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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/2/2009 5:34 PM (GMT -6)   
Gee, been a fun day.
 
Well, due to concerns from my Rad. Oncologist about how tender and sore I am becoming after 4 weeks of radiation, my Uro decided it would not be wise to do a hard dialation of my Bladder Neck.  He said if I were that sore just from the radiation, then his procedure would just intensify  the damage and increase my pain.  He said we will have to delay it until at least until the radiation ends, but even then, he said it may continue to swell for weeks after.  Moral of the story - before sure to communicate openly and honestly with your doctors, they are not mind readers.  He told me he was glad I told him how sore it was, and the concerns my Rad. Oncologist had today about this planned procedure.
 
I may be the only one here, perhaps, that had an SP catheter changed out.  No fun.  I think it was only painful because of my current pain and swelling from the radiation.  Fortunately, an SP cath is short ,compared to a Foley, the inside part at the most was about 4 inches.  They deflated the balloon in the old one, that alone caused a spasm.  Then the nurse slowly pulled it out, it burned all the way out.  The new one, was pre-coated with lydocaine (?) was pushed in, perhaps 6-7 seconds max.  Yes, it burned all the way in.
When he inflated the new baloon and positioned the cath just right, that hurt terribly, thought I was going to split, but fortunately, he was quick and experienced.  To be safe, he had the nurse irragate the new one, and that was the most painful part, as I was already so sore, and the pressure of the water drove me to some serious hurt, all the way through the tip of my penis  (even though its not a foley).  Was so glad when it was over.  He even lets me hold onto his arm/shoulder when he's doing something painful.
 
Back home, resting, on a Loratab, he says I should use them still to get through all what's ahead.  But  I am stingy with their use.
No advil, no aspirin, nothing that can cause the bleeding to increase.
 
This catheter is officially #9.  He will replace this one again on December 7th.
 
He is still a  fine doctor in my book, and his patient care toward me, and empathy towards pain, is outstanding.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 11/2/2009 5:48 PM (GMT -6)   
 
David,
 
We are so sorry to hear the pain you were in today.  This journey has not been a easy one for you and we both admire your strength and courage.    Hang in there things have got to get better.  You are in our thoughts and prayers.
 
MJ & Jerry1 
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  3+3= 6 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
6/12/09 new gleason score of 4=4
Developed stone in bladder may require surgery
 


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/2/2009 6:06 PM (GMT -6)   
Hey David,

It must have been quite an ordeal for you today. I hope that the pain is calming now and you can get back to a more normal day from here on out. Hang in there brother, and keep well

Regards,
Bill


Pre-Op: Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
Biopsy: TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
Treatment choice: Robotic Assisted Laparoscopic Prostatectomy - September 29/09.  Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
Post-Op: Robotic Prostatectomy - 09/29/09, back home 10/02/09.
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
Continence 10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
Potency: 10/16/09 - Zip, nada
State of mind: Excellent - always positive.
 
 

Post Edited (Modelshipwright) : 11/2/2009 4:12:06 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/2/2009 6:49 PM (GMT -6)   
Thanks MJ and Jerry, I got a one month at least reprieve on the dialation portion, but will still have to deal with it eventually. Resting comfortable at the moment.

Bill, thanks. Every pretty comfortable at the moment. Did have to take some pain med, but its eased the sharpness a whole bunch.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/2/2009 8:54 PM (GMT -6)   
Four hours later, the pain starting to kick back in, already have a few more lovely spasms, no way to get any long term relief from those, dr said, as long as I have any kind of catheter in me. I can increase the amount of ditropan I am on to see if it helps. And of course, both sets of doctors said, "Stay off your feet and rest". Geez, I want to live and get back with my real life, tired of sitting around and resting between the different setbacks. In 12 days, it will be one year since my big surgery, hard to believe.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


O Buddy Boy
Regular Member


Date Joined Oct 2009
Total Posts : 106
   Posted 11/2/2009 9:03 PM (GMT -6)   
Sorry to hear about your suffering.

OBB
55 yo
Dx:9/29/09
DRE: Susp
PSA: 3.5
Gleason: 3+4/7
6/12 Cores Positive; Sextants were 1%, 3%, 8%, 15%, 12%, 0%
RALP: 10/09/09
PATH:
Margins: Clear
Lymph Nodes: Clear
Seminal Vesicles: Clear
Gleason: No increase from biopsy 3+4/7
Some perineural and capsule invasion.
T2c,NO,MX
Incontinence: Minor. 1 light pad a day. Some days don't need it.
ED: Natural with encouragement. 20mg Cialis and pump just makes things more fun.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/2/2009 9:06 PM (GMT -6)   
Thanks, OBB, making it a day at a time.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sessions/72 gys.


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 11/2/2009 9:13 PM (GMT -6)   
David,
Sorry about the pain and all the trouble you are going through. I can't imagine how you are putting up with it. I sure hope that the light at the end of the tunnel will be bright and painless for the rest of your life.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/2/2009 10:44 PM (GMT -6)   
Ed, I try to keep myself busy helping other people in my r/l, gives me some sense of purpose. It sucks too being out of work long term on top of the medical stuff, gives me too much time on my hand. Soon as I can get through this radiation and its aftermath, and hopefully be rid of a catheter for good, ,looking forward to geting real busy again with something. Right now, walking through Wal mart with the wife or going to the grocery store is enough for me most days. What helps too, is that I don't blame anything or anyone for my situation, pragmatic on that sort of things. Don't feel cursed or blessed, kind of in-between, right now, this is my reality, and I just try hard to plug forward and not take it out on those around me, especially my loved ones.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

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