One Year Anniversery at HW Prostate

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 6:32 AM (GMT -6)   
I only realized this morning, that I had passed my One-Year anniversery here at HW Prostate Cancer.  I joined on October 13, 2008.  That was a month and a day before my open surgery.
 
What a year this has been for me.  I am still unemployed a year later, hard for me to comprehend.  Still have PC.  While I feel I had a great surgery, the cancer is still with me, and thus the reason I am in the midst of salvage radiation.  I would have never dreamed that I have spent a total of 116 days so far of that year on a total of 8 catheters, and would have needed 3 corrective surgeries since then, plus several ER type episodes.  This isn't how I read about treatment in books on the subject, lol.
 
I have met so many wonderful people here at HW.  I know more of them here, then I do in my real life.  We have really good men and women here.  We share information and knowledge freely, we agree and disagree at times (after all, humans are human), we come from all walks of life, different back grounds, definitely different political, economic, and religious backgrounds.
 
I have read stories here that have made me cry out of joy, and others out of sadness.  I share with everyone's victories, and also with their sadness.
 
I think of all the new friends here, they keep coming and coming.  Many scare out of their minds, still under the shock and awe of having a cancer dx, yet we come out and greet and embrace them into our community.
 
For all those that think I have done this or that since I have been here, I can say with a clear heart, I have never been able give back to HW what I have taken from it.  I just try to do the best I can.
 
If you happen not to like me or my style, you are s.o.l., because I intend to stay around a long time, to keep greeting, comforting, encouraging, and teaching our brethren.  And its truly ok to agree to disagree about things, that's what civil peoples do.
 
May God keep us, protect us, and provide for each and every person that passes through our gates here at HW
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 10/15/2009 6:51 AM (GMT -6)   
Congrats, David, on your 1-yr anniversary here. That's a ****load of posts in 365 dys, brother :-)
 
We all stuggle in varying degrees and situations with PC, and each of us have situations that are better than some, and worse off than others. But whenever I feel the least bit sorry for myself, I remind myself of your struggles, and quickly straighten the hell up!
All the catheter insertions/reinsertions and surgeries---geez, I'm impressed with your stiff upper lip. I know you don't always feel that way, but you persevere nonetheless...........hang in there!
 
                    Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point.
3 month PSA--<0.1
6 month PSA--<0.1


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/15/2009 6:58 AM (GMT -6)   
David, now you've gone and done it! Your post brought tears to my eyes!!!

Don't you even think of leaving this forum - we need you and you need us.

Enjoy your day ...

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8 (bone scan clean!).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 6:58 AM (GMT -6)   
Thanks, Arnie. Trust me, I often don't feel strong or tough, but in fact weak and infirmed. As far as posting goes, I am a writer among other things, and the written word is my medium of choice, so its easy for me to comunicate this way.

From reading your stats, looks like you are recovering well, with two zeros under your belt. I only got to enjoy a single zero.

Thanks for all your contributions too
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 10/15/2009 6:59 AM (GMT -6)   
David, you are a true inspiration to everybody who reads your posts. May your God be with you for the future.

Diagnosed February 2009. Gleason 6, Psa 7.2, 12 core biopsy, and then Mri scan, which showed organ specific.
DaVinci at Addenbrookes, Cambridge, England 18th May 2009.  Nerves removed one side.
Catheter in for 8 days, no pain, no post op problems apart from an infection, cleared with antibiotics.
Some aching around the penis, which still occurs.
6 week psa 0.1, post op pathology all good, confirming pre op tests. Ed a problem, no treatment as yet.
Light ladies pad during the day, just to control a slight dampness and a Tena for  men pad at night for occassional leakage.
Awaiting 3 month consultation at the moment.
Sept 09 - still awaiting consultation. 99% dry during the day, tena pad at night just in case.
Sept 18th 09. PSA less than 0.1
Sept 29th follow up consultation at Addenbrookes. All ok at the moment
Virtually dry at the moment.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 7:40 AM (GMT -6)   
sephie, didnt mean to make you cry *blushers*, I need HW equally, trust me.

dogbot - thanks
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 11:04 AM (GMT -6)   
Glad to see a lot of good news and reports being on threads here the past few days, that an encouragment we can all use
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/15/2009 11:06 AM (GMT -6)   
Happy anniversary, David. I send you warm best wishes for the coming year. It's your turn for nothing but good news.

As for:

"May God keep us, protect us, and provide for each and every person that passes through our gates here at HW"

Let the choir say AMEN !

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


O Buddy Boy
Regular Member


Date Joined Oct 2009
Total Posts : 106
   Posted 10/15/2009 12:21 PM (GMT -6)   
David,

Congratulations for 1 year. It is very difficult to read your struggles. I hate my catheter so much that I can't imagine having one in so long.

What will you do when they finally take it out, take it for long walks on cool moonlit nites?

Always trying to keep things bright.

Thank you very much for sharing.

OBB
55 yo
Dx:9/29/09
DRE: Susp
PSA: 3.5
Gleason: 3+4/7
6/12 Cores Positive
1%, 3%, 8%, 15%, 12%
RALP: 10/0/09
PATH: Not back yet


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4154
   Posted 10/15/2009 2:03 PM (GMT -6)   

David, it was my job to inform you that you have been promoted from Squire to Duke on your first anniversary.  But, after taking a second look, "David Duke" just didn't fit with the HW spirit.  So, you will remain as Squire but will now be First Class Squire.

Seriously, Bro, sorry you have to be here but glad if you have the C that you found this home away from home.

Tud


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 2:44 PM (GMT -6)   
Sheldon, thank you my brother.

OBB, I will get to learn to be dry for the 4th time in a year, hopefully it won't be so bad.

Tud, thanks for the honors, living in SC, don't want to be associated with the Dukes of Hazzard

david
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 10/15/2009 3:47 PM (GMT -6)   
David. I guess it is a congrats. I must say you have been a great friend to many of us on Hw. You are an INSPIRATION to all of us. You face chalenge with such strength and postiive attitues.

Thanks again from us to you.

Jeff T
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 4:06 PM (GMT -6)   
Thanks Jeff, just one of the boys here, actually. As someone accused a long time ago here, a word smith, lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 10/15/2009 7:05 PM (GMT -6)   
I think I kind of look at this place as parole. We're giving you a chance at life again...so don't screw it up. None of us had the intention of being here, we were just in the wrong place at the wrong time. But, given time, things will get better for you, and ,hopefully, for all of us.

Get well, my friend

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Meet with rad. oncologist 10/15


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 7:21 PM (GMT -6)   
Bob,

Thanks, you are quite right, if you had asked me two years ago that I would spending quality time at an online prostate cancer support site, I would have never believed you. Such is life.

I hope for the same thing for all of the guys here too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/15/2009 8:06 PM (GMT -6)   
Your post brought me to tears. What an inspiration you are.
Daughter worried about dad
Locally advanced prostate cancer
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vessel)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/15/2009 9:31 PM (GMT -6)   
Dear 1worried,

I thought the guys gave you a lot of good advice this evening. I have a daughter too, she's a real daddy's girl and is 28. Even though she has been married for almost 5 years, she still calls and checks on me every single day. I have two sons too.

I can always talk through things with her, can be very open at all times, and she can give me another angle to anything I am worrying about.

I too am a Gleason 7 (3+4) but am a stage 2 not a stage 3 like your dad. Everyone thought the surgery "got it", but within 6 months, the cancer is still there. That is why I am in the midst of having Salvage Radiation Treatments. You can follow my other threads on my current treatments or those of other men going through the same thing.

So glad you found us here. We are indeed a brother hood of men united by our prostate cancer journeys. we have a lot of good sisters here too in the form of wives of men, and several little sisters just like you, the daughters of the men.

Just so glad your father has you to watch over him and his condition and situation. He has lots of time and plenty of options in front of him, so take it one step at a time and allow yourself time to continue to enjoy your father, cancer or no cancer.

May the peace of the Lord be with you both,

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

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