Get The Word Out

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Uncle Harley
Regular Member


Date Joined Feb 2009
Total Posts : 85
   Posted 10/14/2009 4:27 PM (GMT -6)   
I attended my first support group meeting yesterday. It's the local chapter of Us Too. It was a small group & I was the only one in Active Surveilence. We had several people who had radiation or seeds, one recent DaVinci member & one that had used Cyberknife. During the open discussion portion of the meeting, I mentioned Healingwell, & to my surprise no one knew about it. I did see a lot of people, including the physican speaker for the meeting, write down the HW name. As I think back, I just stumbled across it in another forum's member post. I just Googled prostate cancer support group & found no hits for HW in the first four pages. There's got to be some way to get the word out about how great HW is. Maybe the mods can help?
PSA History
3/99 1.2
3/00 1.04
3/01 1.16
7/02 1.24
2/06 1.59
3/07 1.79
3/08 2.54
8/08 2.3
4/09 2.3
7/09 2.6
12 needle prostate biopsy Jan 09
Dx of (1) core adenocarcinoma 20%
All other cores benign
Gleason 3+3 T1C
Currently in Active Surveillence
Age 60


webstergl
Regular Member


Date Joined Mar 2009
Total Posts : 25
   Posted 10/14/2009 5:15 PM (GMT -6)   
I just searched bing and google for prostate cancer forums and HW comes up on that search
Age 54 (Dx age 52)
11/06 severe prostate infection PSA was at 52
2/07 PSA still at 6.2
3/07 Biopsy
4/07 5 of 12 core samples positive with Gleason at 6 -7
6/07 Robotic Radical Prostatectomy
Pathology showed Cancer was organ contained
Last 4 PSA’s 0
11/08 Dx with BNC (Bladder Neck Contracture) due to scare tissue
3/08 balloon dilation
8/09 AUS implant now waiting 6 weeks for activation
10/12 AUS was activated life has gotten much better


Uncle Harley
Regular Member


Date Joined Feb 2009
Total Posts : 85
   Posted 10/14/2009 5:31 PM (GMT -6)   
You are correct sir. I guess those of us "old timers' would search for "support group" before "forums". Ain't the net wunderful?
PSA History
3/99 1.2
3/00 1.04
3/01 1.16
7/02 1.24
2/06 1.59
3/07 1.79
3/08 2.54
8/08 2.3
4/09 2.3
7/09 2.6
12 needle prostate biopsy Jan 09
Dx of (1) core adenocarcinoma 20%
All other cores benign
Gleason 3+3 T1C
Currently in Active Surveillence
Age 60


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/14/2009 5:43 PM (GMT -6)   
Sounds like you did some recruiting job today
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

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