Incontenance, How long does it last?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 10/13/2009 9:47 AM (GMT -6)   
I was operated on for PC robotically on September 10th the cath was removed 9/23 (3 weeks tomorrow). While I can hold my water a little longer than day one, I still void almost every time I stand up. My nights are pretty good and for some reason I can make it to the bathroom without voiding when I get out of bed.  I constantly dribble and squirt when I stand after sitting awhile.  I started Kigle exercises last Thursday and I don't know if they are helping yet. Am I just being impatient.
 
Len confused

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 10/13/2009 9:51 AM (GMT -6)   

Yep...You have to give it some time...We're all different so no one can tell you for certain when you'll get 100% dry.

Hang in there yeah


Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 10/13/2009 10:50 AM (GMT -6)   
Len,

You will need to give it some time

Walking helps a lot as well, do it at your own pace, do not push it

One thing that they had me do which I think also helped in the beginning, while going, stop mid stream then restart, do that a couple times when you go

As time passes you will see you hold more and more often. Standing, bending and lifting all are things that will take the longest to overcome

Avoid Coffee, carbonated beverages and alcohol, all make it harder to hold
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/13/2009 11:41 AM (GMT -6)   
Len,

The logical answer is that there's not been enough time, but as we all know here, the time to getting 100% dry varies so very much.
Walk, but not too much. Kegal, but not too much. From your own desription, sounds like you are on a pretty normal path back to continence.

Hope you continue to heal and recovery well in all areas.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 10/13/2009 2:54 PM (GMT -6)   
David,
 
Thanks. As you know it sometimes feels like no one understands you and that you are alone. This site has been agreat help. As for the healing process, the cancer was contained in the prostate with no cells in the lymph nodes of vessels leading to the nodes. My doctor said it is a "surgical cure".  I am thankful for that but impatient, I guess.  As for ED, I am not even thinking about that until the incontenance is done with.
I really appreciate your response and the response of others  to my post.
 
Len

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 10/13/2009 2:59 PM (GMT -6)   
"How long does it last?" Well... it seems like forever. I am at three months and still use 3 pads per day. I can go all night and can make it to the bathroom no problem now. But when I sit and then stand up out it comes.
At 2 months I started to limit my fluids - that is bad. (But it did cut down on the pads.)
I tried Vesicare 10 mg for 3 days but it did nothing. I tried zapping my perineum with a TENS unit to make my pelvic floor contract for about an hour total for a couple of days but it completely exhausted me. Once I stopped I was back to 3 ppd.
I'll say what everyone else says:

Patience my friend... patience...
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/05 10 weeks, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/5 10 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks - 0.05


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 10/13/2009 5:07 PM (GMT -6)   
First, let me say that we know and share your frustration.. You are about three weeks post catheter and seem pretty normal. If you are using five pads or fewer per day, I would say that you are ahead of the game. I know that this is hard news because I remember what it was like, being at work and needing a pad change every 1 ½ hours.

Good nights is a positive sign – be encouraged because that it first.

Change can be erratic, sometimes it is slow and regular, but for others there may be weeks without change and then an overnight shift. Be sure to keep in mind that you are on the road to recovery and positive things will happen
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


T40
Regular Member


Date Joined Oct 2009
Total Posts : 103
   Posted 10/13/2009 8:23 PM (GMT -6)   
October 19th will be two months for me and at this point I am down to 1 pad a day.  I am using the 2nd to lightest pad only because I still have some left.  I will go to the lightest possible starting this Sunday when I run out.  Kegels has helped me alot but walking by far is the best for me.  The only time I leak at this point is at the end of a 3 to 4 mile walk or if I get on the eliptical for 30 to 45 minutes.  I was in meetings all day today and I don't think I leaked much at all.  Last weekend I played 54 holes of golf in 2 days and while I know I probably leaked some you couldn't tell as the pad was bone dry.
 
I don't limit my intake at all.  I tried that one day and it made it worse.  I find on the weekends it pays to drink as much as possible and to go often to practice at holding it a bit.  Hope you much success.  T
Age 40
Pre-op PSA was 5.8 from wellness test on May 19, 09
Follow up test from uro was 4.6 with a 9.3% free psa
Gleason 3+3 in one core, 3+4 in second core of 12 samples taken
Uro recommended Robotic for someone of my age. My research confirms.
Surgery performed August 19th, 09.
One side nerves spared. Nerve graft on other side.
Six weeks incontinence almost over. ED a work in progress but seeing some response.
Post op October 2nd, 2009 All margins were negative. PSA results in a few days.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 10/13/2009 10:17 PM (GMT -6)   
Patient and kegals. You will need 4 to 6 weeks of kegals to train your new holding valve. It also seems to go in stair steps. You will see no change for a while, and then you use a pad less.

Remember, patience and kegals !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


LenB
Regular Member


Date Joined Jul 2009
Total Posts : 102
   Posted 10/14/2009 9:38 AM (GMT -6)   
Geezer:

Thanks. Your response to my post was very incouraging (6 weeks 1 pad day/1 pad night). I think I have been my own worst enemy by using the wrong pads. IMy wife bough me a Depends light pad. Today I got CVS max pads and they seem much better. I was changing the light pads almost every time I stood up.

DX; July 7, 2009
DiVinci Surgery: 9/10/09
Gleason: 7
No spread to seminal vessels or to lymph nodes.
CAT and Bone Scans negative.
1st PSA scheduled for next week.

CharlieTuneA
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 10/14/2009 10:14 AM (GMT -6)   
Hello Len,
 
I think you're doing well after only 3 weeks. Personally, I'm at about the same point you are, and it's going on 4 months for me. My surgery, however, resulted in a non-cancer complication that delayed my recovery, and kept me catheterized for about two months. Happily, I'm now off the tube (for now).
 
I was wondering though about walking. How does walking help? I've been a walker for fitness for a long time, and am just getting back to walking about a mile and a half per day. While I enjoy the exercise, I don't see what the benefit is to my urinary function.
 
Anyone care to weigh in on this?
 
-Charlie
Age at diagnosis 59, PSA 1.4
Biopsy 12/08 12 cores, 6 positive
Gleason 3+3=6
CAT scan negative.

DaVinci surgery 6/16/09
After 10 days, cystogram revealed fistula
Catheter Removed 7/17/09
Fistula still evident week of 8/24
PSA 0.03
Catheter Reinserted 8/28/09
2nd catheter removed 9/28/09

Continence is a future goal.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 2:46 PM (GMT -6)
There are a total of 3,005,881 posts in 329,276 threads.
View Active Threads


Who's Online
This forum has 161809 registered members. Please welcome our newest member, DragonM.
295 Guest(s), 8 Registered Member(s) are currently online.  Details
HeartsinPain, rhondojones, Zimica, BillyBob@388, InTheShop, darslanaguilera, Sahale, Mom2angels