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AKSeaker
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/19/2009 12:44 AM (GMT -6)   
I have yet to find anything that deals with my condition.  My Last PSA was 520.9 and I have not found any information about something that high.   Is there someone out there with similar numbers that can give me some information and expectations.  I have done a year and a half of alternative treatment with good results.  Within the last six months the PSA went from 1.2 to the now 520.9.
Thank You,
 
AkSeaker
 
Age: 66
Diagnosed: Feb 2008
Gleason: 4+5 = 9
PSA 530.9
CT Scan: Aug 2009 revealed enlarged prostate tumor with lymph node involvement.
Bone scan: Oct 2009 - awaiting results
Treatment: Alternative natural treatment including Zoladex until Aug 14 when Chemo with Taxitere started in a 3 on 1 week off regiment.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/19/2009 5:59 AM (GMT -6)   

Find more information at:

www.prostate-help.org (has a separate group for advanced PCa patients-is great)

www.phoenix5.org  (founder Robert Young- also left us the first lay person PCa dictionary)

www.yananow.net (other case histories and people you can contact to discuss such)

www.paactusa.org (patient advocates for advanced prostate cancer-very helpful folks)

www.hormonerefractorypca.org (Dr. Strum site worth looking at for anybody)
 
Robert Young (above) diagnosed after he had bone pains, thought it was arthritis or such. Well it was advanced PCa, his psa number was above 3000 at diagnosis. Learned all he could and even put out a dictionary that is small but found in Libraries. He lived 3 years with this level of advanced disease, and was an icon in PCa world. Not every case is directly comparable, there is a guy on yananow mentors list, looks like 10 yrs. and going and his numbers are very high and omnious stats. Another veteran whom paved some ground for us others is Bill Ashman (find his info on prostate-help.org), one of the more studious laypersons on PCa he fought this mano la mano literally, until the end.
 
Look at everything available to fight this,  see PCa oncologists if you can find one and even then look for second opinions. There are many ways to consider fighting this and you should have some input as to which one(s) you wish to do. Get Dr. Strums book- A Primer on Prostate Cancer (learn all you can).
 
Hope this helps you and gives you some solace.
 

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/19/2009 10:11 AM (GMT -6)   
Hi Ak,
Welcome to HealingWell. You are not a typical new arrival here and unfortunately you won't find many peers. A 6 month rise of 500+ is as high as I have seen here. We do have a member who made it back to undetectable from 3200, that was done by starting hormonal therapy. He did take an herbal supplement as well but not sure what it was. His name is Todd and he may be checking in today. I understand you started Tax/Prednisone. Have you discontinued Casodex? Any attempts at Keto or Nilandron?

I will keep a watch for someone in your situation.

Peace to you...hang in there...we'll hope the Taxotere does good work.

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My Journal is at
My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!

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