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Regular Member

Date Joined Jan 2009
Total Posts : 62
   Posted 10/22/2009 9:02 AM (GMT -6)   
My 3rd 3 month PSA check came back zero!

Doctor is happy with cancer and incontinence recovery. Still confused with ED since I had good erections pre-surgery. I've started the vacuum pump therapy and can sort of hold my own after pumping it up, not as good as pre-surgery, but each each time seems to be improving. The pump vendor said should see progress in 3-4 months so it seems all is on track.

PC diagnosis @ 53 YO
PSA: 3.4 - 3.7 for preceeding 10 years, new GP advised Urologist visit

09/18/08 12 plug biopsy
09/29/08 PC diagnosis, 1 of 12 plugs, 5% cancer, Gleason 3+3 (6), left side plug w/cancer
12/17/08 da Vinci robotic radical prostatectomy, lab confirmed biopsy, 5%, PIN rest of prostrate, negative margins
12/29/08 catheter removed

03/24/09 1st PSA blood draw, < 0.1% "undetectable"
07/07/09 2nd PSA blood draw, < 0.1% "undetectable"
10/06/09 3rd PSA blood draw, < 0.1% "undetectable"

current status: continent with some stress incontinence; essentially ED, no luck with oral drugs, but doing therapeutic vacuum pump.

Regular Member

Date Joined Jul 2009
Total Posts : 384
   Posted 10/22/2009 9:18 AM (GMT -6)   
HURRAY DAN, I just got my first 0 score yesterday. I'm doing pretty well with levitra 20mg. Not as before but something with lots of work.
I'm at 2 months post surgery age 55

Age 55 / age at diagnosis 54, PSA 5.1
Biopsy 04/08/09 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin Noted in Right Apex
First post Surgery PSA - 0

James C.
Veteran Member

Date Joined Aug 2007
Total Posts : 4463
   Posted 10/22/2009 9:31 AM (GMT -6)   
Congratulations on your 3rd zero. Hopefully the Ed issues will continue to go away.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN

Veteran Member

Date Joined Feb 2008
Total Posts : 655
   Posted 10/22/2009 10:46 AM (GMT -6)   
Greetings, Dan.  Congratulations on another zero.  That is great news.  Hang in there on the ED front - with a loving partner to help along the way and the miracle of drugs and machinery you will get better and hopefully soon.  It's been less than a year and my doc said to expect issues for up to 2 years so you are well within that window for continued great improvement.  Keep us posted on how things are going.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me

Elite Member

Date Joined Oct 2008
Total Posts : 25394
   Posted 10/22/2009 11:01 AM (GMT -6)   

That was great news to come home to, a big congrats and handshake just for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

Ed C. (Old67)
Veteran Member

Date Joined Jan 2009
Total Posts : 2461
   Posted 10/22/2009 12:19 PM (GMT -6)   
Congratulations on your third zero. My doctor tells me that the more you get the greater the chance of being cured. Keep that up. By the way, what brand is your VED and are you using rings?
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1

Veteran Member

Date Joined Aug 2009
Total Posts : 2448
   Posted 10/22/2009 12:25 PM (GMT -6)   
Great news of the ZERO. Keep em coming.

I just had my blood drawn yesterday for my first, 1 month post surgery PSA test. We'll see.

Great news for you though and glad to see things are looking UP in other areas as well.

God Bless,

61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero

New Member

Date Joined Feb 2009
Total Posts : 7
   Posted 10/22/2009 6:42 PM (GMT -6)   
Sounds like you're a step ahead of me. I had my surgerylast March. PSA less than zero.  Had my 6-7 month check up this week and PSA still less than zero. Great. Never had any major incontinent issues.....just a little residual leakage.  Problem with ED though. I was pretty optimistic at first because I had some response the first quarter after my surgery, but it hasn'tr gotten any bett. The Doc told me this week to start Cialis and maybe the pump. Which brings me to this. can you elaborate on the pump? What brand, what ot look for for, where / how did you get it, does it work. etc. Appreciate any info you can pass on.  Thanks
Age: 61
Diagnosed: 1-29-09
Gleason:   6  3+3
Stage:     1Tc  
biopsy: 16 cores    4positive   both lobes affected
PSA:    at biopsy  4.47    up from a 3.6 one year earlier
Prostate size:   20 grams (small)

Veteran Member

Date Joined Apr 2008
Total Posts : 1382
   Posted 10/22/2009 8:01 PM (GMT -6)   
Great news my friend and welcome to the most exclusive club on earth THE ZERO CLUB. Even though it is an expensive club to be a member of it is worth staying in. I pray you will have lifetime of zeros. Enjoy the news.

peace and love
President Zero Club
My PSA at diagnosis was 16.3
age 47 (current)

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores

O Buddy Boy
Regular Member

Date Joined Oct 2009
Total Posts : 106
   Posted 10/22/2009 8:11 PM (GMT -6)   
Big Fat YES!


55 yo
DRE: Susp
PSA: 3.5
Gleason: 3+4/7
6/12 Cores Positive; Sextants were 1%, 3%, 8%, 15%, 12%, 0%
RALP: 10/10/09
Margins: Clear
Lymph Nodes: Clear
Seminal Vesicles: Clear
Gleason: No increase from biopsy 3+4/7
Some perineural and capsule invasion.

Veteran Member

Date Joined Apr 2008
Total Posts : 832
   Posted 10/27/2009 4:54 PM (GMT -6)   
Why are you getting so many PSA tests?  With your stats. you only needed one PSA test at 3 months and then after that once on the annual date of your surgery.  You were Gleason 6 organ confined.  It is very odd that your Uro. is having you test this much. 
I am on annual tests with the same stats. as you.  This is per Dr. Partin at Johns Hopkins...

Dx 42
Gleason 6 (tertiary score 0)
OPEN RP 10/08  Johns Hopkins
pT2 Organ confined Gleason 6
PSA Undetectable

Veteran Member

Date Joined Apr 2007
Total Posts : 823
   Posted 10/27/2009 7:53 PM (GMT -6)   
Great news Dan

Nothing like a big fat zero

age at dx 54 now 57
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
two years of zero's

Ralph Alfalfa
Regular Member

Date Joined Nov 2008
Total Posts : 469
   Posted 10/27/2009 8:09 PM (GMT -6)   
Sweet!! Keep up the with the good results and stay on top of the ED. It, too, will get better. Time heals all.

 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Meet with rad. oncologist 10/15

Veteran Member

Date Joined Jun 2008
Total Posts : 1804
   Posted 10/28/2009 7:28 AM (GMT -6)   
Dan, congratulations ... I know what a huge relief this is for you! It's always a great day for all of us when one of our members can report a zero!!

Chris, I thought the protocol was a PSA test every 3 months after surgery, graduating to every 6 months for years 2 through 4, then annually thereafter. Our uro/surgeon explained this as standard procedure. My husband has his PSA checked every 3 months due to his T3a stage and that will continue for a while yet.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8. One spot on bone scan (clavicle) being investigated. Third PSA taken on October 16 - PSA IS UNDETECTABLE! Next PSA scheduled for early December. Urged not to begin radiation treatment until it's needed (no problem there!).

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