Had my AUS activated today

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webstergl
Regular Member


Date Joined Mar 2009
Total Posts : 25
   Posted 10/12/2009 5:05 PM (GMT -6)   
Well today was the big day. I had an AUS implant put in on Aug 28, and 6 weeks later I had it activated at 11:00 am CDT I have used the bathroom 2 times since and it is working like a champ. It has been almost 2.5 years since I have been dry for this long. It is fairly easy to use, bit of a learning curve to master the technique and to also get used to my bladder filling up more before I empty it. Before I would be going every 30 - 45 minutes, I believe this is a conditioning thing more than a need to go, so today it has been hard to not get up and go if I feel a little pressure in my bladder. I actually stood there in the bathroom with my pants down coughing and pushing and not even 1 drop came out I even picked up a 40 pound bag of stuff not even a drop. If you can not tell I am ecstatic at the moment

I ask my doctor today what the mean time life of these devices are since I really do not want to go threw that surgery again (bad place to be cut open) and I was surprised that the the implant has gotten some great stat's in the long time reliability side.

All I know is that today for whatever time this device lasts I have closed a chapter in this journey

HOOAH!!!!

Gary
Age 54 (Dx age 52)
11/06 severe prostate infection PSA was at 52
2/07 PSA still at 6.2
3/07 Biopsy
4/07 5 of 12 core samples positive with Gleason at 6 -7
6/07 Robotic Radical Prostatectomy
Pathology showed Cancer was organ contained
Last 4 PSA’s 0
11/08 Dx with BNC (Bladder Neck Contracture) due to scare tissue
3/08 balloon dilation
8/09 AUS implant now waiting 6 weeks for activation


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/12/2009 5:09 PM (GMT -6)   
Big congrats Gary...
I know others that just love the devices. I hope you get many years of satisfaction.

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/12/2009 5:57 PM (GMT -6)   
Gary, that is great news. That has to be a major quality of life victory after all this time. May it work well for years for you.

David in Sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


RHC Jr.
Regular Member


Date Joined Feb 2009
Total Posts : 39
   Posted 10/12/2009 5:58 PM (GMT -6)   

Gary:

I wish you many years of satisfaction.  However, if in the unfortunate event you should encounter any problems, please post and share that information.

RHC Jr.


Last PSA prior to biopsy  -  11.9
Biopsy  -  8/7/2008
Cancer findings at left lateral and left medial apex of prostate
Gleason score  -  3+3 = 6
Staging  -  T1c
Prostate size/weight  -  128 cc./ 99 grams
Bone and CT scans  -  9/12/2008  -  both clear
Age at biopsy  -  65         Health  -  Excellent (other PCa)  (Lift weights, play golf & tennis (incl. singles))
da Vinci RP surgery  -  12/15/2008 at Naples Hosp.
Surgeon  -  Dr. Wm. Figlesthaler
Hosp. Stay  -  1 night
Catheter removed  -  12/23/2008
Post-Op blood tests  -  2/2/2009, 3/27/2009,  5/7/2009 & 8/12/2009          PSA  -  undetectable
Completed 12 weeks biofeedback, coupled with electrical stimulation  
 


webstergl
Regular Member


Date Joined Mar 2009
Total Posts : 25
   Posted 10/12/2009 7:00 PM (GMT -6)   
Thanks, I almost got emotional this evening when I sat down and had a couple beers (2) and I didn't have to go to the bathroom every 13 seconds
Age 54 (Dx age 52)
11/06 severe prostate infection PSA was at 52
2/07 PSA still at 6.2
3/07 Biopsy
4/07 5 of 12 core samples positive with Gleason at 6 -7
6/07 Robotic Radical Prostatectomy
Pathology showed Cancer was organ contained
Last 4 PSA’s 0
11/08 Dx with BNC (Bladder Neck Contracture) due to scare tissue
3/08 balloon dilation
8/09 AUS implant now waiting 6 weeks for activation


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 10/12/2009 7:50 PM (GMT -6)   
Welcome to the AUS club Gary. I have had mine right at a year now. Before long it will be a "natural" thing when you go to the bathroom. I hope you continue to have good luck with no drips or dribbles. From what I remember in my research I found that less than 25 % of the implants need any work on them inside of 7 to 10 years. Many of them last 20+ years with no troubles.
Good Luck,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691


webstergl
Regular Member


Date Joined Mar 2009
Total Posts : 25
   Posted 10/13/2009 4:58 PM (GMT -6)   
well I have my first day in with the AUS I have gone most of today with out any pad (just wanted to see how that felt again) all is good what a relief. I never thought I would ever see this day again

KW thanks for the post I also used Dr Morey great doctor
Age 54 (Dx age 52)
11/06 severe prostate infection PSA was at 52
2/07 PSA still at 6.2
3/07 Biopsy
4/07 5 of 12 core samples positive with Gleason at 6 -7
6/07 Robotic Radical Prostatectomy
Pathology showed Cancer was organ contained
Last 4 PSA’s 0
11/08 Dx with BNC (Bladder Neck Contracture) due to scare tissue
3/08 balloon dilation
8/09 AUS implant now waiting 6 weeks for activation


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 10/14/2009 7:32 AM (GMT -6)   
Great news Gary!
 
Dr. Morey has lots of experience in urology reconstruction.  He gained practical experience patching up soldiers.  I have recommended him to many guys in DFW area.  He did a fine job on me!  He is with UTSouthwestern in Dallas.
 
Gene214 


PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


webstergl
Regular Member


Date Joined Mar 2009
Total Posts : 25
   Posted 12/11/2009 10:53 AM (GMT -6)   
Have not been on for awhile but wanted to say 2 months with the AUS and all is well !works great
Age 54 (Dx age 52)
11/06 severe prostate infection PSA was at 52
2/07 PSA still at 6.2
3/07 Biopsy
4/07 5 of 12 core samples positive with Gleason at 6 -7
6/07 Robotic Radical Prostatectomy
Pathology showed Cancer was organ contained
Last 4 PSA’s 0
11/08 Dx with BNC (Bladder Neck Contracture) due to scare tissue
3/08 balloon dilation
8/09 AUS implant now waiting 6 weeks for activation
10/12 AUS was activated life has gotten much better


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 12/11/2009 11:55 AM (GMT -6)   
Hi Gary,
 
Congratulations! I'm so happy for you this morning. I can feel the relieve you experience in your report.
Sure hope that the device will give you many years of trouble free performance.
All the best to you.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 12/11/2009 3:26 PM (GMT -6)   
Congrats to You!!!! Having urinary problems post surgery was one of my concerns but so far I've been doing great. Glad you found a happy solution.

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3731
   Posted 12/11/2009 5:08 PM (GMT -6)   
Gary,
I am only at 5 months but my improvement curve has flattened out. I am glad it is working for you. You have given me hope that a solution is possible.
I had to smile when you said you stood with your pants down and lifted 40 pounds. I squirt every time I lift 10 pounds of wood to put in my wood burning stove. Congratulations.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8. Start 2 weeks of Cipro to rule out protatitis.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
. 9/27 2 months: Still 3 pads per day.
11/14 4 months: Still 3 pads per day. 420ml/day, 91 um leak.
12/11 5 months: Still 3 pads per day. 400-450ml/day Experimenting with Nyquil.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04 undetectable.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 12/11/2009 6:25 PM (GMT -6)   
Gary, that is great news to hear, so glad the device is working so well for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys ,cath #8 33 days, Cath #9 in 35 days, 12/7/9 - Cath #10 in place


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 12/12/2009 6:47 AM (GMT -6)   
Gary,


Your post was encouraging for me. Today is my two month anniversary since surgery. I have many months to go before I reach the AUS decision point and I still have faith my incontinence is going to get better. Faith and certainty are not the same thing and I am learning that even if continence does not return I have an option thanks to you and others who report on their experiences.



Congrats!



Steve

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/12/2009 6:50 AM (GMT -6)   
Just wanted to say to any of you "leakers" out there, Don't Panic or get down. If you give you body time to try to recover and you still leak. There are options to get your life back. I know giving in to the idea of having plastic plumbing (the AUS) installed in you is not a easy decision. But, it can be a life changer......in a good way.
Good Luck to All,
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 12/17/2009 11:30 AM (GMT -6)   
KW... I can affirm what you said here to Gary & others.  I'm now 17 months post implants... still sooooo glad I got them.
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


defender3
Regular Member


Date Joined Nov 2009
Total Posts : 98
   Posted 12/17/2009 11:38 AM (GMT -6)   
Maybe a new guy dumb question, but if there are significant instances of incontenance with surgery, why don't they just put the AUS in at the time of prostate removal? Certainly there must be some indicators for certain patients that would tell a docotor that would be a good idea so a patient does not have to undergo a second major procedure? For example, if the removal takes you so close to the bladder neck that contenance is in question, why not? If you could make the AUS longer to replicate the lost length of urethra, would that help with penis shrinkage. If we could make the AUS even longer, could there really be a benefit for the wife when we get back from surgery? Okay, just had to add that last one.....ha.ha....

tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 12/19/2009 2:38 PM (GMT -6)   
To all you guys that have done the AUS. What caused you to go that route instead of a male sling? I am scheduled for surger end of January and was about ready to do a sling based on Dr. recommendation. She recommends either AMS InVance sling or new one Coloplast Virtue...since I an considered "moderate incontinence". After reading  of some of the problems in other threads and then the very positive comments on the AUS on this thread I am now leaning that way.
Can anyone give me  some more comments on how the AUS "feels" after inserted. How long to recover from surgery. Do you even notice it is there after your body adjusts. Any restrictions regarding activity, lifting or exercising etc.
Thanks in advance for any helpful comments.
64  year old male in excellent physical condition.
No serious illness of any kind.
PSA jumped from 3 to 8 in one year between annual physicals.
Biopsy/pathology confirmed postate cancer.
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci prostatectomy, Robotic surgery July 23, 2008.
Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Largest tumor nodule: 1.3 cm
All surgical margins were negative.
Seminal vesicles uninvolved by tumor.
Urinary incontinence incurred immediately followin surgery. Dry at nights but no control during day. Tried drugs imipremine and detrol but no help and caused side effects so stopped them.
Unable to obtail erection from beginning. Viagra and Cialis were used in low dose but caused headache so discontinued. Using pump for erection effectively with rubber clamp.Very loving relationship with wife and we are both fine with this situation as it is.
Underwent physical therapy and kegal exercises with no results for incontinence.
Uideo fluoroscopic urodynamics and cystourethroscopy testing in Oct. 2009. Resulted in recommendation for surgery to insert InVance Male Sling System for incontinence cure. Alternative is new sling called Virtue by Coloplast. Planning this surgery for January 2010.


Gene214
Regular Member


Date Joined Mar 2007
Total Posts : 422
   Posted 12/19/2009 4:56 PM (GMT -6)   
Tallguy,
 
I looked into the the AMS sling, discussed with my doc who does them when he thinks they will work. He said it would not be effective for me.  KW will be along soon, I'm sure.  He actually did have the sling implanted & it did him absolutely no good.  He finally had the AUS & is still well-pleased.  I have the AMS 800 AUS & am dry, except for a few little drips & dribbles every day (nothing a panti liner will not handle).  I have talked to others who had the sling and none of them I spoke to personally was satisfied with the outcome of the sling.  That's not to say it won't work for you, if you have just a little incontinence.
 
I never feel the AUS.  I reach for it and activate it when I need to pee, wait till it stops dripping, zip up and go on my way.  I've had it for 17 months. 
 
Gene214
PC diagnosed 12-06 @ age 63
Radical open removal 2-14-07, Gleason 3+3=6
Post-Surgery psa  -- .011
Removal of stricture 6-07, incontinence continues
01-15-08 psa -- .05
AUS, IPP implanted 07-16-08
AUS, IPP activated on 08-18-08.  They both work!
10-20-08 went back to surgeon for a follow-up.  Both devices work well.
10-20-08 psa -- .05
05-15-09 psa -- .07
 


kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 12/19/2009 6:41 PM (GMT -6)   
Defender,  I think most of the time during the prostate removal surgery (open or robotic) they really can not tell how your body will react to the changes.  Your body needs time to heal first and for all swelling to go down.  As far a the AUS adding length! The device works like a minature blood pressure cuff that goes around the urethera at the base of the bladder.  So the only thing the wife gets out of the deal is not having to mess with the leaking.  Sorry Guys!!!!
Good Luck.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691


bobinar
New Member


Date Joined Dec 2009
Total Posts : 9
   Posted 12/19/2009 11:38 PM (GMT -6)   
That is great news Gary !!! Congratulations. I can't imagine being wet that long. I just had 7 months of it and know that seemed like an eternity. I'm so happy for you. Just don't over do it and mess something up.
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