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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/27/2009 3:47 PM (GMT -6)   
Today was a doom and gloom day for me, I don't handle dark raining all day days, good thing I don't live in Seattle!  Todays went smoother than yesterday.  Was in and out in 35 minutes.  But when the zaps were over, took both of the operators to help me up, because of the burning pain where the SP cath exits my body.  This problem is getting worse, they are going to talk to my dr.   When I talked to her yesterday, she seemed clueless about why I would feel anything at all, and said to mention it to my Uro.  When I mentioned it to him a week or so ago, he blamed it on the radiation and what he called "scattering".  All I know its hurts when the treatment session ends, and it can hurt for hours after.  Also, and I had mentioned this to the dr too, been getting a lot of penile pain in the hours after being zapped, almost like if my "friend" were bruised, but obviously not a mark on me.  No explanation was giving to me for that either.
 
Right now, I keep on a steady diet of Advil, as its good not only for mild pain, but for anything with swelling related to it.  If it hurts too much, I will pop a Loratab, which I only use as really needed, because I don't like the constipating effect.
 
The main operator still stressed that in 8 years, they had never treated anyone with a catheter in place, let alone a SP cath.  Hope its not causing or will be causing a problem.
 
Pain or no pain, I am totally convinced that without the cath, I would be in a total retention situation already, so I am not second guessing the push to have the SP installed.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 10/27/2009 4:23 PM (GMT -6)   
This count-up seems like it will last forever and it must be even worse for you. Hang tough -- we have you in our prayers
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/27/2009 4:26 PM (GMT -6)   
Just shows the day to day reality of what 39 treatments really means. Got real old after about the 3rd one, brings up too many bad memories of my treatment 10 years ago, like being in time warp
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 10/27/2009 6:44 PM (GMT -6)   
David, I think the memories are a big part of the psychological difficulty. We so admire you posting the events. You are an inspiration to all of us.

Jeff T
Cajun Country


Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/27/2009 7:03 PM (GMT -6)   
Not sure about the inspiration part, lol, just a smuck that got stuck with PC, like you and the rest of the gang. To some people, I tell too much, but then I know there are others that really want to know what something feels like going through it, the things that we think are cut and dry arent always that way when you are the one going through it.

Whatever strength I do seem to have, I have to pray for it every night, its not there on my own.

I want to be a realistic example to anyone on our path, like many of you are anyway. Very few have easy journeys, we have different quirks and diffculties. So guys seem to have an easy path, some seem to have a raw deal, but all in all, we are on the same path fighting the same beast.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 10/27/2009 8:11 PM (GMT -6)   
David,
Sometimes the journey is hard but the destination hopefully will be a cancer free life. Hang in there brother.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 10/27/2009 8:32 PM (GMT -6)   
Hi, David

Hang tough, my friend. You're almost halfway done. Set your mind , and body,on cruise control and get this over with. Easier said than done, I know, but each day brings you a little closer to the goal. Beat the beast!
Lucky me... I start tomorrow. Can't wait to begin the fight, again.

Bob
 AGE:57
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Meet with rad. oncologist 10/15


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 10/27/2009 8:35 PM (GMT -6)   
Hang in there, brother.

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/27/2009 8:41 PM (GMT -6)   
EdC - thanks my friend

Ralph, sorry you are about to start, all i can hope is that you will be in the majority group and not have a hard time with it. I hope you do well.

Casey, thanks.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/27/2009 8:43 PM (GMT -6)   
Forgot ,tommorow I have to get my treatment almost 3 hours earlier. I have to report to my unemployment office at the same time as my normal treatment time. In this state, they don't care if you are in a coma on life support, if you can't make your review date, they cut you right off from unemployment.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 10/27/2009 9:07 PM (GMT -6)   
Hi David,

I think it's time you get a break. It's hard for me to put into words how I feel. I so look forward to the day you reach the end of the tunnel and finally emerge into the sunshine.

Wishing you all the best,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Three PSA tests undetectable, latest July 18


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/27/2009 10:20 PM (GMT -6)   
THanks, Bob
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 10/27/2009 10:32 PM (GMT -6)   
David,

To say I feel for you seems not enough. Man I pray you catch a break soon.

I will double and triple my prayers for you and Peggy.

God bless you my brother,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 10/28/2009 12:36 AM (GMT -6)   
Hi David,

Thanks for keeping us posted. We admire you hanging tough, brother!

Many prayers and positive thoughts going out to you and family!

All the best,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/07 <0.04; 12/07 <0.04; 03/08 <0.04;
06/08 <0.04; 12/08 <0.04; 06/09 = 0.06 (hmmm...);
Latest PSA 09/09 <0.04 (back to undetectable)


dogbot
Regular Member


Date Joined Aug 2009
Total Posts : 147
   Posted 10/28/2009 6:05 AM (GMT -6)   
David, I hope that as a newby you will not mind the use of your christian name, I cannot express my thoughts on your prostate journey, and I hope that at some point in the near future you will be able to sit back in full health and enjoy life. All the best from England. Oh, and my name is Phil. Regards.
Diagnosed February 2009. Gleason 6, Psa 7.2, 12 core biopsy, and then Mri scan, which showed organ specific.
DaVinci at Addenbrookes, Cambridge, England 18th May 2009.  Nerves removed one side.
Catheter in for 8 days, no pain, no post op problems apart from an infection, cleared with antibiotics.
Some aching around the penis, which still occurs.
6 week psa 0.1, post op pathology all good, confirming pre op tests. Ed a problem, no treatment as yet.
Light ladies pad during the day, just to control a slight dampness and a Tena for  men pad at night for occassional leakage.
Awaiting 3 month consultation at the moment.
Sept 09 - still awaiting consultation. 99% dry during the day, tena pad at night just in case.
Sept 18th 09. PSA less than 0.1
Sept 29th follow up consultation at Addenbrookes. All ok at the moment
Virtually dry at the moment.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 10/28/2009 8:55 AM (GMT -6)   
SOnny, likewise for your situation, really hoping your next test will get you in the club

THanks, bro. barry

Dogbot/Phil - thanks, lol, you made me laugh, never think in terms of Christian name, Purgatory is only an online-related name that I have used for years. I have my ties to the UK too. My mum is from London, she was a war bride WW2. My older brother and sister were born in London. I lived in the UK until I was 7 years old.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

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