A breakdown of "where people are from"

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/13/2009 9:50 AM (GMT -6)   
With some time on my hands, entered and broke down where our people are from.   Right now, I only did the stats from the United States brothers.  Will do the foreign ones next time.  For data, used the thread that James C just bumped up.
 
We comprised of men from 43 of the 50 United States.
 
The top five member states were:
 
1st Place - a tie between Texas and California
 
2nd Place - Florida
 
3rd Place - New Jersey
 
4th Places - New York
 
No surprises  there based on current population trends.
 
 
13 states are represented by 1 member only.
 
North Dakota, South Dakota are among states with no members, still trying to figure out the other missing states.
 
I was curious about this breakdown, perhaps others are as well.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 10/13/2009 12:31 PM (GMT -6)   
David,
It makes sense that California and Texas are the leaders since they are the 2 most populous states. However, I was surprised that Florida, with all the retirees wasn't even higher.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 10/13/2009 12:36 PM (GMT -6)   

Great. I've always wanted to come in first place in something devil

David - since you have so much time on your hands - think you can find me a date for this weekend smilewinkgrin


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/13/2009 1:45 PM (GMT -6)   
4 from OHIO.

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 10/13/2009 1:49 PM (GMT -6)   
I thought the data might show some PC clusters with higher concentrations in certain areas. That way Brainsurgeon and I could have applied for an NIH grant to study it. But alas, it looks like we'll have to continue doing "real" work.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/05 10 weeks, Still no activity
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/5 10 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks - 0.05


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/13/2009 2:19 PM (GMT -6)   
Ohio, thanks. It may interest you to know, in my distant past, long before I got into accounting/finance, I was a draftsman in the pre-computerized drafting days. I use to work for a company in Dallas as a design draftsman for on the Teledyne companies that made oil field equiptment. I don't remember what they did, but whatever it was went down as they were drilling. At the time, I found it interesting.

My career didn't last long, as there was almost no work for left handed draftsmen in those days, the younger generation doesn't quite understand, but my lettering was reverese of what was wanted, my hands smeared drawings sometimes, and there was no such thing as left handed inking gear back in the days of ink drawings. I was good on the design side, but guess sloppy on the neatness part, lol.

I too, pray for all our brothers here, old and new, and their wives and families. Where it is important for all of us to be on the same page, is in figthing the evil incarnate Prostate Cancer beast. It's unlike anything else I had to fight in my life. Its unfair, doesn't play by the rules, changes the rules at wills, and hits and misses with our brethren, you and I included.

We are in this war together, doesn't matter where we are from, the color of our skin, or our politics or religion, we have to keep fighting the fight, not only for our lives at t his moment ,but for the endless line of brothers who keep joining our ranks every day.

David in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/13/2009 4:04 PM (GMT -6)   
Thanks David that was some interesting stats. How many people are currently on our forum?

thanks
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Zimmer
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 10/13/2009 4:30 PM (GMT -6)   
Windsor Ontario, Canada here......
Diagnosed Oct 2009 during annual routine physical at age 58
PSA 4.37
10 biopsies - 3 positive all on one side
Gleason 3+3
Scheduled to see Dr Chin London Ont Dec 14th


webstergl
Regular Member


Date Joined Mar 2009
Total Posts : 25
   Posted 10/13/2009 5:04 PM (GMT -6)   
I live in texas now but I was born and raised in Ohio near Cleveland (Medina)
Age 54 (Dx age 52)
11/06 severe prostate infection PSA was at 52
2/07 PSA still at 6.2
3/07 Biopsy
4/07 5 of 12 core samples positive with Gleason at 6 -7
6/07 Robotic Radical Prostatectomy
Pathology showed Cancer was organ contained
Last 4 PSA’s 0
11/08 Dx with BNC (Bladder Neck Contracture) due to scare tissue
3/08 balloon dilation
8/09 AUS implant now waiting 6 weeks for activation


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/13/2009 5:22 PM (GMT -6)   
Dale, at the time that I extracted the information, there were a total of 193 names.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/13/2009 5:25 PM (GMT -6)   
These are 193 names that actually responded James C's poll. Hundreds and hundreds more. And a huge number monitors the page even still (Lurkers).

Tony
 Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
HT began in May, '07 with Lupron and Casodex 50mg (2 Year ADT)
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (May 11, 2009): <0.1
 
My Journal is at Tony's Blog  
 
STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/13/2009 5:30 PM (GMT -6)   
Tony, I stated at the top of this thread that my data was based on Jame's bumped "where are you from" thread. I figured there had to be a whole lot more people and names somewhere.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 10/13/2009 5:58 PM (GMT -6)   
Wild guess, but I would think there were probably 75 to 100 or so that are active and participating now, but we have literally thousands of lurkers who don't register. The major search engines usually will put us up in the top 3 with most of the most common PCa related words.

I think the following link is open to everyone, at least I can see it, but I am a Mod, so it might be different. You can watch here and se the activity across all the boards and get a feel for how active ours is, after a few days of flowing along.

www.healingwell.com/community/ausers.aspx
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/13/2009 8:21 PM (GMT -6)   
What !!!!!

I'm a foreigner ?????

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 10/13/2009 8:45 PM (GMT -6)   
I was a lurker for quite some time before officially joining a couple months ago. I certainly gleaned some valuable information and insight even though I discovered HW after my surgery..........so we must never underestimate how much good we are doing for members and lurkers alike............And I thought I might be able to flush another Delawarean out of the weeds by going public :-)

Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point.
3 month PSA--<0.1
6 month PSA--<0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/13/2009 9:00 PM (GMT -6)   
Sheldon,
Shed no tears! lol. You know I love my Canadian brethren. I will do the non--US breakdown and post it in the morning. I won't neglect you.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4829
   Posted 10/14/2009 5:27 AM (GMT -6)   

If you haven't already done so - tell us where you're from in this thread:

Where are people from? 
http://www.healingwell.com/community/default.aspx?f=35&m=1368720

 

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