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James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 11/9/2009 5:42 PM (GMT -6)   
In another thread, Dilbert61 posted for the first time, sayi8ng:

This forum is outstanding. I have lurked throughout my diagnosis, surgery and now recovery. We all experience things differently, I'm probably more private than most, but I take my hat off to this string. The psychological impact of this disease cannot be underestimated. When I was healing I was cathaterized and would bleed every time I moved around too much. I felt that I was supposed to exercise but when I moved I would bled which was a problem. I became very disheartened and I finally emailed my doctor and asked him. I should have done it so much sooner. He was able to calm my fears, and almost immediately my outlook and healing improved. To this day, I speak with others about what I went through and I remember what happened but not that it was bad. I'm thankful for that and for this group. Keep up the great information sharing.

Initial PSA 4.7 retest 4.9
Biopsy January 2009, two cores 3+3=6 Gleason
Diagnosed Febuary 2009, age 47
open Surgery June 2009, radical, open, nerve sparing retropublic prostectomy
No positive margins and a favorable Gleason's grade of 3+3=6
PSA August 2009 .5
PSA November 2009 undetectable


Welcome to the Forum, and hope you will stay with us in your journey and continue sharing it with us.
James C. Age 62
Co-Moderator- Prostate Cancer Forum
4/07 PSA 7.6, referred to Urologist, recheck 6.7
7/07 Biopsy: 3 of 16 PCa, 5% involved, left lobe, GS 3/3=6
9/07 Nerve sparing open RRP 110gms.- Path Report: GS 3+3=6 Stg. pT2c, 110gms, margins clear
24 mts: PSA's: .04 each test since surgery, Bimix .3ml PRN or Trimix .15ml PRN


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 11/9/2009 5:57 PM (GMT -6)   
Hi Dilbert61 --- I'm glad you joined and said hello. Congratulations on your zero! I hope you'll keep us posted on your journey and continued successes.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 11/9/2009 7:17 PM (GMT -6)   
Welcome to the club ! Sounds like you are on your way.

To All the other lurkers out there, take note. It's better to post here and ask questions before you get your pads in a bunch. Posting is good therapy, and there are a bunch of guys here who can help.

Dilbert, hopefully your experience can encourage others. Thanks for sharing.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 11/9/2009 7:18 PM (GMT -6)   
Hello and welcome Dilbert, and congrats on that big zero. Please keep us posted.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 11/10/2009 6:09 AM (GMT -6)   
Welcome Dilbert
 
Yup this PCa (and HW) certainly makes you realise that in order to help us cope with all the (unexpected) problems that crop up you definitely have to make the decison to ask questions , and to do so without much hesitation or embarrassment, as well as to talk to people about matters that were hitherto rather private.  By way of an example of what I mean I'll quote from an email from a female friend of mine (whose husband has just finished radio and hormone therapy after a prostatectemy failed to get everything).

"I can't believe I'm writing about this, but there you go! Cancer leads you where you never thought you'd go."
Alfred

Age at Dx 48         No Family history  of Prostate Cancer

Married 25 years, and I cannot thank my wife enough for her support.

April 2009: PSA 8.6  DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.

RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.

Partial erections on 1st and 2nd Aug 2009, Catheter out on 6th Aug 2009. 

Dry at night, but wearing pads 24/7

Post-op Gleason 3+4. Seminal Vesicles invaded, but otherwise negative margins,

Erection 100% on 15th Aug 2009   Stopped wearing pads on 21st Sept 2009

Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc.

 


Dilbert61
Regular Member


Date Joined Nov 2009
Total Posts : 21
   Posted 11/10/2009 4:59 PM (GMT -6)   
Thank you all for the welcome. I am now struggling with ED but that comes with the territory. Incontinence is controllable, the last little bit remains elusive but I can take a challenge. Much better now that the PSA is down.

Cheers,
Initial PSA 4.7 retest 4.9
Biopsy January 2009, two cores 3+3=6 Gleason
Diagnosed Febuary 2009, age 47
open Surgery June 2009, radical, open, nerve sparing retropublic prostectomy
No positive margins and a favorable Gleason's grade of 3+3=6
PSA August 2009 .5
PSA November 2009 undetectable


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 11/10/2009 5:11 PM (GMT -6)   
Dilbert
Glad to have you "come out" because you then provide more information for people who are not yet ready for that.

When you talk about incontinence where are you in pads per day? Sometimes that last bit can seem to take forever but you are still within what we would expect.

ED is a B*tch but again you not only have time but many alternatives.

We hope that you will use us as seems best for you -- posting or lurking we are here for each other.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day


Dilbert61
Regular Member


Date Joined Nov 2009
Total Posts : 21
   Posted 11/10/2009 6:46 PM (GMT -6)   
Geezer99,
I'm at one pad per day--don't wear one when I work out. Nothing at night. It is a matter of confidence as well as healing I think.

Cheers,
Initial PSA 4.7 retest 4.9
Biopsy January 2009, two cores 3+3=6 Gleason
Diagnosed Febuary 2009, age 47
open Surgery June 2009, radical, open, nerve sparing retropublic prostectomy
No positive margins and a favorable Gleason's grade of 3+3=6
PSA August 2009 .5
PSA November 2009 undetectable


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 11/10/2009 11:16 PM (GMT -6)   
A lot of us at the end of incontinence have switched to women's pads. They are much less bulky and better engineered (they sell a lot more of them.) Try something marked as thin or ultra thin with medium absorbency. Guys have different opinions, I like them with wings. Right now my wife and I use the same pads!
P.S. When you buy them at the store the clerk will think that you are being considerate in shopping for your wife.

Yes, confidence is an issue -- I go without on weekends and do OK but am not ready to take it all the way to work.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day

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