ZERO CLUB - YEAR 3

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lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 10/17/2009 4:23 PM (GMT -6)   
Hi all!  THREE YEARS OF ZERO'S AND COUNTING . . . . . WHOOOOOOO HOOOOOO!!
 
We used to be avid posters in this forum and still follow the stories and keep you all in thought and prayer.  Just after surgery (September 2006), this forum became a place for comfort and hope during a stressful time.  At that time we were so thankful to have found you all and wished we had been here sooner than later, but so glad all the same to be part of a wonderful group.
 
We still "lurk" and pull for everyone and wish everyone could always be a member of the ZERO club and are daily thankful for our path.
 
;o) Linda & Bob :-) :-) :-)
Bob (63) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May and November 2008.  Also October 2009  WHOOO HOOOO! THREE YEARS! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/17/2009 4:35 PM (GMT -6)   
Wonderful news, Linda and Bob, I dont know you guys ,but a 3 year report of zeros is great news anytime. Hope there are many more to come.

David in sC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/17/2009 6:47 PM (GMT -6)   
We love you guys. Great to hear from you with great news.

Love it, Love it, Love it!!!!

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My Journal is at
My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 10/17/2009 7:17 PM (GMT -6)   
Hi Linda and Bob

Such wonderful news. I am coming up on two and a half years myself in December. Hope you have many more

Mika
age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 10/17/2009 7:18 PM (GMT -6)   
Hi Linda and Bob

Such wonderful news. I am coming up on two and a half years myself in December. Hope you have many more

Mika
age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 10/17/2009 8:15 PM (GMT -6)   
I am really happy for you both. Great news. My news is also good. Don't know whether you remember me, but grandson is also wonderful.

Regards,

Bill
August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 
Wow, almost two years behind.  I had a typical radiation bounce that
scared me, but it seems to be ok.  PSA is about 1.0 which is ok for
a rad guy at this stage of the game.
 
Got my FAA medical certificate back four months after starting my
treatment.  It's still a First Class, just jumping through a few hoops.
 
October, 2009.  Latest PSA is still 1.0 - that would make you surgery guys nuts, but it's just fine for a rad guy.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 10/17/2009 9:45 PM (GMT -6)   
Great to see you guys on here again and even better to read the fabulous news!! Keep 'em coming!!! Congrats!!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum


apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 10/18/2009 12:29 AM (GMT -6)   
Bob & Linda, Great news! I mostly lurk now myself, but having just gotten my 4 year PSA report of Zero I wanted to congratulate you and wish for you a life time of Zeros. All the best, Allan
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.
PSA remains undetectable.


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 10/18/2009 1:01 AM (GMT -6)   
Hi Linda and Bob,

It sure is nice to hear from guys. I'll never forget all the help, encouragement and advise I got from you when I first started my journey. I'm so happy to read that Bob is doing so well. It is my sincerest wish that you will remain a member in the zero club for many, many years to come.
All the best to both of you.

Your friend,
Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/18/2009 8:11 AM (GMT -6)   
Congrats! May you have more zero anniversaries in the future.....

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 10/18/2009 10:39 AM (GMT -6)   
awesome news and thanks for sharing it with us. Three years as a zero is a great accomplishment. You guys are a blessing to all.

peace and love
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


lawink
Veteran Member


Date Joined Oct 2006
Total Posts : 621
   Posted 10/18/2009 2:29 PM (GMT -6)   
Hi all . . thanks for all the good wishes! Magaboo and Jetguy we remember you both well. . . . .you were both pillar's of support while we were traveling our post surgery path as well. Thank you everyone!

;o) Linda & Bob
Bob (63) - Laproscopic Prostate Removal Sept 27, 2006 at age 60.
2 of 12 malignant biopsy samples - gleason 3 + 3 = 6.
Pathology - Gleeson 3 + 4; stage T2; cancer completely contained, even a second more aggressive, previously undetected cancer) PSA UNDETECTABLE Nov 2006; Feb, May, Oct 2007; May and November 2008.  Also October 2009  WHOOO HOOOO! THREE YEARS! 
Bob also has two secondary conditions -- Polycythemia (elevated red & white cells & platelets) and . . Myelofibrosis) -- If anyone has experience with or information on these, please email us.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 10/18/2009 3:03 PM (GMT -6)   
Linda and Bob, it doesn't seem possible that this much time has passed for you guys. I love to see those multi-year zero's.. Wishing you a lifetime of them
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 10/21/2009 11:01 AM (GMT -6)   
Hi Linda and Bob,
Better late than never! Just adding my congrats on your continued good health and clear PSA's after 3 years. Great news to hear. Hope your family and grandchildren are well. Warm wishes from Lana & CJ. turn
Creed_three - Husband 51 yrs (49 years at diagnosis)
PSA (2002) 2.1.  PSA (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007. Gleeson 3 + 4 = 7.   Undetectable <.1 PSA since, specifically, June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03. 

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