Is this just a "Hick-up in Life ?"

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JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 11/6/2009 3:00 PM (GMT -6)   

Hi all:

 

I’m 71, live in Ontario, Canada and I’m new to this board.

 

My annual check-ups for the past 10 years or so have indicated a consistent PSA reading of between 2.4 and 2.9. A bit high perhaps but it always stayed within this range.

 

That is, until July 16 when the 2009 results indicated a tripling within one year, from 2.7 to 9.3! Assuming the lab might have screwed up,the family doctor ordered another and it came back at 8.7. He also did the usual DRE and concluded the prostate was not enlarged.

 

He then referred me to a local urologist with an appointment date of 6 weeks away. In the meantime he suggested yet another PSA to be done 10 days before the appointment so the urologist would have the most current info available.

 

During the urology appointment I was told the latest PSA was the same at 8.7. Another DRE indicated the prostate was considerably harder on one side than the other. He ordered a biopsy for Sept. 15 and my wife accompanied me for the results meeting, a week later.

 

Previous to this meeting, I had spend some computer time on this board and learned a bit about the GLEASON SCORE, so when the urologist told us mine was 8, with the number T2a, we were like “hit with a ton of bricks” !

 

Debbie cried on the way home and pretty well the rest of that day, and this, after her going for several breast cancer biopsies, plus an operation with 6 month follow-ups of mammograms, MRI’s & ultrasounds during the past three years and I never did see her cry even once throughout all that.

 

While we were in the office, he ordered a bone scan and 10 days later the results came back as: “No problems there”. At this time the urologist sug-gested open surgery as soon as possible since his diagnoses was:

 “Aggressive Cancer to the Prostate” !  Now I have to tell you that I did some research on this doctor and locally, he has a stellar reputation and the one to have as your urologist should you be in need of one. Many successful open surgeries and well liked by his patients but I wanted a second opinion

and I was almost afraid to ask for one,

BUT I DID !                   I asked for Dr. Joseph Chin.

 

Dr. J Chen is in London, Ontario, about 60 miles away. His London Health Science Centre business card reads:

Joseph Chin, MD, FRCS (C)  Chair/Chief of Surgical Oncology, Professor of Urology & Oncology, The University of Western Ontario.

He also spearheads the LONDON PROSTATE CENTRE.

 

Back in 2004 he was amongst the first in S.W Ontario to perform the DaVince Robotic procedures and since then has done hundreds of these and that iswhat I wanted. Much to our surprise, an appointment was scheduled for late December, but even better, a phone call from London two days later had

Dr. Chin move that date up to October 27th. So on that day, we’re of to London for a 3.30 appointment. This would be his last of the day and after all, we were probably an add-on, since they made the date change. We got to see him at 6.00 and on our way home by 7.00 for a drive during not very much was said.

 

Dr. Chin did yet another DRE (will I have get to like those?) and seemed quite concerned and with the GLEASON Score of 8 suggested the best course of action might be: 30 days of one 50mg. per day of Casodex followed up within the first 14 days with a 90 day Lupron injection (Combined Androgen Blockade)

followed by open surgery around Mid-February. He would do the surgery himself.

 

I asked about the DaVince procedure and his answer was, 

 “ I can see better with DaVinci but I can FEEL better with open surgery and in your case, that will be better on the long run”.

 

It’s hard to argue with that.

 

Today I took the first step to get rid of this hick-up: 

I took the first Casodex pill.

 

Jerry.

p.s. I blame my situation on my life style and I'll comment more on this, plus a few questions and my concerns in a few days 

.


Age, only 71.
 
July 2009, PSA 8.7
September GLEASON 8, T2A
 
Started Casodex 50mg. on November 6, first pill of 30. Start Lupron on about November 20.
 
Open surgery expected before end of February.
 
Need to get this over with so next year I can 
continue with motorcycling and sailing !

Post Edited (JB71) : 11/6/2009 3:59:01 PM (GMT-7)


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 11/6/2009 3:12 PM (GMT -6)   
Good luck Jerry. You have done your homework and you have a plan of action... Best of luck keep us informed.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/6/2009 3:22 PM (GMT -6)   
Jerry,

Thank you for sharing a very detailed account of your search for the right answers. Many who follow you in coming to HW will find your post extremely helpful.

In times of shock and dismay it is difficult to keep a cool head and have a logical and systematic approach. You have certainly shown the ability to do that.

Good luck with your surgery and we hope you keep us updated as things move along.

Bless you and your family,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 11/6/2009 3:43 PM (GMT -6)   
There seems to be a growing number of doctors that believe Divinci is not always the answer. It sounds like your doctor is considering the long run so like you said it is hard to argue with that.

I had the open surgery and the difference between the two after a couple of days is pretty much the same as my doctor put it. No real big deal on the open surgery as compared to the robotic in terms of recovery so don't sweat that.

Your doing your homework. Before you know it you will be back here sharing your experience for others who come here for the first time.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/6/2009 4:06 PM (GMT -6)   
Jerry, welcome, and you do sound pretty well prepared for what lies ahead. The other drugs you are taking will keep things in check until you have your surgery. Not suggesting you change your mind, its your decision, but the extra time would allow you to think through all your options one more time while waiting.

I am an open surgery guy. My surgeon was one that liked the tactile feel of having his real, as opposed to virtual hands, inside me. As it were, complications in my surgery would have forced and abort of the robotic surgery had I underwent one.

You sound like you got a good attitude about your situation, that is part of the battle each of us faces too.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4186
   Posted 11/6/2009 4:40 PM (GMT -6)   
Jerry,
I've read a couple of Dr Chin's published papers on Active Survelence and he seems to know what he is doing. He's not quick to pull out the scapel. I think that putting you on HT before surgery was an excellent recommendation on his part. Good luck in your treatments and keep us posted.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5632
   Posted 11/6/2009 5:55 PM (GMT -6)   
Not having the davinci,couldn't compare it to open as far as recovery. Having said that I can tell you the recovery hasn't been that bad. Had the surgery on a monday morning, was out of hospital noon wednesday. Catheter was out in 11 days, this seems to be surgeons preference. Catheter was not as bad as you think it will be ,trust me on that one, all things being equal, which I know they are not always. You have time to get yourself in good physical shaoe, if you are not allready. Specifically cardio and core work, join a gym. It will help recovery tremendously. Stay positive and you will push right thru this. Go easy on the pain meds. I had a real downer my last nite in Hospital, but it did pass. Keep the Faith!!!, Jack
First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of W Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
11% of prostate affected. gleason 3+4, I suppose thats a negative


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 11/6/2009 6:17 PM (GMT -6)   
Hi Jerry and welcome to the best site on the net that no one wants to belong to.
I'm from the Vancouver, BC region and my circumstances were not un similar to your situation. Had the open RP about 3years ago and then salvage RT late last year. I came through both procedures in good shape with no major lingering side effect. It does seam that you have things well in hand and that you did all the right moves to fight this beast. 
Just wanted to wish you all the best in your journey. Stay in touch.
 
Magaboo
  

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09, = 0.05; July 09, <0.04


Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/6/2009 6:19 PM (GMT -6)   
Hi Jerry,

I had my Da Vinci surgery performed by Dr. Chin's associate Dr. Pautler on 9/20/09 in London and can attest to the excellent care I received at this facility. You are in good hands and I look forward to the posts on your upcoming procedure. Good luck.

Keep well,
Regards,
Bill
Pre-Op: Age 64. Diagnosed with Pca January 2009.
PSA 5.6, Gleason 3+3=6, T1c
Biopsy: TRUS biopsies of prostate left adenocarcinoma of prostate involving part of 1/4 biopsy fragments, less than 10% of the surface area involved, CT scan clear.
Treatment choice: Robotic Assisted Laparoscopic Prostatectomy - September 29/09.  Pre-op PSA down to 5.28 which I attribute to visualization techniques and a new vegetarian diet.
Post-Op: Robotic Prostatectomy - 09/29/09, back home 10/02/09.
Pathology - 10/14/09  Gleason Score remained at 3+3 = 6 as it was when originally diagnosed. There were no positive margins. Tumors were found in both lobes and involved 3-5% of the prostate. There was no Seminal Vesicle, Perineural, Lymphovascular or Lymph node involvement, and the bladder neck was also cancer free. 
Continence 10/16/09 - 3-4 pads a day and working on pelvic floor exercises as prescribed.
Potency: 10/16/09 - Zip, nada
State of mind: Excellent - always positive.
 
 


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 11/6/2009 7:41 PM (GMT -6)   
Hi Jerry.  My doc also said he preferred the "feel" he got with the open surgery.  I went with his recommendation and am glad I did.  The skill of your surgeon is the most important factor in your surgery and it sounds like you have a good one.  Keep us posted. David
Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 11/6/2009 8:39 PM (GMT -6)   
Welcome to our site Jerry and good luck! A guy at the local prostate cancer support group I attend had his Davinci Surgery in July 2009 at age 72 So you will do fine with traditional or robotic. Sounds like your Doctor is thinking of your long term care.

Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted 11/7/2009 6:58 PM (GMT -6)   
Jerry,
I was also diagnosed at age 71 with stats very similar to yours.  My personal experience with surgery and recovery was good.  When my wife Ana and I compared this to other events in our lives, it was truly nothing more than a "hic-up".  Looking ahead, there simply is no way of predicting if I will have a recurrence.  However, I know I can deal with it if I have to.  I have finally been able to put this behind me and get on with my life.
Carlos

Diagnosed 2/2008 at age 71, PSA 9.1, Gleason 8 (5+3)and stage T1c.  CT and bone scan neg.  Robotic surgery performed 5/2008.  Staged pT2c. Intra op. path margins were neg.  Left lobe 20% tumor, predominately grade 3.  Rt. lobe 40%, pred. grade 5 with perineural invasion and penetration into but not through capsule.  All surfaces of resection, SV and lymph nodes were neg.  Gleason sum 8 (5+3).  PSA <0.1 at 14 months.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/7/2009 7:31 PM (GMT -6)   
Carlos,

Welcome to HW. You have done excellent with your surgery and recovery, and still pulling a nice zero on your PSA tests, and here you are young guy at 71, lol. Congrats, and keep us posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/7/2009 8:38 PM (GMT -6)   
Jerry,

As you know a Gleason 8 is a bit worrisome.

I had a Gleason 9, both biopsy and post surgical pathology. I had a doctor at Cleveland Clinic who was more comfortable with Davinci. He felt he could see the affected tissue, and make sure he got all the bad stuff. In my case, with an EPE as well, he got clean margins, so I guess he did what he had to do.

I think comfor levels are the important things. If Dr. Chin is more comfortable with open, then you will hardly know the differnce. Your recovery may take a little longer fron the incision, but it won't be significant.

This PC is a little more than a hiccup, but there are worse diagnosis that we could have. You are doing all the right things, and have a good doctor in place, with a good plan.

Best of luck, and keep us in the loop.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 11/9/2009 10:41 AM (GMT -6)   
Thank you all for the warm welcomes I have received
from this board.
 
For all of us still going through this and all who have been through this, a board such as this one is the best support I could possibly ask for.
 
Your comments are most appreciated and although Debbie thought I was going a bit to far by posting so much info, she now agrees that the response has been uplifting.
 
I'll keep you posted as we journey on, one
small hick-up at a time.
 
Jerry.
.
Age, only 71.
 
July 2009, PSA 8.7
September GLEASON 8, T2A
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. (not ordered
by first urologist)
 
Started Casodex 50mg. on November 6, first pill of 30. Start Lupron on about November 20.
 
Open surgery expected before end of February.
 
Need to get this over with so next year I can 
continue with motorcycling and sailing TOGETHER
with my wife, Debbie.


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 11/9/2009 1:21 PM (GMT -6)   
You have gotten good advice here but I wanted to add a word to Debbie.

There are some wonderful women on this board who are knowledgeable and perceptive. If you have issues in dealing with Jerry's cancer (along with your own) give making your own posts a try. All of us know how much stronger two can be in facing this and confronting the future.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 1/29/2010 4:17 PM (GMT -6)   
.
Thought I recover my topic (37 pages back) and must admid that no matter how much I studied or read about this problem, I thought I was prepaired for the surgery.

WRONG!

Now nine days since surgery I'm hurting, peeing blood
and most certainly dont feel (yet) on the ZERO side.

Although I do expect to be around this board for some time, I want to take this opportunity to THANK all of you
for making me feel positive with promises of good things to come and I wanted to do it with my own reply to my very first post on Healingwell.
Age, only 71.
 
July 2009, PSA 9.1, free ratio 0.16
September GLEASON 4+4=8, T2A
Prostate 44cc.
 
Calcium: 2.46  (range: 2.20 - 2.65 mmol/L)
25 Hydroxy Vitamin D: 102 (range: sufficiency:
76 - 250 nmol/L)
 
Bone Scan: Negative
CT Scan scheduled for Dec. 1st. Negative.
 
Started Casodex 50mg. on Nov. 6, first pill of 30.
 
Got Lupron 22.5mg ( 90 day ) on  November 19.
 
No real side effects as of Dec. 15 except dry skin and hair but getting quite 'porky' in the belt area even though now I go to the gym, three times a week. Also I dont have a need to shave anymore so now I can save my 'shaving' allowance and direct it to my stash of Depends !
 
Christmas Day got my first hot flashes. Thanks Santa!
 
Open surgery scheduled for Jan. 22 by Dr. J. Chen
at London (Ontario) Health Sciences Centre.
 
NOPE, that just changed to January 20th. (2 days earlier) and the venue for entertainment gets moved to the University Hospital.
 
Open surgery done on Jan. 20th.
 
Cath removel scheduled for Feb. 8th. Yes, I know,
that will be 19 days. Dr. is out of country until then.
 
Need to get this over with ASAP so next season
I can continue with motorcycling, sailing  and enjoying life, TOGETHER with my wife, Debbie
who has been the most supportive wife possible.
.


hopenchange
New Member


Date Joined Dec 2009
Total Posts : 19
   Posted 1/29/2010 4:51 PM (GMT -6)   
Jerry,
 
Did the doctor prescribe pain pills for you?  If not, call his office and ask for some.  Don't hesitate to take them.  There is no reason to suffer unnecessarily.  They will help you get through these difficult times.  Take a stool softener(mineral oil or milk of magnesia) with them as they may cause constipation.  Peeing blood at this stage is to be expected.  Hang on, things will get better.
 
Best Wishes,
Scotty
  

Age 66

Routine physical at PCP office, with DRE and PSA Test. PSA 2.5, small growth felt on right side 

Urologist performed TRUS biopsy 9/17/09,samples sent to Bostwick Labs

Results received from lab indicated PCa 9/24/09

8 of 12 samples 80% Gleason 3+3+6, 6 of these on the right side

1 of 12 samples 70% Gleason 3+3=6

1 of 12 samples 60% Gleason 3+3=6

2 of 12 samples benign

CT scan and bone scan negative

Consultation at Johns Hopkins with Dr. Alan Partin 10/20/09

Open RRP at Johns Hopkins by Dr. Partin 11/06/09, right nerve bundle removed, left spared

One night in hospital, back to hotel room for three days before flying home

Foley catheter removed 11/16/09

Post-surgery pathology shows PCa was organ-contained, lymph nodes negative, seminal vesicles negative, Gleason score 3+3=6, stage T1b

First post-surgery PSA first week of February 2010. Using one pad during day and one at night as of 1/28/10

No luck with the erectile dysfunction.  Taking 50mg Viagara 3 times a week.  Doctor prescribed 100mg daily beginning 6 weeks after catheter removal, but I can't put up with the headaches and congestion. 

 

 

 

           


Englishteacher
Regular Member


Date Joined Jan 2010
Total Posts : 28
   Posted 1/29/2010 4:58 PM (GMT -6)   
With response to your wife's reaction: Someone once told me that the definition of a successful marriage is when only one person is crazy at a time. Debbie's strength through her own trials helped you both endure, and your response here will do the same as she reacts in a most human way. What will be will be, but appreciate the strength of that relationship as one of your blessings along the way.
60 year old, sometimes happy, sometimes grumpy guy
Robotic RP 11/09
Otherwise good health
Gleason 8, T3a
Margins uninvolved
extraprostatic extension present,
Seminal vesticle invasion: absent
PSA 1/25/10 undetectable
Great support, wife, family, employer


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 1/29/2010 6:10 PM (GMT -6)   
It's always worth mentioning the good women that we are blessed to have at HW Prostate Cancer. The wives and daughters of our brother's here that post are an important part of the healing potion to each of here. Some wives do all their husband's computer responses, and we are thankful for that. And nothing touches a father's heart to see some loving, caring daughter acting on behalf of their dad. Brings it home for me.

From my times here, there's a lot of us men that are so fortunate to have the women and/or domestic partners in our lives. I am thankful for each and every one of them.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/10 - Corrective Surgery #4, and Caths #11 and #12 in at the same time


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2215
   Posted 1/29/2010 7:01 PM (GMT -6)   
Thanks so much for the reposting Jerry and for the update. For some of us our surgery did not go as we had planned, and we were thrown a curveball. And I fall into that category. Hope you see improvement soon, and yes back to the good life with your motorcycle, sailing and most of all a loving relationship. Take care, stay warm up there and keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margin slightly involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only, now none
 started ED tx 7/17, slow go
Post op dx of neuropathy
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5
Starting IMRT on 1/18/10
Great family and friends
Michael


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 1/29/2010 7:36 PM (GMT -6)   
Hi Jerry,
 
I live on the other end of Canada (B.C.) and was about your age when I went under the knife (open RRP). I just wanted to wish you a quick and complete recovery. We all seam to heal at somewhat different time scales, but I hope that you'll feel much better soon. Please stay in touch and let us know about your journey.
All the best to you.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2457
   Posted 1/30/2010 9:44 AM (GMT -6)   
Jerry,
Pain after surgery is always a given. Make sure that you have medication for bladder spasm and bloating if needed. Hopefuly the pain will subside in few days and you will be on your way to full recovery. Please keep us posted on your pathology report. Best of luck brother.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11.5 months test 1/21/10 result 0.004

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