SRT 10 of 39, Second full week completed

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/16/2009 2:16 PM (GMT -6)   
Glad it's Friday.  Today completed my 2nd full week of SRT.  Hardly anyone there today, so I was in and out in about 30 minutes, they had different operators this time, and they didn't have all the alignment problems that went on all week.  Don't know what the deal there was.
 
Back home, nausea once again, and any thing I eat turns liquid real fast if you know what I mean.  Baffles me to think that I am only 25% done with this nonsense.  Got a ways to go.
 
Well, don't have to worry about it till Monday afternoon.  Monday I see the Uro/Surgeon in the morning, the Radiaton Oncologist in the early afternoon, and then treatment #11.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/16/2009 2:24 PM (GMT -6)   
Up and at 'em David.

Thanks for these posts and allowing me to be part of this saga as I know there is a 10% chance I may well be following in your footsteps. You are my Good King Wenceslas!

Best,

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/16/2009 2:28 PM (GMT -6)   
Sheldon, I hope you stay in the 90% range where you won't need to go through this. But thanks for the good words.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 10/16/2009 5:17 PM (GMT -6)   
Hey Sheldon, I sometimes wonder how much we can rely on those percentages, the more you investigate the more the percentages change.  I have been reading some web sites that give guys like you and me a 60% change of non recurrence, and other sites that say 90%, so I guess all we can do is wait and see.  Dave was just one of those unlucky ones, in the 10%, but fortuneately he has the right attitude to beat this beast,  Go David........Kev
Age 51yrs
DX 11/11/08
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4
Gleason Score 3+4=7
Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c
Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week.
ED- taking Meds- Its been 9 mnths now getting some action ! yah
PSA 1/09  .03
PSA 2/09  .03
PSA 5/09  .03
PSA 9/09  .03
"Everyday in Everyway I get better"


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/16/2009 5:28 PM (GMT -6)   
Kev,

I noticed all of us above are stage 2 guys. I think where my unluck has come into play in the cosmic game of PC, was my PSA velocity both pre-surgery and post. I am a living example of those that believe that PSA velocity plays a tremendous role in not only re-occurance but in mortality with PC. Though hoping the last part is not true for me.

My radiation oncologist whom I really like her straight talk and professional mannerism, feels that I have a 40% chance of the SRT stopping the cancer. My velocity issues is the number one reason I am getting 39 sessions with a total of 72 greys as a salvage treatment.

I hope this time to have the luck change and get to be in the 40% group that this works for me.

I will have used up my two best guns for fighting this cancer in just barely a years time when this is completed late November. I never expected that.

Thanks guys,

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Radical
Veteran Member


Date Joined Mar 2009
Total Posts : 739
   Posted 10/16/2009 5:41 PM (GMT -6)   
David,
 
Well thats a little more re-assuring I guess, if you feel PSA verlocity plays a substantial role in all this.  With a pre psa of 4, that might keep me in the 90% club, fingers crossed.  But its still hard to believe that out of all the stage 2 guys on this forum only 10% line up for SRT.  Where are all the lucky guys, cus we certainly see our fair share of SRT guys ?
Thanks for the reply Dave, we can all learn from your experience with this..........Kev.
Age 51yrs
DX 11/11/08
6 out of 8 cores positive 3 X 60% / 3 X 10%
PSA 4
Gleason Score 3+4=7
Stage T1c
Robotic Surgery 24/12/08
Upgrade Gleason Score 4+3=7 Gleason Differential 60%/40%
Stage T2c
Three small foci total volume <10%
Neg Margins and Nodes
Nil - Extraprostatic Extentions
Dry less than 1 week.
ED- taking Meds- Its been 9 mnths now getting some action ! yah
PSA 1/09  .03
PSA 2/09  .03
PSA 5/09  .03
PSA 9/09  .03
"Everyday in Everyway I get better"


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/16/2009 7:26 PM (GMT -6)   
David,
I am curious why you only have a 40% chance of the radiation getting rid of your cancer? What is the next step if it doesn't work? I hope this isn't nosey, and please feel free to not answer. Enjoy your radiation free weekend. I hope you are feeling better.
Daughter worried about dad
Locally advanced prostate cancer
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vessel)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/16/2009 7:37 PM (GMT -6)   
1worried,

The 40% probablilty came directly from the mouth of my radiation oncologist. Since I am not remotely a doctor, not sure how she determined this. Probably because its a Gleason 7, high velocity, and I had 7 out of 7 cores in my final biopsy with high percent cancer and high grade pin as well. She wasn't telling me this to make me feel bad, I asked her to be very honest and upfront with me from the start, I am a straight shooter and like to treated the same way.

Just got my flu shot for the season, so arm is a little sore.

I hope your father is doing ok, and again, coax him soon to come on line with us, at least one time to meet the gang. However, you make a great spokesperson for his cause.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/17/2009 5:58 AM (GMT -6)   
David, I too am a bit concerned over the 40% your doctor is giving you ... that seems awfully low. Our rad onc says the success rate for SRT is very high - go figure. I know the situations are different.

John is getting his flu shot on Monday morning - wants it before he starts treatment since RT can lower the immune system. He's never had a flu short before so hopefully he won't have too adverse a reaction.

Hope you enjoy your weekend. The weather here in the Northeast has been quite cold, and we had wet snow on Thursday in the burbs north of New York City! Hope this isn't a glimpse of what we can expect this winter.

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8 (bone scan clean!).


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/17/2009 6:49 AM (GMT -6)   
Hang in there David. Wishing you all the best during this time,

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I atribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/17/2009 6:51 AM (GMT -6)   
Hello Sephie,

The 40% figure was in the general range of sucess discussed with all 3 radiation oncologists that I had spoken to in advance. There are risk factors that can vastly change one's odds, and they include PSA at time of surgery, PSA doubling time after surgery, and of course, what I talk about often, is general PSA velocity. Your final gleason number certainly play a role in this calculation, and then the staging.

Some sources say that out of all the "risk" factors, PSA velocity is the most darning of all of them. I will re-find the source and post it some time.

My rad. oncol. said it is wrong to assume that PC tumors are so slow moving. Many, if not most are, but she said if you have one with the agressive strands, things can happen and change to the worse quickly, even within months sometimes. She strongly believes that any version of a Gleason 7 is potentially dangerous because of the "4" cells incorporated in the mix. Some dr. feel a 3+4 is much safer combination than a 4+3, my dr. doesn't. Once again, another source of confusion.

In your favor, John and I have two different bodies, two differnt medical histories, and two different PC cases, as well as different family genetics, etc. etc. What is happening with me doesn't have any real bearing on how he will react to SRT and how effective it will be.

Even in my case, despite what my dr. has warned me, we won't know till about a year after SRT to begin to know whether this worked or not. I am still hoping for my 40% this time. Just don't want to be on the negative side of another set of odds.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/17/2009 6:58 AM (GMT -6)   
Bill, thank you!

Ps Sephie, I had no problem with the flu shot, but I have been getting them for years, John will probably be fine with that part. And yes, the SRT will do a number on your immune system in general. So please keep him away from friends. relatives, others that are really sick during that time.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

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