Dinner with Purgatory (David) from my viewpoint

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 10/20/2009 5:14 PM (GMT -6)   
WARNING; DISCLOSURE; THIS IS A TOUCHY FEEL GOOD POST AND HAS NO MEDICAL INFORMATION IN IT.

Hi guys,

Well I am back in the land of the mouse and have recouped from the trip. Got in about 4am Monday and catching up on my sleep.

Sure did miss the folks at HW while I was gone. But the mountains of middle TN, when you are hijacking an unsecured linksys wifi, aren't the best for net connections.

I have read the post from David about our dinner and your responses.

My dinner with he and his wife was everything I expected, hoped for and more. All of us here are supportive of one another and we try to convey that with our words from the heart. We do it quite well I think. But there is another dimension that is added when you get the chance to sit down and break bread with someone.

Dinner with David and Peggy was truly the pleasure of my wife and I. You can hear and read someone's words but you don't truly get the impact until you look them in the eye as they are being said.

You guys need to know that David is a truly STRONG individual. He is passionate in his support for his PCa brothers and the HW site.

My wife freely joined in on the conversations and came away feeling much more involved in the process. She now really understands how each of us can forge the bounds that we do by talking to our brothers through HW. She admitted that this is something she wishes she had with her cancer. Sadly even HW does not have a forum for Multiple Myeloma.

Each of us need to try to meet our fellow brothers when we can. I can attest to the fact that it is good for the soul. Even our greeting was heartfelt. It was immediately the handshake and man hug with the other arm that seemed to be entirely appropriate.

I look forward to our gathering in February even more now. There are many of you that I would like to shake hands with. Hopefully many of you will be able to attend.

So thank you David for the 3 hours of your time for dinner. And thank you HW for being here for me.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 10/20/2009 5:22 PM (GMT -6)   
I just knew that you dinner would be GREAT. Both of you guys have been such a force on HW. Not to mention our common PC. I know that Feb will be so wonderful. I just can not wait for the visit.

Cajun Country
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 10/20/2009 5:35 PM (GMT -6)   
Thanks from the heart, Bro. Sonny. We are still talking about your visit this past Sunday. Even my 82 year old mother asked me how it went and what I thought of you guys. Even though we live in an age of amazing instant means of communications, its still nice to see and touch. Sometimes, when there are conflicts and spats here on HW, a lot of the reason I think is because we aren't talking one to one with our brothers, you can't see expression or the other guy's eyes, you can't feel the tone in his/her voice.

All I know, is that you uplifted me, both with your journey, and your lovely wife's amazing journey. She looked and sounded wonderful, wouldn't know a thing wrong on the outside.

Glad you got home safely. No place like home after a road trip.

Thanks again for every thing,

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 10/20/2009 6:23 PM (GMT -6)   
Great post Sonny, and wish I could have been there. I must not have seen the post about a meeting in February so keep us posted. Not sure who said that "attitiude is everything" but it is good to step away from a computer and to do something uplifting for our spirit, and you all achieved that goal with your visit. Not sure you can ever really get that from a keyboard and screen. Keep us posted on next meeting.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael

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