Valentines 2010 Weekend Update

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/8/2009 8:50 AM (GMT -6)   
Well here it is November 8th and Valentines 2010 is just a short 3 months away. I thought maybe we should have a little chat about the proposed gathering in Orlando over the Valentines Day Weekend.

I have been talking to various folks here about the weekend and trying to gather some financially saving ways to do things. You know like reduced lodging, dedicated bus to the coast for a day cruise aboard the gambling ship, meeting room space, discount or FREE theme park passes, etc.

What I am running into is their reluctance to give me some specifics unless I can tell them how many folks we expect.

I realize that planning is difficult for many of us, but unless we can nail it down a little, I don't know how we can pull it off.

Personally, I would not want to go somewhere for a 4-5 day weekend gathering, if I had no idea where I was going to stay (and the cost) what I was going to do, or who I was going to do it with.

Maybe I am trying to organize too much, if so let me know and we'll just leave it open and figure it out when whoever shows up gets here.

For those that have joined the HW forum since the original conversation, I am posting this link to the original thread; http://www.healingwell.com/community/default.aspx?f=35&m=1621153

So let's talk about it and see if it is still a viable plan or not.

As you have seen from my own recent posts, I may have to make a decision whether or not to start radiation treatment and how soon. If so, I would like to do as much as I can before I may enter into a time of reduced energy and drive.

All of that being said; If this year, or this soon in the year, is just not going to work, let's look for a time and place for gathering just because I think many of us would like to meet face to face.

Tell me what you think, the clock is ticking and this kind of thing can't happen over night.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 11/8/2009 9:25 AM (GMT -6)   
Sonny, I was going to shoot you an e-mail to see if you were still planning on the event, with you current situation. I will be at the gathereing if it is a so. Let me know what I can do to help form this end.

Count me in with wife.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/8/2009 9:30 AM (GMT -6)   
Thanks Jeff. I think we'll probably know by the end of this thread whether it is a go or not.

I don't think we can go into December not knowing and still have time to make arrangements here and for those coming to make their arrangements.

Some of the lucky stiffs (no ED pun intended) like me (don't work) can go at the drop of the hat. I would guess that many more work and have families at home and would have to schedule around those things. Planning for them requires a lot more time.

We'll see,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 11/8/2009 9:46 AM (GMT -6)   
Sonny, That correct I am also on of the lucky stiffs as well, (retired that is). What ever works best for you is fine with me.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/8/2009 10:44 AM (GMT -6)   
Sonny, you can count on two from the Palmetto State of South Carolina. And my stiffy works fine.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/8/2009 11:21 AM (GMT -6)   
David,

Thanks for committing. But, we of the "not there state", don't want you showing off your stiffy when you get here, okay. LOL

I hope that from reading your post that you are feeling a little better today.

As of your post we are 3 plus spouses and hopefully counting.

Sonny

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 11/8/2009 11:40 AM (GMT -6)   
Sonny,
I wont make it this year as any travel of over 1 hour is still too much. Take some pictures if you can and send them into snpafish or someplace else. It would be nice to put a face with a signature.
Michael
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/8/2009 11:43 AM (GMT -6)   
Sonny, sorry, misunderstood, thought you were taking a stiffy count too. I am too tired, nauseated, and ill feeling to even thinking about enjoy my pocket mate at this time. Kind of a catch 22, it works - yes, but feel too lousy to care, lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 11/8/2009 3:28 PM (GMT -6)   
Sonny,
 
Previously I told you the wife and I would be there. However, now I'm scheduled for RT ending around Feb 20, so it will be impossible. Sorry.
 
Roger
 

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/8/2009 4:02 PM (GMT -6)   
Roger,

I am sorry that you won't be able to make it. However, I am more sorry that you have to go through RT. Good luck to you brother. I hope that the RT is a non-event for you.

You may not be missing out on the gathering though. At this time there does not appear to be enough for us able to make it a truly worth while event. We may have to postpone it. If that is the case, we will be glad to see you in great shape at the re-scheduled event.

Bless you and your family. Keep us posted,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 11/8/2009 5:23 PM (GMT -6)   
Roger and Michael...I am trueloy sorry that you guys will not be able to make the gathering....I plan to take some pics. Will find a way to post for you guys to match up faces with names.

Jeff T
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 11/8/2009 7:21 PM (GMT -6)   

Sonny,

I know you are trying to get a commitment but I still can not commit. The two big issues are not knowing my wife's work schedule that far out. She works 12 hour shifts at the hospital. The other big issue is I do not have any vacation time left. I had to use it for my surgery before the FMLA would kick in.

So you had better count us out. Would have loved to put some faces with names but such is how it is.

Larry In Tennessee


Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Invovled
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0


CPA
Veteran Member


Date Joined Feb 2008
Total Posts : 655
   Posted 11/8/2009 8:37 PM (GMT -6)   
Greetings, Sonny.  My wife and I still plan to attend.  Even if you decide to postpone until a later date, we will be there for another event the Thursday through Saturday prior to Valentines day so even if we don't have a big group we'd love to get together for a meal somewhere and get to know you in person.  David

Diagnosed Dec 2007 during annual routine physical at age 55
PSA doubled from previous year from 1.5 to 3.2
12 biopsies - 2 pos; 2 marginal
Gleason 3+3; upgraded to 4+3 post surgery
RRP 4 Feb 08; both nerves spared
Good pathology - no margins - all encapsulated
Catheter out Feb 13 - pad free Feb 16
PSA every 90 days - ZERO's everytime!
Great wife and family who take very good care of me


clearwatercowboy
Regular Member


Date Joined Oct 2009
Total Posts : 135
   Posted 11/8/2009 9:44 PM (GMT -6)   
Sonny,
Great to visit with you tonight on the phone. Best conversation I have had in a long time. But, wanted to let you know, if this event happens, either in February or later, we plan on being there, particularly if it is in a warmer climate than Idaho during the cold wintery season here.

We'll be in touch.

Dallas
RRP May 04, 2009
Pre-op Gleason 6
Post-op Gleason 7


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 11/9/2009 2:15 AM (GMT -6)   
Sonny,
I haven't discussed this with my wife yet but I would like to go. I'm currently in Sydney Australia until 11/18 so I'll try to convince her then. We are both retired so, any date you come up with will be fine.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 4 months
8 weeks PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/9/2009 3:09 PM (GMT -6)   
Hey Sonny,
We're tentatively in. It depends upon a potential contract I'm working on.
We will be sure to leave the exploding catheter bags and electronic devices at home.
Jeff

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 11/9/2009 6:59 PM (GMT -6)   
Worried Guy I must tell you....I accepted the first invitation so I will be Jeff 1... you will have to be Jeff 2. lol

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 11/9/2009 10:11 PM (GMT -6)   
Jeff,
Absolutely. You were here first.
Jeff too
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