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brad2513
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 10/17/2009 9:34 PM (GMT -6)   
I have read alot of things that state that prostate cancer is found in mostly older men, and it is rare for men under the age of 45 to be diognosed with it. This is not the case with myself and my brother in law, as i was diognosed at 45, and he was at 40. My elevated psa was discoved kind of acidently at a blood screening clinic, and so far I think I'm doing ok, only time will tell. My brother in law had been having some prostate problems when they discovered it. He have open surgery about four and a half years ago, and is maintaining a psa of .01. There is no history of prostate cancer in either of our families. There are alot of stats out there for the older age groups, but I have found nothing for the 45 and younger group. Also do the stats vary by regions?
age 46
diognosed age 45
PSA 3.9
preop and postop gleason score 3+4
daVince robotic surgery at Fremont area medical center, Fremont NE, 9/30/2009
stage T2c
involvement 2%
perineural invasion focal
extraprostatic extension, seminal vesticle, and lymph nodes negative
apex margin negative
peripheral margins positive, left dorsolateral 0.8, and 0.3mm, right dorsolateral 2.0mm


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/17/2009 10:12 PM (GMT -6)   
Hello Brad, and welcome to HW. Glad you found us. Yes, you and your brother in law are on the young side. We have several men in their 40s when they got their PC dx. We have lots of men in their 50s like me, and 60s as well as some older gents.

Glad your brother in law is doing so well after more than 4 years. I had open surgery too, but less than a year ago, but I am undergoing salvage radiation treatments currently, because the cancer is still there.

See your surgery is real recent, less than a month ago. I hope your healing and recovery is going well.

There is a good group of men and women here that will welcome you too. Please keep us posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 10/17/2009 11:22 PM (GMT -6)   
First of all, your path report looks pretty good and so the odds are very much in favor of your being cured.

The biggest "regional difference" in PC is that those living in countries like China have a lower incidence of PC -- this leads to speculation that a diet low in red meat and animal fat and high in soy protein may reduce PC risk. Many of the people here have modified their diets in this direction, but this is more hopeful than proven science.

We welcome you here as you work on your recovery from surgery. There are issues of incontinence and ED that many of us have to address and this is a place that we discuss such things without restraint. Take advantage of this site as you feel the need -- we are here for you
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 10/18/2009 7:19 PM (GMT -6)   
Brad,
Welcome, I was 46 when the whole diagnostic process began. I feel blessed, cause on the day of my first urologist appointment, the doctor was late getting into my room. He apologized and said he had to break the news to a 46 year old man that he had advance PCa. I've never forgotten that guy and remind myself how lucky I was to have a good GP who did a PSA every year at my physical starting at 40.
Welcome. Stick around.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/19/2009 10:27 AM (GMT -6)   
Welcome aboard Brad. We are on the same timeline as my Da Vinci surgery was 09/29/2009. Hopefully you are progressing and healing well. This is the right place to be for support and sharing experiences. Looking forward to hearing from you in the days ahead.

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


brad2513
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 10/19/2009 1:15 PM (GMT -6)   
thanks paul
I,m sorry to hear about the gentleman in your reply. Maybe testing should be pushed at a earlier age. I knowI'm a huge believer in doing so now. I was one that you know health, in fairly good shape,and never been sick in my life, that even with my brother in law having it, I didn't pay attention.  In fact when I went to the blood screen clinic they asked me if I wanted a psa test, I had to ask them what it was. Where would I be 2,3,4, Years from now. The fifteen dollars was well spent.
age 46
diognosed age 45
PSA 3.9
preop and postop gleason score 3+4
daVince robotic surgery at Fremont area medical center, Fremont NE, 9/30/2009
stage T2c
involvement 2%
perineural invasion focal
extraprostatic extension, seminal vesticle, and lymph nodes negative
apex margin negative
peripheral margins positive, left dorsolateral 0.8, and 0.3mm, right dorsolateral 2.0mm


ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 831
   Posted 10/19/2009 4:10 PM (GMT -6)   
First of all there has been study after study proving and dis-proving that prostate cancer is not more aggressive in younger men.  So, who knows.  I know a guy who is 26 years out from seed implants. 
 
What was your Gleason score?
 
3+3=6
3+4=7
4+3=7
 
Any teritary score mentioned on your post-op pathology.
Dx 42
Gleason 6 (tertiary score 0)
OPEN RP 10/08  Johns Hopkins
pT2 Organ confined Gleason 6
PSA Undetectable


brad2513
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 10/19/2009 5:06 PM (GMT -6)   
my gleason score is a 3+4, and the gleason tertiary states none. I don't know if that means there is'nt any or it was not included in the report.
age 46
diognosed age 45
PSA 3.9
preop and postop gleason score 3+4
daVince robotic surgery at Fremont area medical center, Fremont NE, 9/30/2009
stage T2c
involvement 2%
perineural invasion focal
extraprostatic extension, seminal vesticle, and lymph nodes negative
apex margin negative
peripheral margins positive, left dorsolateral 0.8, and 0.3mm, right dorsolateral 2.0mm


JerseyG
Regular Member


Date Joined Feb 2009
Total Posts : 65
   Posted 10/20/2009 8:56 AM (GMT -6)   
Hello Brad.
 
Glad to hear the good news about your procedure. I'm at 14 months out and I'm basically back to pre-surgical normal.
 
I've read there is one positive about being dx'd at a young age, they say younger men bounce back more readily from the surgery. So, far I can attest to that.
 
I wish you well in your journey and here's wishing PC will be just a little bump in your life's journey.

Age now 44 (43 when dx)
 
Pre-op PSA:  0.9
Biopsy: 3/12 cores pos  20% 30% 50%
Gleason 3+3=6
Robotic RP:   Aug 08 1 day hospital stay, cath out on 8th day.
Post Surgery Pathology Report: Gleason 6, pT2c, tumor 10% contained in prostate gland, all margins negative. Negative lymph nodes
Post Op PSA: Dec 08 <0.1
Post Op PSA: Mar 09 <0.1
1 YEAR PSA: Sept 09 <0.1


AndrewJ
Regular Member


Date Joined Jul 2007
Total Posts : 25
   Posted 10/20/2009 3:05 PM (GMT -6)   
Hello Brad,

You can see from my signature that I was about your age at diagnosis and have had a very good recovery, so I hope you see that a good outcome is possible. I discovered after tracking my PSA over a few years with my urologist that there were different norm tables for younger guys. I wish I could find the link - maybe a Google search can turn something up for you. I was very upset at my urologist for waiting too long to act because he seemed to be measuring my PSA against the norm for the total population, which is of course skewed for the older profile of the typical PCA patient. I felt particularly cheated at getting it so young and just about poked out the eyes of a doctor's receptionist when I was on my find-the-best-surgeon tour who announced loudly to the whole waiting room of PC sufferers how great it was to have a young patient!

Face down any anger at being diagnosed young and remind yourself that you will have a better recovery and hopefully less chance of ongoing effects to your "quality of life" because of your age.

I am now more than 2 years post-op and here in Germany we have (next to the usual 3 monthly PSA tests) a big annual post-cancer check. This Friday I go in for the CT scan, bone scan and a variety of other whizbang things which should hopefully show that I still have no recurrance. I will always get nervous about this, but look forward to another clean bill of health.
46 years old (45 at diagnosis), Australian living in Germany
PSA: started around 3.5 in 2005, 6.1 at time of surgery
Biopsy: nothing found in 2006, 3 May 2007 3 of 24 cores positive, Gleason 3+3 or 3+4 depending on pathologist
RPE in Munich, Germany on 22 June 2007
Post surgery pathology: organ confined but less than 1mm from margins, Gleason 3+3, pT2c, Lymph nodes removed and clear
First post-surgery PSA 31 July 2007: 0.01 Confirmed every 3 months since. Fully continent immediately after removal of catheter on Day 8.
No potency issues but still taking small doses of generic Levitra "as required" as my security blanket.
This man knows he has been VERY lucky.


brad2513
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 10/20/2009 5:30 PM (GMT -6)   
Hi Andrew
 
Looks like  our pc was remarkably the same. From age to the margins. But you have a couple of years on me, and I'm a beginner. It would be really nice if there was not anybody here to post anything but in realality here we all are, and it is comforting to know there are people here like myself.
Wow I can't believe that receptionist did such a thing. Like you really wanted to be there as it was, and she treated it as you had won some kind of contest, or you came there just to brighten up her day.
I don't believe that here we do a yearly mri, or bone scan after  surgery, but as I said I'm a beginner. Best of luck Friday on the tests,our prayer are with you. Just one more thing I just thought of, I think this one of the few things you can score a 0 on and be a winner.
 
    Brad
age 46
diognosed age 45
PSA 3.9
preop and postop gleason score 3+4
daVince robotic surgery at Fremont area medical center, Fremont NE, 9/30/2009
stage T2c
involvement 2%
perineural invasion focal
extraprostatic extension, seminal vesticle, and lymph nodes negative
apex margin negative
peripheral margins positive, left dorsolateral 0.8, and 0.3mm, right dorsolateral 2.0mm

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