Pain in Tail Bone area 5 moths after surgery - Anyone?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 11/1/2009 6:00 PM (GMT -6)   
Hello All:
 
Recovery has been great in all areas so far until a week ago. Having pain deep in my tail bone area especially when I try to bend. Could I have pulled something in passing stool? No blood or anything just on and off pain. Anyone experienced this? Should I call the doc?
 
mad   mad
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.
> Sept 09 - 3month PSA - Undetectable!


RacingOyster
Regular Member


Date Joined Aug 2009
Total Posts : 31
   Posted 11/1/2009 8:47 PM (GMT -6)   
You may be experiencing coccydynia. This may be the result of trauma to the area, or just a coincidence. You may want to try naproxen sodium (Aleve) to ease the pain. Coccydynia is usually not treated and goes away on its own after a time.

However, it's always good to talk to your doctor about any pain you are experiencing.
Living in the northern Atlanta suburbs.
Good health and no symptoms when my annual physical uncovered an elevated PSA.
Diagnosis at age 55: PSA 4.6 - positive biopsy 3 of 12 cores - Gleason 3+3=6.
open Radical Retropubic Prostatectomy with bilateral lymphadenectomy on 6/18/2009.
Pathology report after surgery showed negative margins, cancer contained in capsule
(60 gram sample, Gleason 3+3=6, T2c N0 MX).
PSA at 4 months after surgery <0.1 (all other problems are minor considering being cancer-free).
Catheters required on-and-off for 34 days after surgery due to recurring urinary retention.
Anal fissure due to trauma to rectum from biopsy, surgery, and antibiotic-induced diarrhea.
Scheduled for repair of Spigelian Hernia due to tearing of abdominal muscles during RRP.
Using 1 pad during the day for occasional stress incontinence, dry at night (18 weeks after surgery).
Taking Cialis for ED with no joy so far.


IKE-D
Regular Member


Date Joined Jun 2009
Total Posts : 77
   Posted 11/1/2009 10:46 PM (GMT -6)   
Thanks! I will manage it with the medication and observe it for a couple more days and then call the Doc if it doesn't get better...
>Age 41 (At Dx-July 05) -Psa during annual physical went from previous 2.8 to 3
>Biopsy by 'primary' Urol Aug 05 - Gleason 6 low grade. 2nd opinion at  Hopkins confirmed Dx
>Chose Active Surv (AS)- modified diet etc.
>Around Oct 07 Psa moved up to 5.5. I decide to treat at Hopkins. Not sure what kind yet. My doctor decided on re-biopsy first.
>2nd Biopsy Dec 07 at Hopkins was NEGATIVE for Pca! Nothing found in 14 cores!
>'Primary' Urologist baffled. Planned a saturated biopsy (22 cores) to settle issue once and for all. I wasn't going to do 22 cores wide awake!
>July 07 - Did MRI just for comfort. Nothing significant found. No spread. I'd live! Still in AS mode.
>July 08 - Saturated Biopsy performed. Cancer confirmed again (of course, you took 22 cores)! Same Gleason score, same grade, similar numbers but Urol says treat very soon! I am thinking not so fast - numbers are same and you told me it means not aggressive! In any case I agreed with Urol that I will go the way of the Seeds. I research seeds more and I don't like it.
>July 08 - Dec 08 I re-lapse back into AS mode but seriously researching/considering treatment options beside surgery - went on to Mass Gen and Georgetown to explore proton therapy and Cyberknife respectively. Anything but Surgery! Both experts who are about my age were unanimous in strongly declaring they will chose surgery 'if they were me'. In addition, I learn that if either if these radiation methods (and seeds too!)  failed, no backup plan (or will be complicated)! I got the message!
>Jan 09. Went back to see my doc at Hopkins. I decide to put my fate in the hands  of the 'Da Vinci Robot' then!
> May 09. Had surgery. some Pain and discomfort but normal. Pathology all clear. Gleason 6 as before. Feeling very lucky. I gambled (based on my numbers and got 4 more years!) on the slow nature of the cancer and took my time. Very happy I finally did it. Hoping for a great recovery of all 'key' functions. Great wife and family helping out.
> Sept 09 - 3month PSA - Undetectable!

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 5:30 PM (GMT -6)
There are a total of 3,005,737 posts in 329,257 threads.
View Active Threads


Who's Online
This forum has 161800 registered members. Please welcome our newest member, Envsciguy.
268 Guest(s), 4 Registered Member(s) are currently online.  Details
HeartsinPain, mareish, insomniaaa, Shayanv