, less than 10%

Inflammation only second lobe

Stage T1C Clinical Dx

PSA prior to surgery: 3.9

Da Vinci Prostatectomy 2/27/07:

PCa in BOTH lobes 5-10% of gland

Gleason 3+3

Negative tissue margins

Bladder, seminal ves, vas deferntia negative

Two inguinal hernia repairs

Catheter removed 1 wk after surgery

Full continence (no pad needed) 1 wk after surgery, then intermittent drips 4 wks out

Full erection, 12th day after surgery

2 mo’s post-op, some ED after penetration

3 month PSA 0.03

6 month PSA non-existent

1 year   PSA  non-existent

1 1/2 yr PSA  non-existent

Erectile function--up and running!

Two year anniversary on 2/27/09-Sex life back to normal!

 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/13/2009 7:47 AM (GMT -6)   
Allan, thank you for posting this wonderful news!

I'm a newbe, and it has not escaped my notice that pretty much the only members around here are those in the first six months of their PCa journey. The general exception being those with challenges. I have always assumed the rest are doing well and busy living lives pretty much as if they'd never had PCa, or issues were ones they found easy enough to live with. It is great to have my theory of missing-members sort of confirmed, and especially with such excellent news.

You are who I want to be when I grow up, even though I'm a good deal older.

Congratulations !

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 10/13/2009 12:06 PM (GMT -6)   
Thanks to everyone for you kind responses. I feel guilty when realize how well I have done with this cancer compared to what many of you have gone thru and what many of you continue to deal with on a daily basis.
I do have a lot of experience with ED injections and will be happy to share what little I have learned with anyone.


My thought for the day:
"I used to have 8 theories about raising children. Now I have 8 children and no theories."

(I do have 8 grown children and 25 grandchildren and 1 lovely wife so my life is full. Very full.)

Allan
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.
PSA remains undetectable.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/13/2009 4:06 PM (GMT -6)   
Way to go my friend 4 years and still a zero is a great accomplishment. I think I will go ahead and make you a lifetime member of the zero club. Well the dues are a little more expensive but hey it's only money.

I pray for many more years

peace and love
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, April 19, 2018 5:51 AM (GMT -6)
There are a total of 2,953,040 posts in 323,963 threads.
View Active Threads


Who's Online
This forum has 162049 registered members. Please welcome our newest member, feyi.
333 Guest(s), 5 Registered Member(s) are currently online.  Details
mallardmark, Fronton, NKinney, garyi, HeidiP