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fraser
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/4/2009 8:02 PM (GMT -6)   
 
Hey guys ...........
 
Legs, my legs are becoming extreamly ITCHY, and then break out into major weeee  pimples......   my lower legs swell some also.
 
History : @ 51 stage 7Gleason, 10.5hours on the table..... two weeks stay. Home for a week, then my bladder comes apart.....so back in for another 10days.....
 
Two years later, Radiation treatments.....
 
4years later, it's back  slow climb they say, but down the road...I'll be in treatment again. NOW ~  my left kidney needs to come out, cancer (different type of course) So I'm just new /now 59 years old.
 
Is anyone having trouble with their legs "?"  "?"
Like my ankles & lower legs are swelling some,  but mercy talk about a poison ivy type itch...... into raw meat.
 
Any thoughts  guys ?
 
fraser

kw
Veteran Member


Date Joined Nov 2006
Total Posts : 883
   Posted 11/4/2009 9:22 PM (GMT -6)   
Sorry....wish I could help. Have not heard of anything like this. Wish you well with all you have going.
KW
    43 at Dx and Surgery (RRP)
    PSA 5.7, Biopsy 3 of 12 positive (up to 75%) all on left side of prostate, Gleason 7
    RRP on Oct. 17, 2006 - Nerves on right side saved. All Lab's clear. 
    Cathiter in for 28 days due to complications in healing. Removed Nov. 9, 2006
     Dec. 2006 – Oct. 2008 Cystoscope, Two Collagen injections,Second Opinion   
    Consultation for Incontinance at OU Medical Center, Bio-Feedback       
    training, Chiropractic, Accupuncture , AdVance Male Sling, Two More Collagen 
    injections, AUS Installed and Activated (Dr. Morey at UT Southwestern Dallas TX)
    All to try to resolve incontinence (using 6-8 Depends Guards a day)

    To Date All PSA's 0.00.

   http://www.healingwell.com/community/default.aspx?f=35&m=721171

    http://www.healingwell.com/community/default.aspx?f=35&m=978691


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/4/2009 9:28 PM (GMT -6)   
Fraser,
This is a long shot but I have Celiac disease (gluten intolerance). about 1 in 250 have this intolerence. Within this small group there is a sub-section (about 2.5%) whose only noticeable symptom is an intensly itching rash called Dermatitis Herpetiformis. When I say rash it is more red pinpoints that become small fluid filled blisters. The itching is absolutely intense.........you will rake at it with whatever is handy and it will wake you from the deepest sleep and is actually worse at night. It usually strikes on one or all of these places: the buttocks, knees, elbows,feet and is strangely symmetrical (same place, same time both sides of the body) For some reason it does not normally crop up in men till after 40. Hits about 10 in 100,000...........aren't I lucky! Took about 8 years to get a correct diagnosis and even then it was me who suggested it to the dermo guy after I spotted something on the internet. It can be a dormant genetic condition that can be triggered by bodily trauma (such as pregnancy in women, an accident or an operation)
Bill


1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01

Post Edited (BillyMac) : 11/4/2009 7:38:24 PM (GMT-7)


fraser
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/4/2009 9:34 PM (GMT -6)   
 
 
BILL :   SWEET..................  I'm going to start doing some home work !! :) 
 
It's become very disturbing at this point for sure.
 
THANK  YOU !!!
Keep in touch please ?
 
fraser

BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/4/2009 9:50 PM (GMT -6)   
Fraser,
I have only just noticed you are a newcomer. Welcome to the forum. There are many great fellas here (some wives as well), a wealth of information and all are keen to help. Many have had the same journey as yourself. Post your signature (your journey so far) by going to control panel (top left of this page) then to "edit profile" and fill out the signature section at the bottom of that page. Again, welcome to this illustrious group.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 11/5/2009 7:18 AM (GMT -6)   
Fraser - I would seek out medical treatment ASAP...You could be

experiencing an allergic reaction to something.


Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 11/5/2009 9:02 AM (GMT -6)   
Fraser,
I have had problems since surgery and along the way I thought I knew the diagnosis, but as I have been to a few Dr.'s the dx. has been anything from herniated disc to neuropathy. My GI Dr. told me it was too much stool in my colon.  Point being that seeing a good specialist is important when the symptoms get to a certain point. I have burning down into my legs plus around the back and tingling, pins and needles. The burning is like you say, tight into the meat and bones. Ouch! Havent got a good answer yet, but my primary Physician wont give up till the cause is found and tx. has begun. Good luck as if it is as painful as my symptoms are, it can keep you down.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael

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