There may be benefits is using D3 vitamin~my brothers wife is multiple myeloma patient 1 yr now

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zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 11/8/2009 1:29 PM (GMT -6)   
Thought I would share this that perhaps D3 vitamin can be used for alot various things maybe even to help even us PCa patients. You can read about some of the positive effects, alot of them and even against depression and such. Has alot of good things associated with it, it appears...I  don't know enough on it to have a real opinion. Here is my brothers, wife current situation and may show usefulness, that could be awesome for similar patients. My brother says he has heard of PCa patients using this...I have not verified anything on that, yet.(unknown to me)
 
Little is know about cancer patients with multiple myeloma  (which attacks bones and your system). Usually a prognosis of such is without much hope, way worse than PCa, the doctors don't have any set protocols per se, bone marrow transplant is one with risks and some other bizzarre treatments that are not proven. I don't know alot about my in-laws case, my brother went to John Hopkins and some other very good facilities. Her kidneys were in big trouble about 6 months ago or so and it looked like the end (shut down). John Hopkins was advising a kidney transplant even ($400,000) proceedure.  Other drugs she had tried earlier one was a pill that costs  $200 per day(I believe bro said this one has thalidomide in it-potent stuff that could kill a person in the right doseage..nicely priced too)  and another is a shot that is $650 per week.  Those items might have helped some, don't know. Looked grim for her as this disease is not usually winable. Her blood counts were so low that she had little or no immunity and had to beware of even a common cold, for quite a while.
 
Recently since using the D3 in high doseages, might have been at an Rx level, not the 1000 units (that is low low). Her kidneys recently tested, show to be basically normal now and she is doing well...like remission...how long who knows?? My brother will keep me posted. He went to many facilities and some docs would not even talk to them. Went to Freeport, Jamaica found a doc that knew something about this cancer, he mentioned the only article or thing he has seen about a cure was a patient whom used this D3 vitamin otherwise nothing is hardly known about how to treat this dragon. Hey even if this helps for months or years, it is inexpensive and it is all about any possible results...especially in the face of no hope or answers. Thought I would share this and it could be useful in other diseases and maybe have some value in PCa, I don't know. Always looking though.
 
 
 
 

Post Edited (zufus) : 11/8/2009 12:32:03 PM (GMT-7)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/8/2009 2:31 PM (GMT -6)   
Good info and good post. Thanks.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/8/2009 3:17 PM (GMT -6)   
Zufus,

I know that you are a true researcher so I offer this link to you;

http://www.lef.org/prod_hp/abstracts/php-ab425.html#9

It is an absolute plethora about studies and findings dealing with Vitamin D and analogs and their possible effect on and use for treating PCa. I though you would find it interesting.

Also, my wife was diagnosed with Multiple Myeloma in November 2005 and has run just about the entire gamut of treatments including induction therapies of Thalidomide, Revlimid, Decadrone, High Dose Chemo, and Stem Cell Transplant. She was diagnosed very late in the cancer's progress at Stage 3A (it only goes to 3B).

Between us we could write a very authoritative book on Surviving MM. If you or your family would like to contact us off-line about MM, just send me an email. She has an absolute affinity for helping folks with MM as I do for helping my PCa Brothers, now that I are one.

Thanks for the informative post,

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/8/2009 3:37 PM (GMT -6)   
Sonny, we didn't mention this to you in person when we met, but thought you should know, Peggy's mother died of MM about 20 years ago. When it was dx, she made it about a year or so, I have no idea of data from that far back, but do remember she was way advanced case, and very little was done to slow it down at that time.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 11/8/2009 3:54 PM (GMT -6)   
I was instructed by my oncologist to start taking a minimum of 2000IU per day of Vitamin D3. It is well known that D3 slows cancer growth, and that supplementing benefits are real. Up to 6000 IU is mentioned in the Snuffy Myers book "Beating Prostate Cancer:Hormonal Therapy and Diet" with a whole chapter dedicated to D3. Important note, many living in warm sunny states can take less amounts and receive much of their D3 from the sun. Thus, cold states in the North, folks commonly have vitamin D deficiency.

Additionally, D3 is good for the bones in patients undergoing hormone therapy. One of the real demons in HT is the effects of low testosterone on bone density. In advanced cases this is compounded by mets in the bones and D3 supplementation is a critical must for these patients.

D3 is also known to slow disease progression and in some cases, the onset of certain cancers.

Bob, you should be taking Vitamin D3. I am quite surprised your oncologists did not mention it.

Tony
Prostate Cancer Forum Co-Moderator


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 11/8/2009 4:51 PM (GMT -6)   
Thanks Tony we can learn something from anybody, no matter what you already may know. I may use this particular gig and try it on.

Thanks Purg for your replies to this thread.

Thanks Sonny (alot) my brother and you will be talking very soon, hard to find alot of patients to share Multiple Myeloma with.

geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 11/8/2009 5:03 PM (GMT -6)   
After my surgery I had a talk with my internist about dietary supplements. His wife, also an MD, writes books about diet and women's health. The one certain recommendation that he made was vitamin D3 -- for me 1000 IU per day. He suggested other possibilities, but this was the one on which he was most strong
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Hopeful in MD
Regular Member


Date Joined Apr 2009
Total Posts : 66
   Posted 11/8/2009 9:33 PM (GMT -6)   

Tony and Geezer,

Your comments about Vitamin D3 made me warm all over (not a hot flash turn ).  I am on Lupron and take 2000 IU of Vitamin D3 plus Calcium, Magnesium, Vitamin K, Strontium, and Boron.  My uro says it's the best supplement he knows of.

Gene in Md


Hopeful in MD
Age 70.
Dx Dec 07. PSA 8.4. DRE confirmed tumor. Three of six biopsies positive. Gleason: 6 (3+3).
Seed implants Iodine 125 Jan 08.
PSA's 3.9, 1.7 after implants. 
Rising PSA's: 2.3, 3.4, 3.9, indicating  seed therapy not working. 
April 09 began hormone injection therapy with Lupron 30 MG ea. 4 mos.  Side effects - hot flashes, about 1 an hour, initial severe fatigue. Gone as of mid-July. Jun 09 - Oncologist DRE negative for nodules - hooray!!! Aug 09 - PSA 0.5!!!  Lupron is working! Aug. 21 - 2nd Lupron shot.  Flu-like symptoms. Aug. 31 - hyperbaric oxygen chamber treatments for rectal bleeding. At least 20, possibly 40 or more.  Sep. 10 - dx radiation proctitis after sigmoid exam. 

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