SRT 11 of 39......what a day

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/19/2009 3:44 PM (GMT -6)   
Today was #11, it was delayed for 2 hours because of an "emergency", though no one would ever say what it was.  I was already sore from the stopped up catheter episode this morning (see thread below) and it took 55 minutes to get the treatment done with the radiation.  It was the original crew that seems to endless trouble with alignments.  Twice, they said good to go, and position the machine to do the first zap, and they had to abort and bring the machine back to the top.  No explanations are ever giving, in the position I am in, I can hear them talking barely, but they are out of my line of sight being on my back.
 
Was going to gripe to the Radiaiton Oncologist, my day to see her, but by the time that got screwing around with the treatment ,the doctor had left the building with a message that I could talk to her after Wednesday's treatment.
 
Perfect ending to a perfect day.
 
David in SC
 
Yes, I am sore and aggervated as hades, so excuse my tone.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


1worried
Regular Member


Date Joined Oct 2009
Total Posts : 23
   Posted 10/19/2009 3:57 PM (GMT -6)   
David,
So sorry you have had such an awful day :( Wish I could say something encouraging here, however, that just sucks so hopefully tomorrow will be better.

Kelli
Daughter worried about dad
Locally advanced prostate cancer
CT scan negative
PSA 7.9
Gleeson 7 (3+4)
Age 54
1 postive margin (seminal vesicle)
Robotic nerve sparing surgery Oct 2009
Scheduling for radiation
pt3bpn0mx


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/19/2009 3:58 PM (GMT -6)   
Hey David,
 
Some days just don't seem to go right no matter what you do and it looks like you had a bad one today. Take a deep breath and remember that we are all here to share the good and bad days with you and each other. Hopefully tomorrow and the days after that will be much better for you. Keep that chin up and stay with us on this journey.
 
Keep well,
Regards,
Bill


Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/19/2009 4:40 PM (GMT -6)   
David, me thinks there's a problem more with the technicians than with the equipment. You had a treatment last week with a different crew and it seemed to go better. Definitely bring this up with the rad onc on Wednesday. You should not be having the technical difficulties you're having as this is supposed to be a "bread and butter" procedure (that's what I was told, anyway) that can be done at any radiation facility.

I was so sorry to read of your difficulties with the stopped up catheter ... anyone not knowing you would think you're making this stuff up (but we all know that you're not). I do hope things improve in that area as well.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8. One spot on bone scan (clavicle) being investigated. Third PSA taken on October 16 - PSA IS UNDETECTABLE! Next PSA scheduled for early December. Urged not to begin radiation treatment until it's needed (no problem there!).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/19/2009 4:55 PM (GMT -6)   
Thank you Kelli, how's your dad doing?

Thanks, Bill, I don't usually have days as bad and aggerating as this one. I will fine tommorow, I hope, lol.

Sephie, I agree with you, the problems seem to be with this crew, and one of them (both women) was physically treating me rough down there prepping for the zap, and it was hurting, because of today's blockage. She had an attitude because of her bad days. Me, decided, best not to stir things up and just laid there and closed my eyes and waited for it to end.

I promise you, Sephie, and any other member here at HW, I relay as accurate accounts of this PC journey as I can. I have no reason to lie or make up things, the real thing is bad enough by itself. lol.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 10/19/2009 6:51 PM (GMT -6)   
Hi David,

Hopefully this is just a case of the Monday blues. Try getting past Monday and getting a new crew. It just has to get better.

Praying for you,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Three PSA tests undetectable, latest July 18


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/19/2009 7:57 PM (GMT -6)   
Thank you Bob

Ohio, at the clinic they only seem to have hangups on the IMRT machine, the other radiation machines have steadly lines of people in and out while I wait. Well, only 28 more to go!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 10/19/2009 9:07 PM (GMT -6)   
David, sorry you had such a bummer time today.

Thinking of you, always,


Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week.    


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 10/19/2009 9:16 PM (GMT -6)   
David, I think I would discuss this with the Dr. and possibly ask her to observe the procedure. There should not be that much difficulty getting you in the correct place. I get so frustrated for you. Good luck tomorrow.

Jeff Travasos
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/19/2009 11:02 PM (GMT -6)   
Thank you sheldon and jeff. yeah, i have two more treatments before I will get to see or talk to the doctor in question.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

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