SRT 21 of 39.......7/13th complete if you like fractions

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/2/2009 1:18 PM (GMT -6)   
Started week 5 of SRT, #21 of 39.  Went in two hours early, machine was sitting idle anyway, because I have to see my uro later for some procedures.  Will post on that later.
 
Monday zaps aren't so bad, its later in the week when they start getting to me. 
 
Did get to have my weekly meeting with my rad. oncologisit.  She finally admits  (after a month) that some of the pain I have described in my penile shaft, testicles, and lower bladder region are related to the radiation.  Duh, told them that after the 1st week.  She also thinks the big increase in bleeding over the weekend in my cath bag is probably radiation related.
 
She's concerned about the uro wanting to do a hard dialation of my bladder neck today, concerned it might even make things worse from her side since she is treating that area as well.  I told her, before someone ends up putting me into more un needed pain and trauma, why don't you call him up on the phone before I go there this afternoon, and decide if it is really needed today, and is it worth the risk, if any?  You wouldn't think I would have to suggest that.
 
Told her that her tech crews are pretty decent, but instead of questioning the validity of a patient's pain reports, just to simply report to her directly what the patients are saying.  Told her I have no motivation or reason to make up stories of things hurting for the fun of it.  She agreed.
 
Back home resting for 90 mins before my wife comes gets me to go to the Uro.  If if sedates me, would be unable to drive, even though it is only about 3 blocks away.  Will report on that later.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/2/2009 5:03 PM (GMT -6)   
Hi David,

Glad that Mondays are not too bad for you. Hang in there and it will all be over soon.

Keep well,
Regards,
Bill
Pre-Op:
 
Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
 
Biopsy:
 
TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
 
Treatment choice:
 
Robotic Assisted Laparoscopic Prostatectomy - September 29/09. 
Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
 
Post-Op:
 
Robotic Prostatectomy - 09/29/09, back home 10/02/09.
 
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
 
Continence
 
10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
 
Potency:
 
10/16/09 - Zip, nada
 
State of mind:
 
Excellent - always positive.
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/2/2009 5:41 PM (GMT -6)   
So far, Monday and Tuesday zaps are bearable, Wednesdays start getting yucked out, and Thursdays and Fridays, have to make myself go through with it.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/2/2009 6:00 PM (GMT -6)   
David,
if my maths are still what they used to be(somewhat debatable) you just passed over the halfway hump and it's all an easier downhill run here from here. Odd how sometimes these docs think a patient doesn't know anything.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/2/2009 6:04 PM (GMT -6)   
True Billy, some dr's are annoyed by informed patients and others love them. My uro and GP love the fact that I can communicate freely about how things are going and how I am feeling. Makes their job easier.

Yes, my mind likes knowing I am just over the halfway point, my body still is pouting though.

David
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 11/2/2009 6:28 PM (GMT -6)   
Ok David, You are sliding down that Rad. Hill. Keep moving on down. My son and I had a great weekend doing that Father-Son Bonding....

Thought about you this morning a breakfast.... I had a teaching moment. Was with 4 of my sons friends. I asked their age. After their report. I told told them a bit about PC and advised if they have history of PC in the family they should ask for PSA by 40.

If not discuss it with their Dr. At least 2 of them use the same GP that I use and I told them he is the one the first suspected my PC.

David thanks for getting me to the point where I can educated men as you do all the time about PC.

Your Friend
Jeff T
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 11/2/2009 7:20 PM (GMT -6)   
Hang in there David, I'm still rooting for you!

Best Regards,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Four PSA tests undetectable, latest Oct 30


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/2/2009 7:30 PM (GMT -6)   
Thanks, Bob, I can feel your support from here

Jeff, you have been and are still going through your own journey, if you are like me, never gave a thought about PC or even having a prostate myself until less than 3 years ago. This is a horrid world I knew nothing about. But even in my own journey, learning more with each passing day, I feel a sense of urgency and duty to inform as many men as I can about PC. And from what we all know now about PC, more there reason to seize the opportunity to spread the word about early detection, that's always a good starting point.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.

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