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1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/15/2009 7:25 PM (GMT -6)   
My dad has prostate cancer and had the robotic surgery last week. He went back in today for his follow up appt and we were expecting to hear that the cancer was all gone (it was all localized in the prostate). However, they are now recommending radiation because the cancer has spread to the seminal vessels, but not the lymph nodes. I have so many questions. I don't know anything about radiation and its effects. I hope you guys can help. I need all the support I can get!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/15/2009 7:43 PM (GMT -6)   
Welcome to HW, worried. Glad your father has a son or daughter watching over him. So he is on the recovery side of surgery, and his pathology report must not have been great. There's still lots of reason for hope.

Is there any way you can post some of the stats of your dad's case so we can have an idea of what is going on with him?

We will be glad to help and to support you through this, this is a great place to be.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 10/15/2009 7:56 PM (GMT -6)   
1worried, We will be glad to help you when we have more info. You probably need to read the folders at the top for some info. When you post more detailed info about pathology report then many will chime in with suggestions or should I say explinations.

PC is different in all of us but the same in many ways. We will be here for you support.

Jeff T
Cajun Country
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 10/15/2009 8:03 PM (GMT -6)   
Dear Worried,

Sorry you have to joon this exclusive club, but this is the best place to get info. It would help if you included more stats of your father's situation in the signature.

Your father has a "locally advanced" disease. It sounds like stage T3b. There are several here on the site with this stage. Mine is T3a, a little less spread, but still an advanced cancer.

In a month or so after surgery your dad is going to have an all important PSA test. If it shows PSA under 0.1 then he will have a few choices, if more the choices are fewer.

First, take a deep breath - this is not the end of the world. He will most likely enjoy many more years. Your being calm and supportive will go a long way. Now to the choices. (Guys with more experience will correct me if I misstate anything).

If PSA is undetectable after surgery (less than 0.1) he can wait to see if PSA will go up. The advantage of this approach is that he has time to heal and that sometimes no further treatment is needed. This is called salvage therapy and is usually in the form of radiation (with or without hormon treatment). The other alternative is an adjuvant therapy (same as salvage, usually radiation). The advantage is earlier intervention, the disadvantage is that it may stop healing progress.

If his PSA does not go to undetectable then hormon therapy is likely in his future, with or without radiation.

While everybody reacts differently, radiation is usually not to bad with few side effects. In my case, I am 36 treatments into a series of 40 and am feeling fine. I am a bit tired, but not enough to keep me from doing everything I used to do before, including full time job.

Don't panic, post your fathers stats (age, PSA at dx, % positive cores at biopsies, Gleason, pathology report, etc) and stick around - there is a lot of collective withdom and compassion here.

Finally, even aggressive PCa is moving slow, let your father take time understand the choices, talk to a few doctors to compare their views and only then make a decision.

Greg

Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

5 biopsies over 4 years negative while PSA going from 3.8 to 28

Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, 7/23/2009-<0.05, T<10, IMRT to start mid-Aug


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/15/2009 8:10 PM (GMT -6)   
Hi everyone! Thanks for responding so quickly. Here is the information I have. His psa was 7.9 and his gleeson level was 7 (3+4). He is 54 years old. He had a biopsy prior to surgery which suggested 30% cancer in his prostate and it was all localized to one side. We decided on the nerve sparing robotic surgery which was last week. Today radiation was suggested on top of that after he heals from his surgery because they found cancer in the seminal vessels as well. They took out a lymph node as well which does not have cancer. His grade after surgery is pt3bpn0mx. Please let me know what other information I should provide. I will certainly call him and ask. Ha! He will love that :) I am a nieve 24 yr old but you can bet I have been researching like crazy, as I'm sure many of you have done. So glad I stumbled across this site.

Concerned daughter

Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 10/15/2009 8:15 PM (GMT -6)   
This is good info. 3+4 Gleason cancer tends to behave more like Gleason6. So, it is not that aggressive. One additional question I have is Were there any positive margins or capsular penetration on the pathology report.

Father died from poorly differentiated PCa @ 78 - normal PSA and DRE

5 biopsies over 4 years negative while PSA going from 3.8 to 28

Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8

Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere+Avastin)

PSA prior to treatment on 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60

RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins

PSA undetectable for 8 months, then 2/6/2009-0.10, 4/26/2009-0.17, 5/22/2009-0.20, 6/11/2009-0.27

Salvage IMRT + 6 Months ADT: Casodex started 6/12/2009, Lupron 6/22/2009, PSA 6/25/2009-0.1, T=516, 7/23/2009-<0.05, T<10, IMRT to start mid-Aug


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/15/2009 8:28 PM (GMT -6)   
Yes, 1 positive margin (1 seminal vessel).

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/15/2009 9:37 PM (GMT -6)   
Hi 1worried. As you can see from my alias, Sleepless, I can identify with your 'worried' and I know it is facile to tell you not to worry. Nevertheless, don't worry, and if you must worry, don't panic. My dad got prostate cancer when I was about three/four years older than you, it was far more aggressive than your dad's (mine couldn't be operated on for one thing) and when he died 20/25 years later it was his heart that got him ---- the PCa was never a problem.

I'm a 3 + 4 like your dad and we're both lucky to have a cancer that's only moderately aggressive. I have a friend whose stats are near the same as your dad's but he has a far more aggressive PCa. After surgery his PSA started to go up. He was zapped with radiation. His doctor said the surgery had knocked the cancer down, now it just needed to be knocked out. I was talking to him on the phone not ten minutes ago. He's doing terrific. His PSA is so far undetectible. Oh yes. I should tell you, "so far" is 18 years. It was 18 years ago he had the radiation to knock it out.

Please do keep us posted on your dad. He's a lucky guy to have an up and at 'em 24 year old daughter. And, I bet he's a great dad too!

Give him our best wishes,

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 10/15/2009 10:15 PM (GMT -6)   
Very nice post Sheldon.... Worried, I do hope Sheldon's post is of help to you. Your posted info is the info we were looking for. Your Dad is a fortunate man to have a daughter like you.

Jeff T
Cajun Country
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/16/2009 6:50 AM (GMT -6)   
Sleepless,
I cannot tell you the amount of relief I felt after reading your post. I was laying in bed after my alarm went off this morning as thought....hmm I might as well go check this and see if anyone posted. So glad I did. I am currently student teaching full time, working, planning a wedding, ya know all that busy stuff. Yet, the only thing I can think about 24.7 is my dad (although he tells me not to.) Thank you for your kind words corvette man, I hope both of you will be in touch and, hopefully, I can be of some help to somebody on here, not just the one getting the help.
Daughter worried about dad
Locally advanced prostate cancer
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vessel)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/16/2009 7:19 AM (GMT -6)   
1 Worried...your last post is what makes this forum so great - the desire to help others on this journey. Thank you for joining us; I think you will find that there is a wealth of information here with lots of caring people.

My husband and I are starting on the second leg of this journey as he begins preparing for salvage radiation treatment. I know that hearing the word "cancer" can be devastating but, as others have said, take heart for there is much that can be done.

While having prostate cancer in the seminal vesicles denotes a more advanced stage, it does not necessarily mean that your dad is "in trouble." As already stated, a Gleason score of 3+4 is moderately aggressive, and is also a very common score after surgery. Seminal vesicle involvement likely means that your dad will need secondary treatment such as radiation. With few exceptions, radiation treatment is generally well tolerated and has a high success rate.

Please keep us posted, and don't be concerned about asking questions. This is a learning process for all of us, and there is always someone on this board who has an answer.

Best wishes to you and your dad - he's a lucky man!

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8 (bone scan clean!).


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/16/2009 2:21 PM (GMT -6)   
Hi 1Worried,
I am in the same ship as your father. I am a pT3B guy as well. I just completed my 2 and a half year mark after surgery and I am in remission. I did have radiation, and also had hormonal therapy. There is hope for good things and you should stay positive about them. My email is open if you would like to chat about my experience, and don't be shy.

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My Journal is at
My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 10/16/2009 3:04 PM (GMT -6)   
Hi 1Worried,
I'm your dad's age (Just turned 55) and had my surgery in August with the robot. I have a postive margin post surgery. I actually will be talking to my doc about it on Monday and getting my 1st post surgery PSA Then. I was told they usually don't want to start radiation until about 6 months post surgery if you go that way. Since they want you to heal first. Are they wanted to start the radiation ASAP?

Larry
Father treated for Prostate Cancer in 1997 with Proton Beam - Still doing well.
My Stats
Age at diagnosis 54, PSA 5.1
Biopsy 04/08 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
 
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin 1.8 cm in length Noted in Right Apex


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/16/2009 3:21 PM (GMT -6)   
Dear 1worried,

I thought the guys gave you a lot of good advice this evening. I have a daughter too, she's a real daddy's girl and is 28. Even though she has been married for almost 5 years, she still calls and checks on me every single day. I have two sons too.

I can always talk through things with her, can be very open at all times, and she can give me another angle to anything I am worrying about.

I too am a Gleason 7 (3+4) but am a stage 2 not a stage 3 like your dad. Everyone thought the surgery "got it", but within 6 months, the cancer is still there. That is why I am in the midst of having Salvage Radiation Treatments. You can follow my other threads on my current treatments or those of other men going through the same thing.

So glad you found us here. We are indeed a brother hood of men united by our prostate cancer journeys. we have a lot of good sisters here too in the form of wives of men, and several little sisters just like you, the daughters of the men.

Just so glad your father has you to watch over him and his condition and situation. He has lots of time and plenty of options in front of him, so take it one step at a time and allow yourself time to continue to enjoy your father, cancer or no cancer.

May the peace of the Lord be with you both,

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/16/2009 3:23 PM (GMT -6)   
Larry and Tony,
Thanks for your posts. The dr. told my dad that radiation would wait until his body was healed (approx 6 months). He has not been to actually talk to the radiologist bc his surgery was only last week. We are waiting until his appt. However, in the mean time our questions aren't answered. Larry, please let me know what you find out at your dr. appt. Good luck on your PSA.
Daughter worried about dad
Locally advanced prostate cancer
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vessel)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/16/2009 3:29 PM (GMT -6)   
David,
This site has been wonderful. Your relationship with your daughter sounds just like mine with my dad. I am such a daddy's girl..maybe a momma's girl too ha! Just really close with both my parents I guess! My dad has such a good since of humor. Last night he said..."Look, I'm not worried about dying. But when am I going to have sex again?" Ewwww!!!! So of course my mom laughs and I am totally grossed out. Anyhow, it is obvious both your daughter and I have great dads. And boy don't we know it!
Daughter worried about dad
Locally advanced prostate cancer
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vessel)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/16/2009 3:30 PM (GMT -6)   
You might want to read up a little on this book:
"Beating Prostate Cancer:Hormonal Therapy and Diet" by Dr. Charles "Snuffy" Myers

Very good reading for your father...

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My Journal is at
My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/16/2009 3:31 PM (GMT -6)   
Well, worried, how do you think you came into the world? Dropped into a cabbage patch by a stork? Lol.

Your dad sounds cool.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/16/2009 5:16 PM (GMT -6)   
Lol. That is what I like to believe purgatory! Again, I want to thank EVERYONE who has been so helpful and welcomed me here. I never thought I would have so many people post and reach out to me. My next mission is to get my dad on here so he can see for himself the amazing people I have met.
Daughter worried about dad
Locally advanced prostate cancer
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vessel)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/16/2009 5:28 PM (GMT -6)   
I would love to meet your father here sometime. You already did a great introduction for him!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Jstars
Regular Member


Date Joined Oct 2005
Total Posts : 489
   Posted 10/16/2009 7:26 PM (GMT -6)   
Hey worried (amd everyone).

One thing to do is let your father know you are concerned. Ask about things. Sometimes a father gets caught up in all the action and forgets to let everyone know what is going on.

Also a point of accuracy: it is Seminal VESICLES ... not vessels. What's a vesicle you ask?? It is like a sack or cavity or bladder -- not like a blood vessel.

People make tthat mistake all the time.
Age 58, 195lbs, 6'4", 57 at DX, PSA Aug2008 7 4 ... June2007 4.7 (BPH + LUTS)
Biopsy Nov2008 1 of 12 cores 5%, Gleason 3+3 - Sona showed size 140+ cc (110 grams post op).
02/03/09 open RRP surgery , Nerve sparing both sides, 1 day in hospital, Day 4 first BM,
Pathology Report: All margins clear - No Invasive spread - no change in Gleason score.
02/18/09 Cath out, passed a 1cm oblong STONE within hours.
03/06/09 Started Levitra@20mg / Viagra@100mg / (04/01) Cialis@20mg -- no real effect (thru 10/2009).
04/01/09, 07/07/09, 10/01/09 PSA <0.1 - Stone Was Oxalate stone -- X-ray no stones.
08/09 - started MUSE@1000mcg ... using pump&plump first 10 minutes - good effect.
09/09 500mcg also works .. needing 2 advil 30 min before to suppress the Alpro ache tho.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 10/16/2009 9:05 PM (GMT -6)   
Worried-
I know your fears all to well. As you can see from my signature, I was in a very similar situation two years ago with my father. It is such an emotionally exhausting journey, but stay positive. Your family sounds very similar to mine, and we laughed, cried and laughed some more during the experience. It is a long road, but fortunately there are many treatment options and as others have posted, so many men do extremely well. It is funny you mentioned that your dad brought up "sex", because after my dad's treatment, we are able to talk about pretty much anything. We have always been close, but we have discussed everything from gas, urine, catheters, rectal exams, sex....the list goes on :) I would do anything to take away my dad's cancer, but I will ALWAYS treasure the time and stories shared during the experience. You guys will get through this. Let us know how we can help!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/16/2009 10:01 PM (GMT -6)   
Doting daughter,
I see your father has a positive lymph node. Does this make his chances for a cure less likely? Thanks for your help and support.
Daughter worried about dad
Locally advanced prostate cancer
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vessel)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 10/16/2009 11:11 PM (GMT -6)   
You have already had a great deal of good advice from the members here but since you have sort of been hit over the head I thought I would add my reassurances.

First, PC is slow and so your dad (and you) has time to take a deep breath and relax for a few months. Especially he should be walking regularly and for increasing distances. This is an important part of promoting healing.

Many of us here would advise that his diet should be low in red meat and animal fat. This will not “cure” him, but it will strengthen him in resisting cancer. If nothing else, it is a way to “fight back”

Right now his first fight is incontinence – the idea that we have lost (mostly temporarily) control over some basic functions that we mastered at the age of three is hard. This is hard to talk about but your dad needs to confront it and live in hope.

The second fight is ED (if you watch the TV ads for Viagra you get the point) This board has lots of options and just because you father is “ancient” does not mean that he might not be interested.

The third fight (and notice that I made this third, not first) is against his cancer. Positive margins seem not to be that significant, but spread to the seminal vesicles does suggest that radiation treatment may be needed to finally knock the cancer out. Yes, for the majority, surgery is all that is needed, but even now, his odds of beating the cancer are very good.

So, go on with your studies, plan your wedding, and live your life even as you encourage your father to live his. Our victory over cancer is not that we live forever but that we live well, with hope and courage.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 10/17/2009 8:17 AM (GMT -6)   
Worried,
 
I'm fairly new to the site and have only one additional comment to add to the other posts. Get your Dad to spend some time on this forum as soon as you can. It has been a tremendous help to me in choosing a treatment option and to understand the nature of PC,  it's treatment options and side effects. It has helped me calm down and to manage my expectations. I encourage him (and you) to explore some of the other "strings" that are available. As the other guys (and a few gals) will all tell you, in the end nobody has "the answer". You and the family will have to do what you think is best after processing all this valuable informaton. And it does help to have a smart daughter....I have one of those too!
Best Wishes,
 
Joe67
 
_____________
 
Age 67 - PSA - 4.3  Gleason - 3+3=6  Biopsy - positive in 5 of 8 sections.  CT and Bone scans negative. Meeting with Urologist and Radiologist next week to schedule BT with corresponding Image Guided Radiation Treatment(IGRT)
 
 
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