dry after a year?

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jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 10/27/2009 6:17 PM (GMT -6)   
I am just past the 1 year post surgery. Zero club which is great. I still have leakage which requires a pad a day and sometimes 2 depending on activity. I am a furniture service tech so I am in all kinds of postions during day. I also work out 4 to 5 times a week. I realize the work outs which include easy running, treadmill walking and moderate weight lifting will cause some leakage.
Is there hope that after this long I may still stop leaking all together. What are the odds after a full year. I still do kegels. Any of you guys out there reach the dry land after this long?
 
Carry On.
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 1 pad per day
 
Walked thru the darkness on the edge of town.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 10/28/2009 10:42 AM (GMT -6)   
Try going pad free, in my case it was a crutch that once I tossed aside I naturally knew there was nothing to help me out. From that day on I was dry
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


CharlieTuneA
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 10/28/2009 4:09 PM (GMT -6)   
Jersey,
 
I don't know how long it takes to dryness, because I'm not there yet - 4 1/2 months and still lots of leakage.
 
But you bring up a good question that I've been meaning to ask, namely, about exercise. I used to go to the gym 4 or 5 times a week. Now I don't go at all, because:
  1. It's an open locker room and I'm embarrassed to be seen wearing a Depend and a pad (still wearing both)
  2. I'm afraid I'll pee on the floor after showering, and that would be a good thing.

How do you or others handle these issues in the gym?

Thanks,

-Charlie

 


Age at diagnosis 59, PSA 1.4
Biopsy 12/08 12 cores, 6 positive
Gleason 3+3=6
CAT scan negative.

DaVinci surgery 6/16/09
After 10 days, cystogram revealed fistula
Catheter Removed 7/17/09
Fistula still evident week of 8/24
PSA 0.03
Catheter Reinserted 8/28/09
2nd catheter removed 9/28/09
 
Still minor evidence of fistula 10/21/09
Doctor recommends close monitoring, continuation of low residue diet, possible temporary colostomy if resurfaces.

Continence is a future goal. Progress slow.


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 10/28/2009 5:06 PM (GMT -6)   
CharleTuna:  when I still was in a depends I would dress in workout clothes prior to getting to workout facilety. I would not shower there. Yes ,I had the same embarassed feeling. What I do now is put a pad inside of jockey brief with an old school jock strap over that. That holds everything in good position. When workout is over I just pull everything off and do shower. At this point I do not have leakage that I cannot control so a in house shower is ok. Have a replacement brief and pad ready to replace what you just sweated up. It takes alittle more work and planning but it can be done.
 
I have been tempted to throw caution to the wind and just not wear pad to see if the mind will take over. I think I will try it this weekend.

 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 1 pad per day
 
Walked thru the darkness on the edge of town.


Mavica
Regular Member


Date Joined Jun 2008
Total Posts : 407
   Posted 10/28/2009 10:54 PM (GMT -6)   
I'm 13.5 months post-op, da Vinci.  In September I had my one-year consultation with the surgeon - who was pissed as hell with me . . . because I'm still on one pad a day.  This is a guy who does lots of research with federal grants and he's told me I'm not trying hard enough to control the leakage, that I shouldn't be leaking, that I'm content with wearing the pad a day, etc.  I think he's right.  I don't know how/when I'll gain the discipline he expects of me  . . . but I'll keep trying.

Age:  60 (58 at diagnosis - June, 2008)

April '08 PSA 4.8 ("free PSA" 7.9), up from 3.5 year prior

June '08 had biopsy, 2 days later told results positive but in less than 1% of sample

Gleason's 3+3=6

Developed sepsis 2 days post-biopsy, seriously ill in hospital for 3 days

Dr. recommended robotic removal using da Vinci

Surgery 9/10/08

Northwestern Memorial Hospital, Chicago, IL

Dr. Robert Nadler, Urologist/Surgeon

Post-op Gleason's:  3+3, Tertiary 4

Margins:  Free

Bladder & Urethral:  Free

Seminal vesicles:  Not involved

Lymphatic/Vascular Invasion:  Not involved

Tumor:  T2c; Location:  Bilateral; Volume:  20%

Catheter:  Removed 12-days after surgery

Incontinent:  Yes (1/2 light pads per day)

Combination of Cialis and MUSE (alprostadil) three times weekly started 9-27-08

Returned to work 9-29-08 (18-19 days post-op)

PSA test result, post-op, 10/08: 0.0; 12/08: 0.0; 4/09: 0.0; 9/09: 0.0

 


CharlieTuneA
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 10/29/2009 7:44 AM (GMT -6)   
Thanks, Jersey. I'd thought of your suggestion, but I guess I may have been looking for excuses or feeling sorry for myself. I'll give it a try.

-Charlie
Age at diagnosis 59, PSA 1.4
Biopsy 12/08 12 cores, 6 positive
Gleason 3+3=6
CAT scan negative.

DaVinci surgery 6/16/09
After 10 days, cystogram revealed fistula
Catheter Removed 7/17/09
Fistula still evident week of 8/24
PSA 0.03
Catheter Reinserted 8/28/09
2nd catheter removed 9/28/09
 
Still minor evidence of fistula 10/21/09
Doctor recommends close monitoring, continuation of low residue diet, possible temporary colostomy if resurfaces.

Continence is a future goal. Progress slow.


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 10/30/2009 6:08 PM (GMT -6)   
MrGimpy: seems like it might be just a coensedence that you were dry by just stoping to wear pad. I know the mind is very powerful but if your plumbing has a leak it has a leak. I am going to try your approach this weekend around the house to see if I can get better with mind control. Thanks for your thoughts.
 
Mavica: not trying hard enough is a statement that is almost insulting . Does he think we want to be in this prediciment? He should walk a week in our pants and then make  brash statements. Hope you are well.
 
Any stat's on getting dry after the year point would be helpful.
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 1 pad per day
 
Walked thru the darkness on the edge of town.


engineer55
Regular Member


Date Joined May 2009
Total Posts : 121
   Posted 10/30/2009 7:26 PM (GMT -6)   
Like everything it varies, I had no control the first few days but pad free in a month. I agree on get rid of the pads asap. The moisture inhibits control in my opinion.
Dx'ed 5/08 one core 2%  out of 12  3+3 gleason
DREs all negative
PSA was in the 3-4 range then jumped to 7
I have the enlarged prostate, on the order of 100cc.  After taking Avodart for 3 months  my
PSA was cut in half.
I did Active S for a year but concluded that I didn't want a life
of biopsies and Uro meetings.
DaVinci on 6/24/09  UCI Med Center  Dr Ahlering, long surgery based on size and location
Final was 5% one side all clear, but had a huge 90 grm prostate
Now we work on pee control, ok at night but sitting is a big problem.


Dirtmover
Regular Member


Date Joined Apr 2008
Total Posts : 158
   Posted 11/1/2009 9:21 PM (GMT -6)   
HEY THERE GUYS ,THIS IS A GREAT SUBJECT , I HAVE ALWAYS SAID THE MIND IS A TRICKY YET POWERFUL THING , IT IS IMPERITIVE  TO TRY TO DITCH THE PADS ASAP. IF POSSIBLE TRY IT  AT HOME FIRST , TRY TO GO ALL WEEKEND , AND THEN GO FROM THERE , I WAS DRY IN 10 WEEKS , AND LIKE LOTS OF YOU I HAD MINOR LEAKAGE , AFTER THAT, COUGH , EXCITEMENT ECT. BUT I VOWED TO NOT GO BACK TO THE PADS, AND THINGS GOT BETTER QUICK , IF YOUR MING KNOWS YOU HAVE A SAFTEY NET , THERE IS NOTHING TO WEAN YOU OFF THE PADS , THIS IS ONLY MY OPINION , BUT IT WS SUCCESSFUL FOR ME , THANKS FOR BRINGING THIS UP  HOPE ALL GOES WELL ...................................DIRT   smilewinkgrin
Diagnosed November 2007   (43 years old )
PSA 3.9 / Gleason 6 / TC1 6 cores 1 shows 25%
Sugery scheduled 5/29/08 - City of Hope - Dr. Mark Kawachi
 "First show of the day"
 and now for the new ive been waiting for
 FINAL PATH REPORT:gleason upgraded to 3+4 T2c bilateral disease,tumor involvment 5%
extra prostatic extention:absent
seminal vesical invasion :absent
pathological staging:pTNM pT2 ORGAN CONFINED
margins free of carcinoma
usable erections ;6-6-08 with little blue pill
continence; 1 pad a day, dry at night
continence a non issue at 10weeks
 1 year p.s.a. undetectable


jerseycity
Regular Member


Date Joined Nov 2008
Total Posts : 123
   Posted 11/2/2009 7:07 PM (GMT -6)   
Hey dirtmover,
 
you are the 2nd person to say ditch the pads. I tried this week end and ended up fairly wet. I noticed that you are 43 and the other man was 54. I am 64. I think the age difference may have a factor in the leaking issue. I know the mind is powerful but, so is the bladder. I will continue to try the go without approach at home.
 
I was hopeing to hear from anyone who actually did get dry after the year mark but I guess that does not happen to often.
 3-17- 8 went to Bruce Springsteen concert , great time
3-18-8 routine exam
3-19 doctor called said psa was elevated
what's a psa?
referred to Uro, had several more blood tests.
PSA steady at 4.75
biopsy  June 08 , 12 cores, 4 on left confirmed , right clear
gleason 3 + 3 T1c
research time.
decieded on open RP, Head of Uro  is my Doctor
Surgery done 10-1-8 by Dr See at Frodoret Hospital in Milwaukee
Cathater out 10-13 no problems
Post op,  organ confined, gleason up to 4 + 3, all clear margins
T2c 20% volume, very good outcome I feel
Incontinent and ED.  Time will tell, was told all nerves  saved.
back to work 11-5-8.
 3,6,9 month psa <0.04 one year <0.04
still use 1 pad per day
 
Walked thru the darkness on the edge of town.

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