Feeling better

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1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/17/2009 8:55 AM (GMT -6)   
Hey guys!
Went over to my parents last night and my mom, dad, and I went to a town festival. My dad parked far away, ya know gotta get that walking on! He didn't even wear a pad! I was afraid he was gonna spring a leak but he says he hasn't leaked except maybe a couple drops when the catheder was removed on thursday. He seems a little too brave for me (I had pantiliners in my purse if need be!) He explained his prostate cancer to me again. He said the dr told him he got all the cancer but there could still be miscroscopic "fingers" left that could spread eventually. The radiation is supposed to knock that out so we don't take any chances. This sounds reassuring, but even after all that he still seemed doubtful. He said that he didn't expect a cure. Of course how could you when the dr said it was only in his prostate but after surgery found that not to be the case. He had his heart set on being done with this. It's funny how men think they never need to go to the dr. He happened to go in for something else one day and my mom works in the lab at the drs office. She pretty much decided to test his PSA all on her own. To me, she just saved my dad's life, or certainly prolonged it. I have told him about you guys. I think he is not at the stage where he wants to talk about it with others just yet. Maybe overtime. I know he googles stuff on the computer and that gives him doubts. Furthermore, I will stop logging on here if you guys don't stop making me cry every time I get on!! LOL. Just kidding, they are good tears from your encouraging words. I am truly blessed.

Kelli
Daughter worried about dad
Locally advanced prostate cancer
CT scan negative
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vesicle)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/17/2009 9:43 AM (GMT -6)   
kelli,

Your dad is going great thus far on the incontinence part. Yeah that was brave for him to go to a fair this soon without any protection, but at least you were clever enough to have something in your purse, just in case.

Yes, PSA testing has saved a lot lives, no doubt about it. Over time, had your father not been tested, his cancer would have continued to grow and spread, and it may have been without any chance of a cure at some point. So that was a wise decision.

David in sC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/17/2009 9:48 AM (GMT -6)   
Your dad has a lot going for him, Kelli. Namely a wonderful daughter who loves him and will look out for him. Bless you sweet lady...

And may peace always be with you...

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My Journal is at
My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/17/2009 10:11 AM (GMT -6)   
Kelli, sounds like you, your dad and your mom are on the right track. The doctor's explanation of what the surgical report showed may be right on target, and radiation should take care of those "fingers." My husband is also preparing for radiation treatment - in his case salvage since it's being done more than 6 months after surgery. Your dad's treatment is likely considered adjuvant since it's happening shortly after surgery. Either way, radiation has proven to be a very effective treatment for all types of cancer, and I'm sure your dad will come through this just fine.

I know you are worried about him, and can empathize. It's hard to watch someone you love face a critical illness. The diagnosis sets your world spinning - the ground under your feet is no longer as solid as it once was. You are faced with several decisions and agonize over which is the "right" one. Surgery always has its risks, and you agonize over that. Will he come through it OK? Will he be in pain after wards? What will the incontinence be like, and how will he react to it? You get through the surgery, and breath a sigh of relief because it's over. Then, the ground beneath your feet is shaken again when you hear that it may not be over yet. Truly, it is an agonizing time. Many on this board have been through similar scenarios and all have come through it both physically and emotionally. You, your dad and your mom will as well.

Come back any time, even if it's just to chat. Come back when you feel down or sad or scared - we'll be here.

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8 (bone scan clean!).


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/17/2009 10:34 AM (GMT -6)   
Dear Kelli,

The "Other Donald" (AKA Rumsfeld) had this to say:

"There are known knowns. These are things we know that we know. There are known unknowns. That is to say, there are things that we know we don't know. But there are also unknown unknowns. There are things we don't know we don't know."

Your dad is understandably focused on the known knowns, he has a bit of cancer leak from the prostate, and this leads to worries about the known unknowns --- what will be the result of radiation on his cancer and on his body? At some point, having discoved (as we all have) that his invincible body has failed him (cancer is something other people get) he'll start to worry about the unknown unkowns --- what else might be wrong with him, your mom, others he loves. If this can happen to me ..... ????

There are many levels of fear to deal with. And you will be dealing with the same sort of fears. These are not foolish, silly fears. Or fears born of weakness. They are the sensible, prudent fears that lead us to take PCa seriously and make good decisions. Fear is generally not a sustainable thing, at least not at the top level. We "fight or flight" and we learn to deal with fear. We become accustomed to it and learn to put it in a place and give space in our lives for living again.

You entitle your post: Feeling better. You're working through the process, as all of us are, and as your dad is. When he says he's not expecting a cure, what he's saying is, "My body has let me down twice. First cancer, then it wasn't nice and simple. I'm not going to dare hope for the best and suffer the pain of being let down for a thrid time." However, he, like all of us is hoping for a cure and chances are five years from now as he gets yet another good PSA report, he'll be thinking differently.

My mother is a 50 year plus survivor of breast cancer. After her mastectomy she said she worried about recurrence every two hours the first year, and it wasn't until around year five that she could go a whole day without thinking it might be back.

At some point he'll reach the stage he'll be willing to talk about his cancer with others, but by then, it may be he'll not need to talk about it. Dealing with it himself, having you here, may be the best way for him to come to grips with this beast. We all deal differently.

Please do keep visiting. I promise not to make you cry. Or even sniffle.

You're dad's a lucky guy to have you in his corner.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    

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