New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 11/7/2009 10:02 PM (GMT -6)   
shocked  I apologize for all the trouble my post had created.It was not my intention to push my believe to anyone.
I believe that we live in a free country,and if some individuals because their bitterness thinks otherwise,so let it be.
I can not and will not compromise my conviction;and if it is what it take to be part of the group no thanks.
thanks for all your replys and good luck.

Post Edited (gold horse) : 11/7/2009 9:14:41 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/7/2009 10:24 PM (GMT -6)   
Goldhorse, you did nothing wrong by posting here. We always welcome our new friends to HW, and I personally extend a hand of friendship towards you. The rest of it was secondary to you coming here and posting. I wish you all the best, and as far as I am concerned, you are welcome to stay and continue to post.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/8/2009 12:04 AM (GMT -6)   
My very best to you, gold horse.
And I apologize for having the thread locked. This subject, and the retribution it drew, has also left me with deep wounds on what support I can expect to receive in my journey here, and my ability to express my very sincere feelings in regards to my own journey with advanced prostate cancer. I will only post updates about my illness on my personal blog moving forward. I can do so there without offending anyone. I will do my very best to continue being a moderator, as I feel that is the better good for the community here. Your post did not warrant a debate that ultimately hijacked your post.

May peace be with you, and if you need anything that I may be able to help you with, just say the word.

Tony
Prostate Cancer Forum Co-Moderator


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 11/8/2009 3:37 AM (GMT -6)   
Tony that is most unfair. You know the level of support you can expect on this forum.....it is boundless. The purpose of this forum is firstly to offer mutual support and secondly to share information and advice. I know and understand the depth of your convictions and its importance to you as a person but you know where to draw the line on this forum..........it's a pity that others do not follow your example. I for one will be interested on what Goldhorse has to offer on the PCa front and particularly the type of untruths he encountered on his earlier forum. I hope he expands on that. On the "bitterness" front, I have yet to come across any member of this great forum whom I would describe as "bitter". Rather the opposite actually. Grumpy, yes, but that is an entitlement of those who are over sixty.
Bill
1/05 PSA----2.9 3/06-----3.2 3/07-------4.1 5/07------3.9 All negative DREs
Aged 59 when diagnosed
Biopsy 6/07
4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007
Post-op pathology:
Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct 07 <0.1 undetectable
PSA Jan 08 <0.1 undetectable
PSA April 08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August 08 <0.001 undetectable (disregarded due to lab "misreporting")
Post-op pathology rechecked by new lab:
Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September 08 <0.01 (new lab)
PSA February 09 <0.01
PSA August 09 (2 year mark), <0.01

My Journey: www.yananow.net/Mentors/BillM2.htm

Post Edited (BillyMac) : 11/8/2009 6:33:01 AM (GMT-7)


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 11/8/2009 6:35 AM (GMT -6)   
Hello Goldhorse Dave Tony Bill and others

Sorry from me too if I offended anyone.
I was trying to be supportive. I only conttribute to this forum to try and be helpful after all.

It wasn't the forum's fault, so nobody should abandon the Forum over this.

I think this "incident" should perhaps serve as a reminder or warning to all of us that as well as messing with our bodies PCa can mess with our emotions and how we react to things.

Let's learn from this.

We all need support. And friends, forums, family faith etc are just some of the ways we get it.

(And Dave I hope you're having a better day)

Alfred

Age at Dx 48         No Family history  of Prostate Cancer

Married 25 years, and I cannot thank my wife enough for her support.

April 2009: PSA 8.6  DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.

RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.

Partial erections on 1st and 2nd Aug 2009, Catheter out on 6th Aug 2009. 

Dry at night, but wearing pads 24/7

Post-op Gleason 3+4. Seminal Vesicles invaded, but otherwise negative margins,

Erection 100% on 15th Aug 2009   Stopped wearing pads on 21st Sept 2009

Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.

 


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 11/8/2009 7:10 AM (GMT -6)   
Goldhorse,
The responses to your post were inappropriate and instead of supporting you directly merely commented on what you said. This place is not normally like this. I'm sorry this happened to you.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 11/8/2009 7:12 AM (GMT -6)   
Goldhorse, you did nothing wrong ... your apology, while greatly appreciated, is not necessary.

I read your original post and all those that followed. I too was greatly disappointed by the turn of events. It seems to be the state of things lately that any personal convictions - regardless of "what side of the fence you are on" leads to heated debate. Some of the comments posted were most unnecessary and borderline rude. I am so sorry that your post - which was done out of kindness to others - became so twisted.

This forum has many, many outstanding and knowledgeable people - and you are a part of that. Your experiences and, more importantly, your desire to reach out and help others in their journey is crucial to this forum. Please do not let what happened cause you to turn your back on those who need our help.

While I agree that this forum is not a place for preaching, it certainly is a place for all of us to share our personal experiences. I beg you to consider staying with us as an active and valued member.

Tony, I have the utmost respect for you not just as a moderator of this wonderful forum but as a human being. I was deeply saddened to read your response to Goldhorse, and I truly hope that you will not let this most unfortunate turn of events keep you away from posting. Your honesty and knowledge, and willingness to share your journey with the rest of us, is what makes this particular forum so very special. We do not have control over what others feel but we do have control over how they affect us. I hope that you can shrug this off and continue to be an active participant here.

Sephie and John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (extraprostectic extension in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Gleason 3+4 (no change from biopsy). PSA results: April 2008 0.1; May 2008 0.0; August 2008 0.0; November 0.0; February 2009 0.0; May 2009 0.0; August 2009 0.1; September 2009 0.3. Met with radiation oncologist and began process for salvage radiation. CT scan and bone scan done on October 8. One spot on bone scan (clavicle) being investigated. Third PSA taken on October 16 - PSA IS UNDETECTABLE! Next PSA scheduled for early December. Urged not to begin radiation treatment until it's needed (no problem there!).


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4089
   Posted 11/8/2009 8:07 AM (GMT -6)   
Gold Horse: No apology is necessary. We are all here for one reason, support with the PC thing. I do hope that the unfortunate events that you were involved with do not keep you away from us. We each share a valued point on dealing with this cancer.... The PC works different on each of us and we deal with in our own way. If someone finds a way that help and shares it with others we make a decision as to wheather we want to try this or that.

Thanks for posting and do stay around... we are all friends here even when it does not look like it. Please accept our friendship.


Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4827
   Posted 11/8/2009 8:16 AM (GMT -6)   
Hey Gold Horse - having just finished reading the other thread - I might just leave with you.
 
That or start a poll/movement to get a couple members here banned. They don't know when to STFU.....
 
Here's a old saying from MOM: "If you can't say something nice - dont say it at all."

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2216
   Posted 11/8/2009 8:19 AM (GMT -6)   
I didnt have a dog in that fight, but it did amaze me how it got out of hand. I do marriage counseling and sometimes a couple will come in for therapy and start arguing and it just kind of goes around in a circle and becomes more about "who is right." There are times I just ignore what my wife has said rather than let it escalate into a full blown argument, and my best guess is that she does that with me. Sometimes we have to step back and look at why react so strongly to something. That is about us and not about the other person.
 
Now having said all of that, this is still the best forum for those of us with PCa so I am still on board as I have made friends here and also the support and info provided by others is great. So here is to better threads and continued success to each of us.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 11/8/2009 8:35 AM (GMT -6)   
gold horse, please accept my apology for how you were treated with the hijacking of your thread and such a impolite introduction to us all on your first post. In an effort to try to allow the widest interpretation of the rules, I personally let this thread go out of control, instead of doing my duties as a moderator and stopping it from ever reaching this point. I suppose I have this pollyanna-ish idea that adult men and women can carry on a conversation without having to edited, deleted or censored to keep the thread civil and supportive of the members, rather than to have it hijacked to serve a person's particular viewpoint.

I'm not pointing fingers, there's enough blame to be spread for all of us involved, but I can assure you and the rest of the membership that I won't allow this to happen again while I am moderator. I won't take sides, but I will strictly enforce the rules and I will stop this from happening again, no matter who or under what circumstances it occurs. I am ashamed that this Forum ended up in this state and that I had a role to play in it. Fair Warning to all..................

gold horse, please continue to come here and share, we enjoy hearing of others journey and am more than willing to share and enjoy your company here.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN


GarthK
Regular Member


Date Joined Feb 2009
Total Posts : 74
   Posted 11/8/2009 10:59 AM (GMT -6)   
Gold Horse, what happened to you has happened quite a bit lately. Not sure why but it has. When I joined about a year ago, the kind of debate(used loosely) that your original post started was rarely ever seen. But lately it has unfortunately become fairly common. Maybe it's the time of year. Maybe it's the fact that there is a group here that is staying longer than most and they are beginning to get on each others' nerves. Not sure why. What I am sure of is that you are NOT to blame so stick around, if for no other reason than to watch the goings-on. My Daddy was a Baptist preacher and he and I NEVER agreed on ANYTHING. Get my drift? :-) But I respect all beliefs that don't require my active participation. If a religious observance helps, have at it. Maybe better not to go into too much detail on this forum, however.

James, you are unfortunately expecting too much from us "adults"! It's the kids that get along. We adults seem to have lost that ability. Just watch the news.

Oh well... I hope I didn't just start another flame war.

See ya,
Garth
Vitae:
DOB: Q4'46, HT: 5'9", WT: 180
PCa:
PSA: <2.5, DRE: Slight enlargement, one node
Biopsy: 12/08
Cores: 4 of 12+ positive, Gleason: 3+3
Surgery: RRP on 1/21/09
Catheter: 15 days
Pathology:
Adenocarcinoma occupying 5% of prostatic volume (right posterior aspect)
Gleason: 3+2, No extraprostatic extensions, Perineural invasion within prostate only
No angiolymphatic invasion, No seminal vesicle invasion, Clear margins
AJCC: pT2a
Post-op PSA's
3/10/09 < 0.014 (undetectable by machine)
6/10/09 < 0.014 (undetectable by machine)
9/8/09 < 0.014 (undetectable by machine)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/8/2009 1:10 PM (GMT -6)   
Goldhorse,

No one is asking you to compromise your beliefs or standards. Many men on this forum would agree with your position.

There are those who may not agree with you, but this a free land, and you are allowed to say and believe whatever you want to.

In order to keep this forum from erupting into not so nice exchanges, the owner has set up some rules that discourage us from spending large amounts of time talking about religion and not the stated purpose of talking about Prosate Cancer and its issues.

Please consider staying with us. We welcome your knowledge and experiences with PC.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


RacingOyster
Regular Member


Date Joined Aug 2009
Total Posts : 31
   Posted 11/8/2009 3:58 PM (GMT -6)   
I still think golf is a big waste of time and not really a sport.

Oh, wait a minute, weren't you all talking about golfing?
Living in the northern Atlanta suburbs.
Good health and no symptoms when my annual physical uncovered an elevated PSA.
Diagnosis at age 55: PSA 4.6 - positive biopsy 3 of 12 cores - Gleason 3+3=6.
open Radical Retropubic Prostatectomy with bilateral lymphadenectomy on 6/18/2009.
Pathology report after surgery showed negative margins, cancer contained in capsule
(60 gram sample, Gleason 3+3=6, T2c N0 MX).
PSA at 4 months after surgery <0.1 (all other problems are minor considering being cancer-free).
Catheters required on-and-off for 34 days after surgery due to recurring urinary retention.
Anal fissure due to trauma to rectum from biopsy, surgery, and antibiotic-induced diarrhea.
Scheduled for repair of Spigelian Hernia due to tearing of abdominal muscles during RRP.
Using 1 pad during the day for occasional stress incontinence, dry at night (18 weeks after surgery).
Taking Cialis for ED with no joy so far.


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/8/2009 4:23 PM (GMT -6)   
First, I am very happy to see gold horse posting here again. To me that is more important than my own issues with my dismay. And I really appreciate the very kind comments folks have made. I have no plans to leave HealingWell, but rather stick to just the moderating, and less about my plight and how I cope with it. There will be times when the moderators here will have to make decisions that while they may be fair to one, they would be unfair to another. It just goes with the role of moderating. It may happen at times that we will have to decide who will get the short end of the deal by determining the best way to keep peace a priority. Unfortunately, that means we have to make a judgement call, and we are only humans. we can only do our best, and say sorry when it doesn't work out well.

Depression is a dangerous enemy in cancer, and sometimes I have to detach from things that can be let downs. That is why I will speak freely about my cancer at my website and just reference here when I have updates on it.

I have received some wonderful Emails today, and they brought a tear to my eyes. My response is ~ of course I will use my experience and education in prostate cancer to help as many as I can here at this wonderful group website.

Peace and Love to you all.

Tony
Prostate Cancer Forum Co-Moderator

Post Edited (TC-LasVegas) : 11/8/2009 3:26:05 PM (GMT-7)


stxdave
Regular Member


Date Joined Nov 2008
Total Posts : 65
   Posted 11/8/2009 5:29 PM (GMT -6)   
Hi gold horse,

You owe no one an apology. We should apologize to you. Forgive us for seeming so unwelcome of your experience. We need to give newcomers (and others) more time to read the fine print. The rules are not without merit.

That said, you can learn a lot by reading and asking questions here. Like most sites of this type you must also verify and regard the sources of the information. Prostate cancer demands a learning process and there is a lot to digest. Like the digestion process, a lot comes out in the end as excrement. You must learn to separate the opinion from the facts. It's a long process.

Please forgive us of your first impression and help us, and let us help you, on a journey we all detest.

Best wishes

Dave
Dx'd 1999, Age 60, PSA 43, Gleason (3+4=7), T3c
42-3d EBRT w/Lupron/Casodex for 24 months.
July 2001 - Intermittent ADT. Lupron only, MDAnderson biopsy revised Gleason (4+5=9).
March 2007 - Diminishing returns with Lupron, Prostate biopsy (5+4=9) in unradiated lobe.
August 2007 - RRP and bilateral orchiectomy. PSA <0.1
99% continent immediately
Sept 2008 - PSA 0.45, Nov 2008 - PSA 0.67,
Dec 2008 - Resume Casodex, Stricture in bladder neck requiring surgical removal. 99% incontinent immediately.


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4089
   Posted 11/9/2009 10:50 AM (GMT -6)   

Goldhorse, I also don't think any apology from you is necessary at all...it certainly was not your fault that the thread go hijacked into a non-PCa discussion.

And, James, I think you are right on.  Unfortunately, we don't seem to be able to regulate ourselves on the topic of religion and the discussions get divisive and hurtful.  You and the other mods do a great job and I think zapping offending posts ASAP is a good solution to nipping this thing.

Tudpock


Age 62, Gleason 4 +3 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 9/1/09.  6 month PSA  1.4 and my docs are "delighted"!

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/9/2009 11:18 AM (GMT -6)   
Hey Guys, Guys,

We're all here because we had our rotten walnuts disabled one way or another.
Let's just blame it on too much estrogen and agree to not discuss it again. It's giving me a pain in my stomach.
Wait... I forgot to drain my incontinence clamp.... There! Much better! (Never mind about the pain in my stomach. It's all better now. )

Some subjects are just not meant to be discussed. For example: S*x with our wives, how much money we earn, which stocks we own, politics, our 401k performance, the shape of our disabled naughty bits. Oh wait... I guess we have discussed all those.

Like Rodney King said, (when he was sober): "Can we all get along?"

Thanks, "And that's all I'm going to say about that."
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/31 14 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


STW
Regular Member


Date Joined Jun 2009
Total Posts : 292
   Posted 11/9/2009 1:09 PM (GMT -6)   
Rats! You take a weekend off and miss some controversy.
I'm guessing it is not worth looking up.
That means it probably is not worth remembering.
Which means that it is probably not worth getting hot and bothered about in the first place.
Diagnosed at 54
PSA 8.7 Biopsy 1/7/09
4 of 6 cores positive, one at 90%
Gleason 3+4=7 Neg bone scan 1/15/09
One shot Lupron Depot 1/27/09 Tax Season
RP 4/29/09
Neg lymph nodes, postive seminal vesicle, 1 positive margin
Gleason 3+4=7 with tertiary 5
Catheter out at 2 weeks no nighttime incontinence Pad free week 5
PSA 6/6/09 <0.1 PSA 9/10/09 <0.1

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, April 27, 2018 2:24 AM (GMT -6)
There are a total of 2,956,150 posts in 324,295 threads.
View Active Threads


Who's Online
This forum has 162269 registered members. Please welcome our newest member, Drobinson.
197 Guest(s), 2 Registered Member(s) are currently online.  Details
Gemlin, cilly