SRT 22 of 39 - the day of fatigue

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/3/2009 3:30 PM (GMT -6)   
Today was my 22nd of 39 radiation treatments.  Went at my normal time, clinic mostly empty for some reason.  They were able to get me out in 25 minutes, their 2nd best time ever.  Took both of them to help me sit up again, didn't have the physical energy to even sit up by myself.
 
Radiation fatigue is a funny thing, hits people different ways.  Guess it is more intense for me, as I already had Chronic Fatigue Syndrome for years, at least from when I had radiation 10 years ago.
 
I don't usually feel this wiped out until later in the week, never on a Tuesday.  At some point, if I feel too wiped out or unsafe to drive, I will get other family member involved with helping me.  So far, been doing it on my own.
 
Didn't realize until last night, that when the uro/surgeon swapped out SP catheters, he put in the next size bigger.  That explains the pain when it was inserted and the dull, achy pain I have had all day.  Spasms hurt just the same.
 
Now that I am home, no where else to have to be, will take some meds and chill till my wife gets home.  This is why I do any errands or housework early in the morning while I have any energy at all.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/3/2009 4:47 PM (GMT -6)   
Get some rest my friend....Time to just chill a bit.

Jeff T
Jeff T Age 57
9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable
 10th month  PSA <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next


reachout
Veteran Member


Date Joined May 2009
Total Posts : 739
   Posted 11/3/2009 5:14 PM (GMT -6)   
You have endured more than anyone else I've read about on these boards. The way you are hanging in there and fighting this terrible disease says a lot about your spirit and your character. Hang in there, buddy, and keep fighting it. You are well over halfway past your RT and soon it will be a distant memory.
Age 64 yrs
DX 5/2009
8 out of 12 cores positive
PSA 5.6
Gleason Score 3+4=7
Stage T2a
Da Vinci Surgery 08/07/2009
Upgrade Gleanson Score 4+3=7
Stage pT2c
Neg Margins and Nodes
Extracapsular extension noted but neg Extraprostatic Extention
Dry immediately
First PSA 11/3/09 <0.1


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/3/2009 5:34 PM (GMT -6)   
Hey David,
 
Another one down and less than half to go. Sorry that you are feeling this more today than normal for a Tuesday. Perhaps tomorrow will be better.  I guess the pain from the cath will improve when you adapt to the new size. Take a deep breath and relax tonight. We are there with you.....
 
Regards,
Bill
 
Pre-Op: Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
Biopsy: TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
Treatment choice: Robotic Assisted Laparoscopic Prostatectomy - September 29/09.  Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
Post-Op: Robotic Prostatectomy - 09/29/09, back home 10/02/09.
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
Continence 10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
Potency: 10/16/09 - Zip, nada
State of mind: Excellent - always positive.
 
 


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/3/2009 5:38 PM (GMT -6)   
David,

Glad they didn't torture you for as long today. Really sorry to hear about the fatigue and all the rest. Hoping it's gets better for you. The end of the tunnel is near.

To put a more positive spin on it, you could have endured what you did toady and then had the ending I had.

Took my wife down to MD Anderson today and then she reminded me to make one more stop at the bank. Sent us home a route I don't travel too often. Made the right turn on the red arrow, got just a little way down the street and the officer stepped out from behind the bush, radar in hand.

Seems the little kiddies had gotten out of school about an hour ago and yet the school zone still had 9 minutes left on the time clock. So he got me for doing 33pmh in a 15mph, school zone.

When he handed me the ticket and he began to explain that the Clerk's office would work with me on a payment plan, I knew the news was bad.

$404.00 because I was double the speed of the posted school zone. OUCH!!

So I feel for you my brother. Hope you are feeling better soon. And I hope that some over-officious officer doesn't ruin what may have been an already crappy day for you in the future

Sonny

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/3/2009 6:07 PM (GMT -6)   
David,

Hang in there. Don't know how else to help you, other than to say we all are feeling your pain in some way. You are a real man in my book !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks due to anatomical issues with location of ureters with respect to bladder neck.  Try 3 tubes where no tubes are supposed to be for 2 weeks !
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/3/2009 6:10 PM (GMT -6)   
Jeff, thanks, I am chilling along with some meds, dinner cooked all day in a crock pot, so getting some needed r&r

reachout, not sure I have suffered more, there are guys here in much worse shape PC wise, I have had an overdose of problems and side effects

THanks Bill, appreciate your concern. Yep, another one down for the record books.

Sonny, thanks for the kind words. Sounds like you been a bad bad boy today. Shall I talk to your wife about it, or are you going to confess on your own?
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 11/3/2009 6:33 PM (GMT -6)   
No David, you don't have to tell her. She was sitting right there in the car the whole time. She's been pretty good about it though. Told her as my navigator she has to take a little of the responsibility. She said okay, but I still had to pay the ticket out of my pocket.

You know it occurs to me that I ain't getting near the breaks for my cancer has she has been getting for hers the last 4 years. LOL

Sonny

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/3/2009 6:56 PM (GMT -6)   
Well, Sonny, if she was in the car, then it is her fault by default, she probably distracted you by hissing at you.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 11/3/2009 7:39 PM (GMT -6)   
don't try to push yourself. I am sure you are going through a lot but you are almost there. Over half way and soon we will counting down the last 10 with you. I know you are grateful you have a home and a good wife to help you recouperate. Hang in there and hopefully Friday will be just around the corner and you will have a great weekend.
 
Age 49
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
12 month  PSA <.04 (low as the machine will go)
continent at 10 weeks (no pads!)
ED is still an issue but getting better


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/3/2009 7:52 PM (GMT -6)   
rob, thanks for you kindness. yes, having a great wife who is also a great nurse, really helps me get through all the odd paths my PC journey has taken so far. My kids are always on stand by for their dad, but I try hard not to mess up their already busy lives with my deals. Just a comfort to know that they are all there for me, if needed.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 11/3/2009 10:45 PM (GMT -6)   
Hi David,

As always I look forward to your posts. To see the continuing saga you are going through and the dignified, positive attitude you always have is an inspiration.

Thank you so much,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Four PSA tests undetectable, latest Oct 30


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/4/2009 10:03 AM (GMT -6)   
Bob, thanks as usual. Sometimes I think that perhaps I am too stupid and that I should be bothered more by these side effects and set backs, lol. Mostly just a stubborn mindset, and as a good therapist told me once years ago, I am too hard on myself, that I set tougher standards for "me" then I too for anyone else. Determined to make it, and to beat the best if at all possible.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 664
   Posted 11/5/2009 9:28 AM (GMT -6)   
Best to luck to you.
Jack
Age: 51 years,
Overall Health: Excellent

PSA: 08/31/2009 6.8

DRE: 09/10/2009 "nothing really" ????

BXY: Scheduled at 08:30 on 09/24/2009

GLEASON 3+3=6

Cores 10 of 12 positive

SURG: da Vinci November 2 2009 Wash U- Barnes Hospital


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/5/2009 9:32 AM (GMT -6)   
Thanks, Jack, glad you are doing so well Not bad for a guy that had surgery 3 days ago!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 11/5/2009 10:07 AM (GMT -6)   
David my friend, hope that there are better days ahead for you as you deserve it. Get all the rest you need and I know from first hand experience that if we are hard on ourself we tend not to give ourself permission to relax and unwind. Afternoons for me are often spent watching something funny on TV, Everbody Loves Raymond, King Of Queens or the 70's Show. Helps me to laugh out loud. Take care and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/5/2009 10:25 AM (GMT -6)   
MIchael, think we are posting on my older thread. This is 22 of 39, there is the newer 23 of 39. And today will be posted 24 of 39. Guess it doesn't matter.

I dont hardly watch much tv by day. When I have the strength, I am still doing all the housework, laundry, errand running, grocery shopping, etc, so that my poor hard working wife doesnt have to deal with any of that when she is home from work.

Been busy vacuuming, washing floors, waxing floors, dusting antiques, Im a little OCD, so there's always something needing doing. Some days, if really bored, I vacuum twice.

I am use to be very mentally busy, and one of the worse things for me since I have been unemployed so long, and being an ongoing patient for so long with this PC stuff, is all the time I have on my hands. Use to working 50-60 hours week in fast moving financial world.

I do have a job interview in the morning, Friday, would be a state position, which means low pay but great benefits, and its only 15 min drive, could get there with only 3 traffic lights.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 11/5/2009 12:36 PM (GMT -6)   
Hope that goes well for you as that is about the distance I wish I would have to travel. Glad that your staying busy thru all of this.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/5/2009 12:51 PM (GMT -6)   
Yeah, most of my life, I have had long commutes to work, would love to be almost local
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

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