20 month's out, no change in ED. So this is Pca

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mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/8/2009 1:37 PM (GMT -6)   
As the signature shows, there's no sign of problems, except for the fact of ED.

I knew that there were varying degree's of ED expected, and was hoping for the 24 month comeback.

My experience is that none of the pills do anything for Junior who is a fraction of his former self.

I was told by the Doctor that he saved one bundle, but I'm beginning to think he may have slipped with the scalpel.

As a young child, we were told by the Health Nurse that boys cannot walk and urinate, that all erections were related to sexual thoughts, that it was impossible for a boy to urinate with an erection, and that we were incapable of having an orgasm unless we were erect. I have come to realize that the Health Nurse was as correct as the Doctor.

I admit that I never had an orgasm without having an erection before surgery, but there was no way I knew of to test that trick out before now.

Prior to surgery, there was no way that Billy was going to find himself at a nudist colony. Now, I would fit right in. That's good for me, but not for ML.

I started on Testosterone Gel this past summer to try to see if it would give Junior a little boost in conjunction with the blue pill. Admittedly, I did not stick to the prescription because I didn't want to supply a dinner for anything that still might be lurking in my system from the PCa. Since the PSA has not reacted to the Testosterone, I'm inclined to increase the dose to Prescription levels of once a day.

If that fails, I'll consider the injections, but I keep looking at that needle and Junior, and I think I'd rather beat him with a baseball bat. Needles are just not my cup of tea.

I'll let you know how it goes.

Regards to all,

Billy
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 11/8/2009 8:55 PM (GMT -6)   
Ever heard the saying: "No pain - no gain?"
 
One little stick of the needle and odds are you'll be over joyed at the results.
 
So as we say around here-> "Cowboy Up" and give it a shot...(pardon the pun)
Age 54   - 5'11"   205lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/8/2009 3:16 PM (GMT -6)   
Billy, so your weiner is still not cooperating with you. That far out, with no results, I think even I would be considering the little stick to the prick, sure seems to be a lot of sucess here with the guys that do it. Good luck.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/8/2009 4:22 PM (GMT -6)   
Billy,

Are you using a VED to keep Willie in shape ?

Many guys use the VED to pump Willie up, then stick him with the Trimix (or Bimix). If you do that, I am telling you, you don't even feel the stick.

Muse is another method that involves putting a pellet in the urethra, you know, where the catheter was. Some giys have a problem with that as well.

There are multiple non-stick solutions out there if the needles are bad, but don't give up. Find a doctor who will work with you on this. There are ED solutions.

Yes, this is PCa.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/8/2009 7:00 PM (GMT -6)   
I tried the VED in the very beginning. It worked OK, but as soon as the pressure is released, the tire went flat. I know that it's supposed to work with those rings, but there's no way to get them on when Junior isn't interested.

ML tried to stretch a ring by pulling the little handles apart this morning. Once I was plied off the cieling after one of the handles snapped, it took 15 minutes to get the rest of it off Junior who was no happy camper. The VED is fun to watch, but that's about it.
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/8/2009 9:46 PM (GMT -6)   
Your VED usually has a ring installer. You slide it on to the outside of the tube, and then when Willie is pumped up, you slide it from the tube to Willie. Mine is a cone shaped device with a cover that forces the ring down the cone onto the VED.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/8/2009 10:03 PM (GMT -6)   
No installer, and the tube is as fat as a water glass. I think I would rather try a twisty tie.
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 377
   Posted 11/8/2009 10:13 PM (GMT -6)   
I'm over 14 months post surgery and I have given up hope of ever having a natural erection even with all the oral meds. Trimix/bimix injections or penile implants are really the only options guys like us have if we still want a sex life. I'm very satisifed with trimix and so is my wife, given the alternative of NO SEX. Give it a try.........
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
3 0's in a row now, 10 months out
Incontinence gone in early December '08,
ED remains,  still taking daily viagra for penile rehab, uro said try oral meds and then trimix for sex only now, Peyronie's Disease a problem now


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 11/8/2009 10:16 PM (GMT -6)   
OK, you got a couple options. You need to get all the part to your VED. You are missing a crucial piece if you don't have the cone that allows the ring to slip onto the tube of the pump. Once you get all pumped up, you slip the ring off the tube and onto the base of your dick.

There are also a few other things. Intraurethral Trimix, invented by a dr. Shoemaker in St. Louis. Trimix Gel is also an option. These work in about 40%-50% of men. The injections are over 90%. Try the shots. Most guys love the results. It is insignificant pain.

Sounds like the one nerve that was saved may have been damaged as well. There are lots of options, just gotta wanna bad enough.
Paul
46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
One year PSA - undectable!

ED Website: www.FrankTalk.org - frank discussions of Erectile Dysfunction - check it out.


gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 11/9/2009 11:12 AM (GMT -6)   
idea  Hi MLBSM  two weeks after my surgery,I notice a lump on the right side of my jr and was alarmed
and asked the dr what was that.he told me it was good because some blod was going into jr.
It took about one year for him to be alive,but in the mean time I tryed everything.there is a suppository name MUSE it is like a tootpick it will not hurt you,and it will get jr up in 10 to 15 minutes.one time I tryed the injection
and it was the greatest thing in jr life.now it is five years and I use viagra,but maybe I will to change for another
pills.but try MUSE it will work.
DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 11/9/2009 11:35 AM (GMT -6)   
Hi Billy,

Once you try a shot you will be seriously, make that seriously pissed off at yourself for waiting this long. And thats not even close to how mad your wife will be with you at not trying this last year

It is so not a big deal giving oneself a shot its not funny and the benefit is amazing, 1.5 to 2 hrs of non-stop enjoyment for you and your wife
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/9/2009 11:59 AM (GMT -6)   
Gold Horse,

I did look into MUSE in the very beginning. It was most attractive to me because it wasn't a needle.



Nobody seemed to be interested in the subject, my doctor, or the folks on the forum, so I figured it wasn't worth the try. Most people didn't seem to like the idea since it involved shoving something up your urethra. After having two catheters stuck up Junior for three weeks and having him blow up like a balloon in appreciation, I figure anything short of a fire hose would be tolerated as well as the catheters were.

I'll look into it closer, thanks for the info.

As an aside, I just happened to tune in during the past few days. As a member who became embroiled in a similar situation, I decided to withdraw rather than to disturb the status quo at the time which was the opposite of your situation. Obviously I came back, but with the firm intentions of NEVER mixing politics or religion with cancer. It's a cocktail that does not mix and merely takes the attention away from the real problem, which is our health.

I don't know most of the folks involved with the discussion now locked, but I do know Tony, James and David. Your decision to continue was wise, and they, along with the greater majority of this forum will be an invaluable source of information and support.
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/9/2009 12:08 PM (GMT -6)   
Mr. Gimpy,

You're talking to a man who waited until he was 38 before he married because of the blood test involved.

After Prostate Surgery, Hernia Surgery, and 3 surgeries on my hand all in the past 2 years, I'm a little less terrified of needles, but not much.

I'm also HIGHLY protective of Junior, he's been with me now for 65 years.

:)) Billy
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 11/9/2009 12:16 PM (GMT -6)   
I hear you, go with the auto-injector, You do not see any needle entering your skin, avoids any quezzy feeling about seeing myself pushing in a needle into my skin.

Honestly if I did not have the auto-injector I would not insert a needle into any part of me, it would be to much to look at and I would likely get light headed quickly

If I had to compare the level of pain of drawing blood from ones arm to injecting my penis, the arm would be a 10, penis would be a 0. There is absolutely no pain whatsoever, all I hear is a click from the auto injector.
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 11/9/2009 12:22 PM (GMT -6)   
Billy...if you don't mind me asking a personal question...but do you or have you smoked tobacco. The reason for the question is I was told by my uro when I was diagnosed that if I had been a smoker, the chances of ED would be greater due to lower blood flow after surgery in the pelvic area. Blood flow is important for healing and recovery of the nerves in addition to erections. Just a question, and if you don't want to answer that is okay.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009 .06
                   6 month Apr 2009 .06
                   9 month Jul  2009 .08
                 12 month Oct 2009 .09 


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/9/2009 4:49 PM (GMT -6)   
Jeez Tony,

The way you framed the question, I thought you were going to ask me if I ever bopped the balogna.
(Absolutely not, never in my life!) yeah

I started smoking at age 7 (Seven). I smoked about a pack a day for about the next 40 years.

My children didn't like the smell, so one day I just quit.

I would tend to think that if smoking had a problem with blood pressure, there would be obvious signs of it way before surgery.

That was never the case, a nice thought and Billy could drive a nail with Junior, so I don't see how the two could correlate, but who knows?

I plan on trying the MUSE before I consider sticking my pal, and I'll let you know how it turns out.

ML thinks the shot will be less invasive, but she's a Nurse and sticks folks all the time. Ugh!
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 11/9/2009 6:04 PM (GMT -6)   
Wait.. Back up a bit....
Mr Gimpy said :"1.5 to 2 hrs of non-stop enjoyment for you and your wife." What the?! That's 1:20 - 1:50 more than I ever needed !
Ok, I give. What happens at the end? Do you just quit when the body parts are raw? Or is there that old familiar pulsing? I'd better get in shape. I can't even watch TV for more than an hour now.
I'll ask about it at my 6 month visit. I'll admit this gives me some hope.
Jeff
DX Age 56. First routine PSA test on April 8th: 17.8.
May PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, Gleason 6=3+3. Bone scan and C/T scan negative.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7 Tumor size: 2.5 x 1.8 cm location: both lobes and apex. No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Extraprostatic extension present; Perineural invasion: present, extensive
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 10/31 3 months, Still no activity, nada, zip
Incontinence - 8/20 4 full pads per day
. 9/7 3-4 full pads per day (I'm going to try cutting down on fluids. Bad idea. I know.)
9/17 2 months: Still 3 pads per day.
10/31 14 weeks: Still 3 pads per day. At this rate I'll be fine in 2012.
Post Surgery PSA - 9/3 6 weeks- 0.05, 10/13 3 months- 0.04 undetectable.


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/9/2009 6:44 PM (GMT -6)   
Yeah, I noticed that too.

I have five beautiful children, and I don't think it took that kind of time to make all five.

I don't even remember doing that in the drive-in movies at my prime!
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


hb2006
Regular Member


Date Joined Nov 2008
Total Posts : 299
   Posted 11/10/2009 10:38 AM (GMT -6)   

I tried the MUSE and all it gave me was the alprostadil pain, which is a dull ache that lasts for an hour or more. I read somewhere that MUSE works in only 35% of the men that try it.

Now I do the Trimix Injection which works fine, but I also developed Peyronies Disease. However, I think I caused the PD due to using double constriction rings with a VED. I was also injecting too close to my body for awhile with the Trimix.

Anyway, I'm on Vitamin E and Trental for the PD and the plaque/scar tissue has stopped growing. I hope in another 6 months to be completely free of the Peyronies.

If you do try the Injections at some point, make sure that you do not inject in the half of Junior that is close to body. Like others on here, the Trimix lasts for at least 2 hours for me.

 

 

 


Age 60, PSA 2007 4.1, PSA 2008 10.0
Diagnosed April 2008, Biopsy: 6 of 12 cores positive, Gleason 4 + 5 = 9
CT and Bone Scan negative, Open surgery at Shawnee Mission Medical Center May 21, 2008
Right side nerves spared, Radical prostatectomy and lymph node dissection
Cather removed on June 3rd, totally dry on July 9th, pT2c, lymph nodes negative
PSA Sept 28, 2008 0.00, PSA Jan 22, 2009 0.00, PSA June 29, 2009 0.00
ED Status- Currently using Trimix, Levitra daily for increased blood flow.
Noctural Erections have completely returned on a nightly basis, same hardness as before.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 11/10/2009 3:09 PM (GMT -6)   
MUSE was not good for me...I am headed on to injections!!!mmmmmmmmmmmmmmmmm
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 11/10/2009 4:44 PM (GMT -6)   
Hi Worried Guy,

Its a great experience, you do not need to rest, your wife might though.

You can quit at anytime, just take a couple of Sudafed and its back down in 30 minutes. It would be pretty tough to walk around for the hour with a full erection.

At the end, do you mean what happens when the shot wears off ? your erection simply goes down to about 70,% then, 50% and slowly goes back to 0 in another couple hours

My body parts have not become raw, if you need to pick up some HerGel or Astroglide both at CVS to help keep all parts well lubed
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


mlbsm
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 11/10/2009 5:08 PM (GMT -6)   
OK,

So let's see if I can get this past Tony or James in one piece:

In the good old days, I spread the normal wealth around with the little woman.

Now, there is no "Normal" wealth, but there most certainly is a sprinkling of bladder material going on when I take Junior out for a solo walk.

As a "Bareback boy" all my life, the idea of putting a sock on Junior never appealed to me. It's a little like putting gloves on to take out a splinter.

Anybody figured out how to get around the problem?
DIAG. 2/08
DRE POSITIVE
PSA 6.8
CONTAINED, LEFT SIDE, GLEASON 9
LUPRON, (3 MO.) 2/28
RRP, 3/26, HOME 3/31
GLEASON SCORE, 3+4
TUMOR CONFINED TO THE PROSTATE, INKED EXTERNAL SURFACE FREE OF INVOLVEMENT. VD AND SV CLEAR AS WELL AS LYMPH NODES AND A BLADDER SECTION.
PSA 5/21 O.O1 UND TESTOSTERONE 0
PSA 6/30 O.OI UND TESTOSTERONE 10
PSA 9/30 O.O1 UND TESTOSTERONE 311
PSA 1/12 O.O1 UND. TESTOSTERONE 219
ED, BUT I CAN FIND WAYS AROUND IT.
PSA 4/10 O.O1 UND. TESTOSTERONE 119 Rx. FOR ANDRO GEL
PSA 6/15 O.01 UND. TESTOSTERONE 217
PSA 9/15 O.O1 UND. TESTOSTERONE 144


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/10/2009 5:21 PM (GMT -6)   
A lot of guys have just learned to live with it. Before taking Jr. for a solo walk, make him empty everything he has.

If a little pee comes out during the trotting phase, just don't worry about it. It doesn't hurt the little women, might make a little mess, but as men, especially the bareback riders, we've mad a mess before.

I think sometimes we are so self concious about it, that it becomes much worse than what it is. Mine is getting better with time also. You know what they say, practice makes perfect !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/10/2009 5:29 PM (GMT -6)   
Gee, those last two posts were way too coded for me, didn't get either one of them. :(
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/10/2009 5:35 PM (GMT -6)   
Doesn't look like James or Tony did either !
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections

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