Normal Road To Recovery- was No Subject

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buckeye42
New Member


Date Joined May 2009
Total Posts : 12
   Posted 10/20/2009 6:31 PM (GMT -6)   
hi folks, just wanted to find out if i am along the normal road to recovery. i am 5 months post robotic surgery. Just came back from a 2 mile walk after supper. my tena male guard was completly soaked thru to my jeans. when i walk in the morning i only fill the pad about 1/2 full. Dr.says this stress incontinence and will get better.I use about 4 pads per day.
surgery ...5/13/09

gleason score 6

am i being too impatient thanks buckeye 42

subject added for archiving and tracking

Post Edited By Moderator (James C.) : 10/20/2009 8:47:16 PM (GMT-6)


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 10/20/2009 6:42 PM (GMT -6)   
Buckeye,

Welcome my man. There is sure to be a bunch of folks along soon to answer you questions.

I am one of the blasphemed here in that I have been dry since my cath was removed. I am 5 weeks post surgery.

Hang in there, our prayers are with you,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 10/20/2009 6:53 PM (GMT -6)   
Totally normal. As the day goes on, the muscles weaken and at the end of the day things can just flow out freely. As you improve, you will notice pads will stay drier as the day goes on. Taking a walk after dinner is a recipe for flooding! but who cares? enjoy the walk, enjoy life, don't worry about wet jeans. In the scope of life, they are not a problem!
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 10/20/2009 7:00 PM (GMT -6)   
Buckeye,

There is no right or wrong answer here. Every path back to continence is a different tale. And yes, control of those muscles do tend to weaken by the end of a long day. Sounds like you are making pretty good progress. Good luck to you.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/09 met 2 rad. oncl, 7/09 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 - out  38 days, 9/14/9 - met 3rd rad. oncl.agree to start radiation, mapping on 9/21/9, 9/24 - mtg with uro/surg, 9/29- pre-op, 10/1 - 3rd corr. surgery - suprapubic cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 10/20/2009 8:33 PM (GMT -6)   
Buckeye,
I started my recovery by being dry at night after the catheter was removed but used 2 pads during the day. S time passed, I was down to 1 pad, then a thin pad. Now I'm until 99% dry (except when I play golf). On those days, I use a thin liner (what women use) just to catch the once in while drop toward the end of my golf game. I did bio feedback with a therapist early on and that helped me in mastering the kegel exercies.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 10/21/2009 12:03 PM (GMT -6)   
Buckeye
How are you doing at night? That is usually where you are dry first. Continence at the end of the day is generally the last to be achieved -- as is frequently said, avoid caffeine, alcohol, and carbonation. You are pretty much within the normal range -- and remember that it is a range. As EdC noted there is the biofeedback option to improve your kegels so if you are having real trouble with where you are now, ask your doctor about it.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/21/2009 1:11 PM (GMT -6)   
Hey Buckeye,

Everyone has a different scenario and yours is not unique. Recovery will take its course and you are doing the right things.

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 10/21/2009 6:56 PM (GMT -6)   
Hi Buckeye,

I used more than 12 pads per day for the first 3 months after surgery. During that time I was able to maintain control as long as I was sitting or lying down.

After 3 months I noticed a gradual improvement until my current condition which is 1 pad per day with very little leakage. Just enough to need the pad.

I recently got over a cold but I noticed a setback in my incontinence for the duration of the cold. There are days I can get by with no protection but I have to be sure to relieve myself more often.

I'm still optimistic that I will become fully continent in the near future.

Wishing you a rapid recovery,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Three PSA tests undetectable, latest July 18

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