What an awful experience. Goes to show you that being at the #1 hospital is no guarantee when it comes to an individual experience. I hope you complained to whomever they have as a patient advocate, ombudsman, etc. The hospital I used called me a few days after my surgery for a survey about
my experience, and I told them both the positive and the negative (mainly positive). I wonder if Hopkins does this, or if they feel they are too famous to bother with patient feedback?
As far as your pathology, that's a strange one. Don't know how it can be organ confined and still have positive margins, unless the surgeon left some of the border of the organ behind, that is, didn't cut enough of the peripheral tissue. Hopefully it won't matter, from these boards there are many who had a positive margin but the PSA went to 0, so I hope that is your case.
I have a strange pathology report also, with negative margins, extracapsular extension, but no extraprostatic extension. Go figure that one. I have my first PSA this week, so it becomes a moot point once I get my PSA, but it makes me wonder what's going on.
Age 64 yrs
8 out of 12 cores positive
Gleason Score 3+4=7
Da Vinci Surgery 08/07/2009
Upgrade Gleanson Score 4+3=7
Neg Margins and Nodes
Neg Extraprostatic Extention
Waiting for first PSA