Not just size, but shape too

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DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 10/29/2009 10:22 PM (GMT -6)   
Hoping this isn't too descriptive for some...

I happened to notice that the head shape, when erect, is not what it used to be. Sort of looks like it's pulled in a bit. I'm not sure if this is recent or has been this way since surgery. It would correlate with having pain at full erection. I told my doc today, and he checked for Peyronie's which is something else affecting the curvature, which I don't have, but it's close enough to be worth checking, and that wasn't conclusive.

Anyone having a similar experience?

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09 still undetectable!


Piano
Veteran Member


Date Joined Apr 2008
Total Posts : 847
   Posted 10/29/2009 10:38 PM (GMT -6)   
If you are inducing the erection by injection, I have seen reports that the head is not as full as before surgery -- the injections work mainly by expanding the cavernosa.

I didn't notice much difference in my case though, and I did check, having seen references to it in this forum.
Pre-op:
Age 63 at diagnosis, now 64.
No symptoms; PSA 5.7; Gleason 4+5=9; cancer in 4 of 12 cores.
Operation:
Non-nerve sparing RRP on 7 March 2008.
Two nights in hospital; catheter out after 7 days.
Post-op:
Continent; no pads needed from the get-go.
Pathology showed organ confined and negative margins. Gleason downgraded to 4+4=8.
PSAs:
6-week : <0.05
7-month: <0.05
13-month: 0.07 (start of a trend?)
19-month: 0.09 (maybe)
ED:
After a learning curve, Bimix injections (0.2ml) worked well. From 14 months, occasional nocturnal erections. Have "graduated" to just the pump.


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 10/29/2009 10:53 PM (GMT -6)   
I'm not using injections--but I wonder, is that true even for those who haven't had PCa surgery (and need injections for some other reason)?
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09 still undetectable!


Mike A
Regular Member


Date Joined Feb 2007
Total Posts : 213
   Posted 11/3/2009 8:20 PM (GMT -6)   
Once again, sorry if this is a bit too descriptive...Post-surgery about 2 inches shorter, slight curvature to the right and upwards. Pump induced erection was engorged, slightly purple in color and full but limp at the base (we called it "turnip on a hinge"). Trimix injections much more normal, but Piano is correct the head is not as full or hard as before. Only natural reaction without pharmacutical assistance is some size increase and a slight firmness in the lower third.
Best,
Mike
June 2005 - Age 53 PSA 4.8 at regular physical
October 2005 - After several rounds of anti-biotics, PSA 5.2 at Urlogist November 2005 - Biopsy negative
July 2006 - PSA 5.9 at regular Physical October 2006 - After several more rounds of anti-biotics PSA 8.1 November 2006 - Second biopsy - Positive December 2006 - Gleason (3+4=7), Tumor T1c, CT Scan and Bone Scan Negative
January 2, 2007 Robotic Prostatectomy, University of Rochester Medical Center - Tumor confined but larger than thought, only one partial nerve able to be spared. Margins clear.
February 2007 - Three to four pads a day, no erection with viagara.
April 2007 - First Post-Surgical PSA 0.02. Down to one pad a day.
July, 2007 - Six Month Post-op: PSA 0.04 No change in ED.
October, 2007 - Nine Month Post-op: PSA back down to 0.02! Almost totally dry! Only slight improvement in ED - Will try injections if not improved by next appointment.
January 2008: One Year Post-OP PSA 0.02 still dripping, but improving. Tried 500 dose of MUSE for ED, no luck. Will try 1000.
July, 2008 PSA 0.04 again, will recheck in October. Use .15cc Trimix injections, partial success. Will try .20cc.
October, 2008 PSA still 0.04. Won't check until April - Yay! .20cc trimix still only partial success. Will try .25cc.
April, 2009 - Good News/Bad News PSA 0.07 - Boo - Will retest in October. .3cc trimix puts me back in the game!! Yay
November, 2009 PSA holding steady at 0.07 - Yay! Good to go until spring!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/3/2009 10:25 PM (GMT -6)   
The only weiner I know personally or an intimate with is my own, and at almost 1 year post surgery, it looks the same both flacid and errect.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


DJBearGuy
Veteran Member


Date Joined Dec 2008
Total Posts : 818
   Posted 11/4/2009 12:28 AM (GMT -6)   
I _think_ the head is as hard as before, but is not as full. Of course, I never took any pictures (!), and I'm not sure I trust my memory.

Must be a good joke in here somewhere. Hope it's not too serious a matter. I'm still hoping it will get better with more time and healing.

DJ
Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09 still undetectable!


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 11/4/2009 2:54 PM (GMT -6)   
Mike A said...
(we called it "turnip on a hinge").
Best,
Mike

Not to laugh at you but that line really made me LOL.
62yo
V10.46 Dx Feb-09
RRP 5-5-09
No adverse SE
PSA 6-19-09 -0-
PSA 9-21-09 -0-
 
Thriving, not just surviving!
 

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