One week post catheter and the Landry Protocol for regaining continence.

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Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/20/2009 8:34 AM (GMT -6)   
A week has gone by since my catheter removal and I have progressed from 3-4 pads a day to 2 per day.  I am able to get to the washroom during the night without leaking and can stand from a sitting position and do the same during the day. This has prevented the majority of leakage during my resting and waking hours. Walking still presents some challenges but I am working on that as well.
 
I believe that the main reason I am doing so well is due to a partnership of my surgeon, Dr. Pautler of St. Joseph's Healthcare Centre in London Ontario and Bill Landry BScPT, BScH, CAFCI, CWCE, MCPA, of the Family Physiotherapy Centre of London.  They have teamed up to provide Da Vinci Surgery patients a new method of regaining continence. They refer to the exercises as the Landry Protocol (they are researching this protocol compared to the kegal protocol).
 
One of the many reasons I chose Dr. Pautler was his stats on regaining continence in his patients.  86% of his patients are continent within 3 months and 98% within one year. All of his Da Vinci surgery patients are enroled in the Landry Protocol including myself.
 
The web site can be seen here:
 
 
With the permission of Bill Landry, I am going to post this protocol for anyone who wishes to try the exercises.  Here is their method:
 
Basically, prior to surgery, there were three mechanisns that were controlling urine flow.  The first is the sphinctor muscle at the connection of the eurethra to the bladder. The second is a series of small muscles in the eurethra inside the prostate that contract to stop urine flow.  The third is the pelvic floor muscle that wraps around the eurethra and the bowel to control urine flow and bowel secretion and gas passage. The surgery compromises the bladder neck control which needs time to recover if ever. The muscles inside the prostate are now removed with the prostate and therefore gone forever.  The pelvic floor muscles are in need of retraining as they are largely now responsible for controlling the flow.
 
Pelvic muscles become weak and sag after bladder and prostate surgery. We need to work on increasing tone ( at rest, while sitting, standing and walking). Weak muscles and the eurethral sphincter that is unable to maintain a threshold tone will give you less control of the bladder. With weak muscles and poor control, you may leak urine when you cough, sneeze laugh or exercise. Your brain needs to learn a new method of preventing urinary continence - motor learning.
 
Studies have shown that there are several types of muscles fibres within the pelvic floor and external urethral sphincter, Slow and Fast twitch skeletal muscles. Each requires a different type of exercising.
 
The exercises should be done in a quiet place where you can relax. It may take some time to get the right muscles. To locate the muscles, it is best to sit down. Try and squeeze the muscles that prevent you from passing rectal gas. As you continue to tighten you will feel  your scrotum lift and your penis retract. At this point you will be contracting your anterior pelvic muscles which contains the external urethral sphincter. Concentrate on contracting this part of the pelvic floor. Try not to tighten your abdominal and buttock muscles. Do not hold your breath. Remember, the pelvic floor is not  a large group of muscles.
 
After you get used to doing these exercises, you can do them any time, any place and any position. The following routine exercises focus on strength, endurance and motor re-patterning of the external sphincter/pelvic floor.
 
Exercise #1
 
1. Slowly squeeze your pelvic floor muscles 25% for 5 seconds then 50% for 5 seconds then ........
 
2. Hold  at full contraction for a slow count of 5 seconds and.........
 
3. Relax down to 50% for 5 seconds, then 25% for 5 seconds then....... 
 
4. Relax for 15 seconds. Repeat 20 times. Do 2 times per day.  Start sitting on the toilet in case of leakage and when control comes, you can do them anywhere. Do in a standing position after two weeks of repeated daily sitting exercises.
 
Exercise#2
 
1. Quickly squeeze your pelvic floor muscles 100% for 1 full second....
 
2. Relax quickly......... DO NOT REST....  Repeat 40 times.
 
3. Perform twice per day. Monitor for no leakage.
 
Exercise #3
 
1. Squeeze your pelvic floor 10-25% of maximum. Hold this for 1/2 hour.
 
2. Try standing reading a book or going for a walk while holding it at this level.
 
3. Us a facial tissue wrapped around the penis as biofeedback of leakage.
 
 
The lower levels of pelvic muscle control ( 10-25%  will eventually be taken over by the brain as the new "0" level of relaxation and provide constriction of the eurethra and continence.
 
Well folks, that is it.  I have been doing these exercises for  week and am progressing rather well in my opinion. I hope that this may help those who are experiencing difficulty as this is quite different than Kegals.
 
Keep well,
Regards,
Bill
 


Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 

Post Edited (Modelshipwright) : 10/20/2009 9:14:01 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/20/2009 8:59 AM (GMT -6)   
Bill,

Your road back to continence sounds great, and you are seeing good progress. The "new" method you posted is new to me, for sure, sounds interesting. The only hard part sounded like where you are told to hold for 30 minutes. That tired me out just thinking of that, lol. But sounds like a good program and plan of action. Sounds like the drs are on top of the problem.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/20/2009 10:08 AM (GMT -6)   
Hi David,

The 30 minute hold is the most difficult as you tend to lose focus on where the 25% threshold is as time progresses but that is partly because the brain is learning this new level and takes over after some time. He recommends doing the half hour hold at 25% over the toilet, naked, reading a book so that you can monitor leakage as and when it happens and adjust the hold to stop it. I have not yet progressed to doing the exercises standing as that starts next week but I can hold my urine while standing and walking and get to a washroom with minimum leakage. That seems to me to be real progress.

Keep well, and I hope you are having a better day today,

Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/20/2009 10:15 AM (GMT -6)   
I made a minor change to Exercise #1 as I had left out the part in step 3 which is the lowering down from 100% to 50% and then 25% and then to the rest stage.

Sorry about that.

Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


brad2513
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 10/20/2009 11:16 AM (GMT -6)   
Hi Bill
I'm also been one week since the cath was removed, and you are way ahead of me. I do ok sitting or lying down, but standing and walking is a nom go. I would love to try this, but my release papers say not to do kegals until 6 weeks postop. I'm thinking about trying them anyway, because it is getting really frustrating with having this problem and not being able to do anything about it.
age 46
diognosed age 45
PSA 3.9
preop and postop gleason score 3+4
daVince robotic surgery at Fremont area medical center, Fremont NE, 9/30/2009
stage T2c
involvement 2%
perineural invasion focal
extraprostatic extension, seminal vesticle, and lymph nodes negative
apex margin negative
peripheral margins positive, left dorsolateral 0.8, and 0.3mm, right dorsolateral 2.0mm


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/20/2009 4:51 PM (GMT -6)   
Hello Brad,
 
You should be aware that these are different from Kegals. And, depending what your post-op circumstances are I would be careful to follow what the doctors prescribe for your individual case.
 
Keep well,
Regards,
Bill
 
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


TimF
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 10/21/2009 9:42 AM (GMT -6)   
hello Bill,

I'm writing to thank you for taking the time to post the Landry exercises. I'm impatient and lazy about kegels and have wanted to try something else for awhile. I feel I'm about half-way there - nights are dry, for example - but I never know when I'll start leaking without any particular reason. Getting out of the car used to be a real bugger. Today it's just a drip or two issue once in awhile. I'll get to work on these in the next few days and let you know how I make out.

As always, thanks for posting...

Tim Friesen
Age 54. Last pre-op PSA 10 - discovered after annual blood test.

Biopsy - 4 of 12 positive 3 on the left and 1 on the right side. Gleason 7/8

Radical Prostatectomy on Aug. 18, 2009.

Post-op: a couple of hiccups initially; suture line opened in two spots requiring daily dressing changes for a couple of weeks. Despite my best efforts at cleanliness I developed a robust urinary tract infection - back to the hospital for 36 hours.

Pathology very positive. no positive margins or involvement in the lymph nodes or seminal vesicles. First Post-op PSA 0.05 (Sep. 22/09)

Still issues with incontinence but mostly when working - for pay or play - too hard or too long. Nights are dry. I use Guards for Men normally and Poise Maximum Absorbtion pads for working out or running.

ED - yes. I've been using Cialis 5mg Once-a-Day since Oct. 1. Not much happening just yet!


brad2513
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 10/21/2009 10:18 AM (GMT -6)   
Hi Bill
I need to clarify one thing on mym last post. I was told when I was setting things up 6 weeks before surgery by the doctors private nurse not to do these exercises for 6 weeks post op. Why I don,t know.
age 46
diognosed age 45
PSA 3.9
preop and postop gleason score 3+4
daVince robotic surgery at Fremont area medical center, Fremont NE, 9/30/2009
stage T2c
involvement 2%
perineural invasion focal
extraprostatic extension, seminal vesticle, and lymph nodes negative
apex margin negative
peripheral margins positive, left dorsolateral 0.8, and 0.3mm, right dorsolateral 2.0mm


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/21/2009 1:58 PM (GMT -6)   
Hi Brad,

If it were me, I would ask the surgeon for his opinion. Perhaps the nurse is just being extra cautious. He should be the definitive answer for your particular circumstances.

Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/21/2009 2:03 PM (GMT -6)   
Hi Tim,

I will be interested to hear your progress.

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 10/26/2009 5:47 PM (GMT -6)   
Hi Brad,
I'd give the same advice....check with your surgeon. I had my robotic RRP done in Tampa at the Moffitte Cancer Center by an extermely experienced surgeon and staff and I was encourged by everyone to start the Kegel exercises immediately. I just had the catheter taken out three days ago and I have a loooong way to go to get back to being continent. Best of luck, Steve

Dx 8/09
PSA-6.5
GS 7(3+4)
needle biopsy-4/14 cores adenocarcinoma
DaVinci RRP-10/13/09
Catheter out-10/23/09
Post-op path-GS-7(3-4), seminal vesicles, capsule, margines-neg. 5% tumor
No infection, complications so far.
Can retain urine only sitting or lying down otherwise no control of "my destiny"

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 10/26/2009 6:42 PM (GMT -6)   
I'm not sure how much different these are from kegels. The pelvic floor muscles are what we perform kegels on. The 25, 50, and 100 percent are the hard part to achive. I have seen kegel instructions in a similar format, but frankly I couldn't follow them.

I used a reptition method by doing 40 contractions as rapidly as possible, and then doing some slow reps hoding them as long as i could.

At 6 months, I am less than a pad a day. Probably should go to panty liners, but my maculine side rebels !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/27/2009 8:33 AM (GMT -6)   
Hello Goodlife,
 
You are right about having trouble establishing the 25% - 50% and 100% levels of holding the pelvic floor muscles while exercising.  It is difficult to calibrate these levels so I just do them as I perceive the levels to be in my mind. So far, I am two weeks post catheter and am down to 2 pads a day which are basically dry for the most part.  I do not leak while sitting, lying down and have almost mastered walking without leaks.  I am about to try the exercises standing and walking starting tomorrow. Perhaps it is the exercises and perhaps it is my luck, but my progress to continence is remarkable in my opinion and is far better than I had expected.
 
Keep well,
Regards,
Bill
 
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


Buzzdriver
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 10/27/2009 6:03 PM (GMT -6)   

Modelshipwright:

Thanks for your post on the Landry Protocol.  When you had your RP, were they able to maintain the bladder neck?  I had some radiation damage to my bladder neck, which led to a resection in March of this year.  Now, the bladder neck is essentially gone, and I'm working hard to retrain the rest of the "gang" down there to hold back the flood, but wanted to know if you still had bladder neck function.

Thanks,

Buzzdriver


57 Now
Age 54 at DX.  Gleason 6, PSA 4.2, a .78 rise in one year. 
 
Had High Dose rate brachytherapy at California Endocurie Therapy Center in Oakland, CA in February of '06.  Very successful - PSA came down quickly and steadily to current .08.  No problems.
 
Developed flow restriction in summer of '08 - had bladder neck resection in March of '09 - immediately incontinent, immediately in severe and constant pain, ultimately left job because I could not function because of pain and incontinence.
 
Started hyperbaric oxygen therapy (HBOT) three weeks ago - pain virtually gone, blood in urine down to "trace" levels, still pretty leaky.  HBOT has been a godsend with respect to reducing the pain! 
 
Considering sling procedure to get control of leakage. 
 


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/28/2009 7:45 AM (GMT -6)   
Hi Buzzdriver,

In my case the bladder neck was in very good condition and this is probably a benefit in the recovery.

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


Buzzdriver
New Member


Date Joined Oct 2009
Total Posts : 13
   Posted 10/28/2009 10:53 AM (GMT -6)   

Thanks, Bill.

I'm working very hard on the exercise side - both for overall fitness and for trying to retrain those muscles, but my uro says that to get my leakage under control, I'm going to have to step up to either the sling or the AUS.  I'm going to get some tests today for the applicability of the sling.

Ever onward!

Paul


57 Now
Age 54 at DX.  Gleason 6, PSA 4.2, a .78 rise in one year. 
 
Had High Dose rate brachytherapy at California Endocurie Therapy Center in Oakland, CA in February of '06.  Very successful - PSA came down quickly and steadily to current .08.  No problems.
 
Developed flow restriction in summer of '08 - had bladder neck resection in March of '09 - immediately incontinent, immediately in severe and constant pain, ultimately left job because I could not function because of pain and incontinence.
 
Started hyperbaric oxygen therapy (HBOT) three weeks ago - pain virtually gone, blood in urine down to "trace" levels, still pretty leaky.  HBOT has been a godsend with respect to reducing the pain! 
 
Considering sling procedure to get control of leakage. 
 


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 10/28/2009 5:28 PM (GMT -6)   
the rapid fire 1 second 40 times  has been part of my kegel routine. Since I am at the 1 year mark and still need a pad a day I am going to try your type of exercise. To be honest I only do 1 set of kegels a day for 5 to 6 minutes now. But, after a year I feel my pelvic floor area should be buildt up and once a day will keep it there. The hard part like you said is perception of percentage. I'll get back to you on results.
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 1 pad per day
 
Walked thru the darkness on the edge of town.

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