SRT 15 of 39...........3 weeks down....learned a few things

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/23/2009 5:04 PM (GMT -6)   
Made another Friday, 3 weeks down out of 8, still a ways to go.  Lot of pain around the SP tube when they zapped me today.  After, they inspected my lower navel area, and admitted what I had been saying for days, that I am getting radiation burns on the skin already.  So much for the "there's no way you can be getting that so soon" attitutude I heard a week ago.  They are going to have the radiation dr. look at it Monday when I meet with her.
 
Yes, the toxicity of radiation builds up through the week.  I usually feel ok on Monday and Tuesdays, start getting a little irrated, had a rough time on Thursday, and today, Friday, miserable.  Had to have some help sitting up when we were done.
 
Since the IMRT crew was caught up, they spent about 20 minutes showing me the entire console of the machine, all the emergency stops, how all the alignment devices worked, including the cameras, the lasers, etc.  Does help me understand why it can take so long some times, a lot more involved than I assumed.  They also showed me the x-rays they take every day before zapping of my prostate bed, looks so weird to see it without a gland there.  Then they showed me the computer generated 3-D model of my former prostate that they programed the IMRT machine to hit.  If you like techy stuff, it was real interesting.
 
Glad its the weekend.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 10/23/2009 5:20 PM (GMT -6)   

David,

Has anyone told you why you have such a toxic reaction to radiaton? Most of us don't even approach the symptoms you are having. I never even knew I was getting it; felt absolutely normal throughout.

I know you had a hard time with your first radiaton; I would be curious to see what's causing it.

JT


64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/23/2009 7:42 PM (GMT -6)   
John, thats a good question. I will ask my Rad Oncologist Monday when we meet. She assured me already in a previous meeting, that I am not alone, that some people never feel a thing, like you said, and others get real sick.

Part of the reason she switched her plan for me to IMRT was to lessen the side effects, and know what a troublesome bladder neck connection I have. She was the one to push for the SP cath for the same reason.

Even though the radiation being used is man made, as opposed to some natural radioactive isotopes, its still radiation she said, and you are still experiencing some level of radiation poisoning with each dose administered. If you study the effects of getting 1-2 gys of radiation a day, regardless of the source, its enough in some people to cause nausea and discomfort.

I am ultra sensitive to sunlight, and sunburn extremely easily. My original rad oncologist 10 years ago, said that, plus how sensitive to heat I am, that I would have a hard time with the treatment back then. And he was right, my neck, face, and ears, were getting burned lobster red by the end of the second week back then. It was really tough making it through the 35 or so treatments at that time.

But I will ask for a more professional answer. It is what it is, I only describe how I feel or react to it.

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 10/23/2009 10:26 PM (GMT -6)   
David,

I am glad to see that you have reached the end of another week. I am saddened that the road you are traveling seems to be filled with pot holes and land mines.

If you believe in the saying that we are given only what we can handle in life; then there are a bunch of folks who can't handle it and they owe you a debt of gratitude. For you are surely carrying the load for many of them.

Peace, comfort and rest be with you my brother. Enjoy the weekend with your daughter.

Blessings,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/23/2009 10:36 PM (GMT -6)   
Thank you sincerely, Sonny.
I don't want others thinking I am just complaining, I would rather think that I am narrating a documentary on this journey. If something is good I will say it, if something is bad or painful, just trying to give honest reporting. I don't feel sorry for me, nor do I seek pity from others, not like that, and I know you are not saying that.

As each of us, and each new man that walks into HW for the first time, I think its real important that they here the good and the bad of PC, no glossing over. I agree, that most people go through RT or SRT with little or no side effects, perhaps a touch of fatigue or the "squirts" near the end. But there are others, myself included, where radiation makes you real sick, or you get burns. We say here constantly that knowledge conquers fear, then we shouldn't be afraid to report the unpleasant parts of our journeys.

Most men will never experience the strictures, blockages, and retention issues that I and a handful of others have here, but some do, and its painful and frightening when it happens.

Perhaps I am too honest and upfront in my feelings. You met me, you know I am not some pretend he-man, super hero, macho guy. If something hurts, it hurts. It's that simple in my mind set.

Thanks for your care and concern. That I need.

David in SC

PS Peggy made to FL to the hospital where her brother is in 10 hours, that was a fast trip for her. Hope to get a full report in the morn
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 10/24/2009 8:22 AM (GMT -6)   

David,

Happy you made it to the weekend! Now relax, watch a ball game on TV or just set back and read a book or watch a movie. You deserve it.

Also thanks for taking time yesterday to chat with me offline via email.

Larry

 


Age 55 / age at diagnosis 54, PSA 5.1
Biopsy 04/08/09 12 cores, 5 positive
Gleason 3 Cores at 4+3=7, 2 Cores at 3+4=7
Perineural Invasion Noted on biopsy

Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
 
Post Surgery - Dr. Spared 100% of Nerves on the left side.
Estimated that 50 - 70% of the nerves were spared on the right side.
 
Final Path report
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear
Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/24/2009 8:31 AM (GMT -6)   
Larry, alway enjoy chatting with you. Yeah, with my wife out of town till Monday night this will be more of a chill out weekend then normal lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Gmike
Regular Member


Date Joined Jan 2009
Total Posts : 48
   Posted 10/24/2009 9:00 PM (GMT -6)   
David,
I am being treated with 1.8 gys per session for 30 sessions. This will be followed with seeding, and then in 3 months most likely 10 IBRT touch up sessions.

I was prescribed Sucralfate (carafate) to protect the bowel from radiation and Trental which increases blood flow to the pelvic area to aid in healing. I was also told to supplement with vitamin D3 for bone health. During the first week (I've completed 2 weeks), I had quite a bit of nausea. The nurse said the radiation amount was almost certainly not enough to cause this. She said that the clinic's experience with thousands of patients was that the Sucralfate was the cause. After cutting back on it, the nausea decreased quite a bit.

I've also been taking Avodart for 3 weeks and am starting to see side effects from it. Breast tenderness is the most noticeable. I'm an avid cyclist and have been experiencing quite a bit of fatigue after long bike rides (40 to 50 miles.) Some increase in urinary problems is also occurring.

Keep on keeping on
Mike
Dx: 05/21/2009 (age 58)
1 core of 12 positive (10%), Gleason 6, Stage T1c, PSA 5.2 (21% Free)
Family history: Grandfather had PCa, died at age 79 of other causes, Father had PCa still living at age 80 cancer free (11 years)
07/15/2009 TUMT (Transurethral Microwave Therapy) for BPH
08/29/2009 Started on Casodex
10/5/2009 Color Flow Doppler, started on Avodart
10/12/2009 Started radiation at Dattoli Clinic in Sarasota


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 10/24/2009 9:46 PM (GMT -6)   
Hi David,

Take a break! It's Miller time. Always thinking of you.

Wishing you the best,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Three PSA tests undetectable, latest July 18


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/24/2009 10:37 PM (GMT -6)   
Hello Mike, I am on no special meds right now being on radiation, the dr. alluded to some if needed. From my own research and talking to my dr, there are people that are sensitive enough to radiation that even experience nausea at 1 gy per day doses. It is still a toxic thing happening to the body, and it really depends where and how they are targeting the radiation. Glad you are getting through it. Many moons ago, I did road bikes and did plenty of centuries and half centuries, but couldn't even imagine riding a bike right now. I admire your strength

Bob, thank you, since I don't drink, I will raise my glass of Pellegrino to you, or at least buy you the next round
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 10/25/2009 8:08 AM (GMT -6)   
Thank goodness for weekends and all the pleasures they bring. I hope you relax and enjoy the time before the next round. Hopefully the following weeks will be better David,

Keep well,
Rergards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 10/25/2009 6:45 PM (GMT -6)   
David
I don't see you as complaining in the least. You are on a difficult journey which we hope that we never have to take. But your strength and courage give us hope that whatever may come, we have a guide who has been there and has endured. I am reminded of the lyric


"Promenading in the park,
Goosing statues after dark
If Sherman's horse can take it why can't you"

To which I would say, if David can take it, I can too.
Thankyou and God bless you
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/25/2009 6:48 PM (GMT -6)   
Thank you, Geezer.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

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