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zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/26/2009 6:21 AM (GMT -6)   
tongue   turn

Post Edited (zufus) : 10/26/2009 12:03:54 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/26/2009 8:56 AM (GMT -6)   
Topic deleted by poster.

Post Edited (TC-LasVegas) : 10/27/2009 1:02:50 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/26/2009 9:00 AM (GMT -6)   
Can't you ever post a positive uplifting post to this group of men? Your posts only foster fear and uncertainty. You constantly bash the medical community. Your stories, even if verified, are only a tiny percentage of bizzare failed cases, not the norm.

Coming here and putting fear serves no useful purpose in my opinion. The vast majority of the medical community is educated and dedicated to the needs of the patient. Yes, there are bad apples, but they are often soon found out. A doctor with a bad reputation often doesn't last long, patients talk, words spread.

Would be thrilled if for once you posted something that would encourage your brothers here, not get them wasting time on rabbit trails and bizzare conspiracy theories.

How about just posting about treatments and cases you know went well? We have lots of stories like that here. Yeah, we have some failure cases, some difficult cases, but we have lots of sucess too.

And remember, many people here are just everyday joe's like me, we don't have the time or the resources to get expensive multiple opinions beyond our means, or have insurance limitations, or personal logistics in our lives that makes advice like that great in theory but not practical in practice.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/26/2009 9:07 AM (GMT -6)   
I had a response all typed up for this post ... then decided against it. Our friend, Zufus, has an ax to grind. What I don't like about this particular post is that he used someone else's misfortunate to make his point - that to me is self-serving and without merit.

Enough said on this.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8. One spot on bone scan (clavicle) being investigated. Third PSA taken on October 16 - PSA IS UNDETECTABLE! Next PSA scheduled for early December. Urged not to begin radiation treatment until it's needed (no problem there!).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/26/2009 9:22 AM (GMT -6)   
Sephie,

You are a wise woman! You brought up a good point that I entirely failed to catch on to. It is terribly self serving of him to use someone else's story, and this is assuming its not made up. How would we ever never?
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/26/2009 9:56 AM (GMT -6)   
David, wanted to wish you well this week with your treatment. I hope it only gets better.

Don't know about being wise ... sometimes I do the dumbest things!

Be well.

Sephie
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8. One spot on bone scan (clavicle) being investigated. Third PSA taken on October 16 - PSA IS UNDETECTABLE! Next PSA scheduled for early December. Urged not to begin radiation treatment until it's needed (no problem there!).


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/26/2009 10:00 AM (GMT -6)   
We all do, Sephie, lol, that's why we are called humans. Didn't feel very recouped after the weekend, even though I had help around and virtually did nothing. I already dread this week's treatments, but onward I go, there is no turning back now, or it would all be in vain.

My best to John, so very glad he's not going to have to go through this now.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4271
   Posted 10/26/2009 11:03 AM (GMT -6)   

Tony, I think your post is fair and asks reasonable questions of our friend zufus.  However, I still think zufus plays a vital role on this forum by injecting a healthy dose of skepticism that new patients should have. This is perhaps an important offset to the rosy picture that gets painted by some posters, e.g. the recent quotation by one poster of an 80% ED cure (men under 60 within one year of surgery)from her husband's da vinci surgeon.

And, David, usually I love you but...IMHO you have fallen into the same trap that you accuse Ohio of doing to you.  I read the now deleted posts from yesterday and I do believe Ohio jumps on your after some of your posts because he doesn't agree with your statements.  However, I think you are doing the same to zufus and you do it almost every time he posts.  As I said in the first paragraph, some pessimism is probably appropriate and zufus is certainly entitled to his opinions.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!
Tudpock's Brachytherapy Journey: http://www.healingwell.com/community/default.aspx?f=35&m=1305643

Post Edited (Tudpock18) : 10/26/2009 11:06:29 AM (GMT-6)


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/26/2009 11:16 AM (GMT -6)   
"80% ED cure who is under 60 from her husband's da vinci surgeon."

If you quote, please include all the content.

Jennifer

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4268
   Posted 10/26/2009 12:06 PM (GMT -6)   
I too agree that Zufus plays an important role here, even though I don't agree with everything he posts. It is a good offset.
It is nieve to believe that all doctors are working in their patients best interests and don't have their own agenda be it financial or others. It is just as nieve to believe that all doctors are working in this manner. My wife's oncologist gave up $100 million to stay with his patients. His wife was an heiress that wanted him to retire and move; he thought his patients were more important.
We should all have an amount of skeptisim when dealing with anything, including the medical industry.
I believe that conflicts of interests are real, but are overshadowed by the lack of knowledge of many doctors that are treating PC. They are just not aware of the newest treatments and tests that are available.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4271
   Posted 10/26/2009 12:09 PM (GMT -6)   

Jennifer, I have amended my original post and hopefully you feel this is correct...my apologies.  However, I still feel this is an overly optimistic statement offered without any proof.  If your physician provides you with a study that verifies his claim, I will gladly eat my words.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!

Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 10/26/2009 12:15 PM (GMT -6)   
To me, the troubling thing about the patient in zufus's post is he had a serious, complicated situation and it does sound as though he was rushed into treatment without taking the time to get second and third opinions and become educated about all the options out there.   That's one thing I think we learn on this board- be your own advocate and get second opinions.
 
At a minimum, the patient should have been advised of the existence of other options, the uncertainty of the intended treatment , and a follow-up plan of action if the primary treatment was not successful.
 
I enjoy the various personalities on this board and am hopeful they will all continue to be heard.
Thanks for the perspective zufus
Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.


qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 10/26/2009 12:25 PM (GMT -6)   
Tudpock, no need to apologies.

that 80% supposedly include 35, 40, etc younger ones who may recover better on their ED. at this point, I do think that 80% number is come from our surgeon's patient outcome. but who cares.

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/26/2009 12:43 PM (GMT -6)   
Tud,
There is another reason for a website like HealingWell. Many patients, for many reasons, are where they are in treatment. Whether we agree with how they got there or not. They come here for advice on how to tackle a concern or issue they are having with their treatment. They are not asking what they think a members opinion is as to why they "chose poorly" in their decisions. They were hoping for positive reinforcement on their current issues.

My doctor is the primary US study doctor for sanofi-Adventis, the manufacturer of Eligard and Taxotere. Yet he prescribed Lupron to me. He told me that he knows that many would view his prescribing me Eligard is conflict of interest, so to keep his studies unbiased he prefers to avoid the conflict. He said that LHRH agonists all work the same, so he knew that I would do well with it. He also prescribes Taxotere for HRPC. He does this fully acknowledging that he is a study doctor for Docataxyl based therapy, but that it provides life extending treatment. One center he worked at also treated patients with Radiation. I was treated by one of his staff members after I found studies at Stanford and Harvard that say that treating me with radiation offerred an 46% improvement in controlling PSA at year 5. He recommended against it for my advanced 3B case, but wanted me to make the call. When he spoke at an US Too meeting a year later, he pointed out that he did not want to mislead anybody. He said that brachytherapy has been widely improved, and the results at his center were reported as excellent by the lead RO at the facility. But he said the problem with this center is that it does radiation at all and they make money on each case. For this reason he excludes patients in his study work that were also treated in the Radiology department at this center. But he would not recommend against a patient making this decision.

He is also, I am sure, well compensated for his efforts in prostate cancer research. I wonder how he sleeps at night?

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My journey is at: www.caringbridge.org/visit/tonycrispino

My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/26/2009 12:53 PM (GMT -6)   
Tud, what can I say? I have no special insight on truth here, no medical credentials, never claimed different. I am always preaching its ok to disagree to disagree. What I don't think is right is when the party you mentioned attacks me in a condenscending way. I don't care if we agree or not, we are equal in that aspect. The posts of zufas and ohio have no more professional merit than mine or anyone else's here at hw. The difference is that I don't pretend to be a doctor and I try real hard to be polite and respectful. For that, I make no apologies to anyone.

I deleted some posts of mine yesterday only because of the conflict going on, and thought it would be in the best interest to the respect of our moderators to do so. I was not ashamed of anything I posted. I am a man of peace, but if someone wants to push my buttons on purpose or try to degrade me, then I am just as human as the next man.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/26/2009 1:13 PM (GMT -6)   
Hey, zufus why did you delete this fine post? Apparently I am totally off base(based upon the wise ones), I have no clues on what goes on in the outside medical realm (lol) and should stay home and make bon-bons and watch Barney and friends or Mr. Rogers...it's a beatiful day in the neighborhood. tongue
 

Post Edited (zufus) : 10/26/2009 12:57:31 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/26/2009 1:47 PM (GMT -6)   
Bob,
I wonder about your motives for posting as you did, then when a counterpoint is posted asking for any proof of the Canadian doctor acted based on compensation, you deleted it. This is not the first time you have done this.

Is there a reason why you can't post in a more considerate manner and at least let others see why your post is being challenged?

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My journey is at: www.caringbridge.org/visit/tonycrispino

My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 10/26/2009 2:04 PM (GMT -6)   
I have trouble with being personally attacked as the messenger...but hey it's all good. I am not going to reply to your remarks that are that far off base, have better things to do. But hey if you wanna put in some bad words for me and paint me darker and worse...have a great time doing it and if you have some friends that wanna join in the roast...do it righteous. Since you are the mod squad why not remove me????


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 10/26/2009 2:52 PM (GMT -6)   
There has never been an attempt to remove you. You said that the case you posted about was a prime reason for second opinions. You posted the "$" dollar sign over 10 times in your post in direct reference to the actions of this doctor.

You posted this story and you say you are the messenger? Do you have any facts that this is why the doctor rushed this patient to surgery, or was it your opinion? With facts you are quoting, you are a messenger and I would yield and remove my post. If it is your opinion then you are not a messenger, you are a source. And then it is a fair post to ask what I did in the post above.

Bob, I generally accept you as knowledgeable in prostate cancer. I am one of the few people here who knows your extensive experience with prostate cancer because I have the link to see where you are in your treatment. I advised you to let others see it, but for some reason, you refuse to post a signature that is informative for them to see. It is very difficult for someone to see where you come from in your opinions when you post focussed mainly on the financials of prostate cancer treatment. For many, cost is not an object when fighting cancer. For many with insurance it is not an issue. For those without insurance or the financial stability to do so, my heart love and concern go out to them, and my prayer that something falls into place for them to get what they need. No one should not be able to afford the ability to fight this disease at any level.

Tony
Age 47 (44 when Dx)
Pre-op PSA was 19.8 : Surgery at The City of Hope on February 16, 2007
Gleason 4+3=7, Stage pT3b, N0, Mx
Positive Margins (PM), Extra Prostatic Extension (EPE) : Bilateral Seminal vesicle invasion (SVI)
Hormone Therapy May '07 to September '09 ~ Currently off.
IMRT radiation for 38 Treatments ending August 3, '07
Current PSA (October 7, 2009): <0.1

My journey is at: www.caringbridge.org/visit/tonycrispino

My InfoLink page is at Tony's Prostate Cancer InfoLink Page

STAY POSITIVE!


GarthK
Regular Member


Date Joined Feb 2009
Total Posts : 74
   Posted 10/26/2009 3:11 PM (GMT -6)   
This thread, along with several others recently, have been getting a little too divisive for my taste and seem to be missing what this forum is all about. If we can't give helpful advice to the newly diagnosed and caring support to those continuing the battle, then let's switch to a discussion of sex, politics, and religion and quit calling ourselves Healing Well.

Just my $0.02.

Garth
Vitae:
DOB: Q4'46, HT: 5'9", WT: 180
PCa:
PSA: <2.5, DRE: Slight enlargement, one node
Biopsy: 12/08
Cores: 4 of 12+ positive, Gleason: 3+3
Surgery: RRP on 1/21/09
Catheter: 15 days
Pathology:
Adenocarcinoma occupying 5% of prostatic volume (right posterior aspect)
Gleason: 3+2, No extraprostatic extensions, Perineural invasion within prostate only
No angiolymphatic invasion, No seminal vesicle invasion, Clear margins
AJCC: pT2a
Post-op PSA's
3/10/09 < 0.014 (undetectable by machine)
6/10/09 < 0.014 (undetectable by machine)
9/8/09 < 0.014 (undetectable by machine)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/26/2009 3:40 PM (GMT -6)   
There is nothing wrong with the diverse position at HW Prostate Cancer. But even the most serious and dire news can be presented in a polite and civil manner. It great to see posts about little known solutions and cutting edge thinking, I for one, am never, ever afraid of knowledge, and I learn from all manners of sources. I don't need someone to censor what they want me to see or not see, capable of thinking and deciding for myself.

But when posts constantly belittle the established medical community, and put fear into our newer friends here to be constantly second guessing all the medical advice from their doctors, I think its then in the wrong direction. Not saying all is right in the world of doctors and hospitals, but its sure not the dark, sinister world sometimes presented here with all divers sorts of conspiracy theories.

I have learned a lot here in a bit over a year. I have taken things from here, and used it as questions for my medical experts. I am sure many others have.

But in an open forumn like this, civilty and respect and dignity have to be there at all times. For the few that like to push my buttons, I am going to try hard to ignore the remarks both stated openly and on the sly, and stick to what I like best here, to be able to help, understand, comfort, encourage, and aid all our brothers here, old and new, and their other halves.

It is scary to have cancer. It is a tough fight with PC. We don't need to add fear to the fearful, and we sure don't need to keep promoting doubt and skepitism of the medical community in general.

Thats my opinion.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 10/26/2009 4:09 PM (GMT -6)   
I'm sorry that this thread has gotten out of hand but I must add once more to the mayhem.

With no disrespect intended to anyone in particular, I do not find Zufus' posts informative, only inflammatory, as they rarely if ever contain any concrete information. I truly hope that Zufus will stay with this forum as we need all the information we can get and each of us has something to offer. I just wish that his posts would include more information rather than the same litany over and over again.

We all know of doctors who are working more for themselves than for their patients. I've already told the story about the "PCa specialist" at a leading NYC cancer center who would decide, after looking at my husband's path slides and report and charging me between $1500 and $2000 for the honor, whether my husband's case was interesting enough for him. I wouldn't give that doctor - no matter how many degrees he has and how many prostates he has treated - the time of day let alone my money or my husband's life. As I said in my original post, this is not medicine - it's business. And I know that has been Zufus' point all along.

As I've also mentioned in another post, there is always a better doctor, better treatment, better hospital. It's all well and good to tout the advantages of a particular doctor or treatment and to encourage those beginning their journey to get as much information as possible. However, when that opinion becomes a "ah hah ... I told you so" then it loses any value.

We are here to learn and to educate, to be consoled and to console, to reach out and touch and to be touched. If we accomplish these, we have done our jobs well.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8. One spot on bone scan (clavicle) being investigated. Third PSA taken on October 16 - PSA IS UNDETECTABLE! Next PSA scheduled for early December. Urged not to begin radiation treatment until it's needed (no problem there!).


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 10/26/2009 7:12 PM (GMT -6)   
If I was a newly diagnosed PC man and found some of these posts as my introduction to what lies ahead, i would probably go suck on my tail pipe.

It has been said over and over and over that each case is different. I don't care what the topic, we can all find a horror story. Dentists have killed patients, beauticians have disfifigured patrons, people watching sporting events have been injured or killed.

Again, let's concentrate on the normal. with helpful advice to the normal problems such as catheters, incontinence, ED, etc. Of course we can also help those who are having the abnormal situations. ut scaring the He** out people is not the best educational approach.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/26/2009 7:22 PM (GMT -6)   
I agree Goodlife, the day to day survival concerning PC, including pre-dx, dx, treatment choices, treatment, post treatment, and living with the consequence are the real issues that concern many people. Speaking only for me, I don't have time for the theoretical, the game players, and the politics of PC, there are others more qualified for that part.

I am trying to survive this d*** thing, and trust me, I worry about one day at a time, and one week at a time. It's the best I can right now, but I still want us to help as many men as we can along our journey.

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Dave7
Regular Member


Date Joined Jul 2006
Total Posts : 202
   Posted 10/26/2009 7:50 PM (GMT -6)   
While I agree that zufus's posts can be opinionated and perhaps not 100% politically correct, I really don't understand why he's being criticized so much.
He raises issues worthy of debate and in a direct manner.
Let him express his opinions without the personal attacks.
We can all chime in with opposing views.
Keep posting zufus!
Age:54
PSA 5/22/06: 5.6
DaVinci surgery: 9/14/06
Gleason: 3+3
Organ confined, clean margins.
Both nerve bundles spared.

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