HW Rules Well with The Velvet Hammer

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/12/2009 7:32 AM (GMT -6)   
While not at all unexpected, the tremendous support from the folks here at HW for my wife and I, has been overwhelming. Thank you all, you will never know the depth of comfort you have brought to us.

As of this morning my wife wife is doing very well. We have met with a bevy of doctors in the last day and a half and there has been general agreement on the diagnosis and treatment plan. She indeed has a Myeloma lesion in the bone at the top of the spine near the beginning of the brain stem. It is felt that this lesion has grown to the point that the spreading of the bone area is putting pressure on the ocular nerves that run through here. The plan is to treat with IMRT radiation. We will meet this morning with the RAD Oncologist to discuss the plan and move forward.

While she is in the hospital, they are taking advantage of the time and running the entire gamut of tests and evaluations to re-stage and bring current her MM progress or lack thereof. She is in extremely good hands and we are both in very good spirits.

And now, on to how effectively you have wielded the "Velvet Hammer of Caring, Concern and Reason".

I HEAR YOU. I have made an appointment with the Prostate RAD Oncologist at MD Anderson for next Tuesday the 17th. Today I am dropping off copies of all of my test results, surgical notes and pathology reports for his review. In addition, they want copies of my pre surgery CT Sans and Skeletal Surveys.

During one of the visits of the MD docs to my wife, when IMRT was being discussed, my wife said she was familiar with IMRT because I was heading in that direction for my own treatment. He asked "for what" and I told him PCa and about the appointment with the MDA dr. He said that not only was my new dr. one of the best in the area, but he considered him one of the best in the country. He went on the say that this guy was so good that he had been recruited away from MDA to UCLA. He quickly added for me not to worry, he wasn't leaving until mid 2010 and would certainly be there for the length of my treatment.

Man, that immediately raised my comfort and confidence level, and I haven't even met the guy yet.

When the 10 day treatment plan was outlined for my wife, she immediately showed that ever present positive and good natured attitude she possesses.

She turned to me and said; "Well your cancer has finally topped mine. You get to go for 37 or more treatments and I only get a measely 10. I hope you are proud of yourself". Can this lady turn a phrase, or what?

So thank you my friends for your absolute caring and concern and your overwhelming attitude of support.

I have said many times, that my wife and I have been so blessed throughout our lives, and in our dealings with cancer. But it has never been more evident than my association with you fine folks here at HW.

Thank you so much from both Lynn and I.

Bless you all,

Sonny

Modelshipwright
Regular Member


Date Joined May 2009
Total Posts : 215
   Posted 11/12/2009 7:38 AM (GMT -6)   
Dear Sonny and Lynn,

We hope that you both will sail through the next round of treatments and please keep us posted, when time permits , of your progress.

Bless you both,
Regards,
Bill

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/12/2009 8:08 AM (GMT -6)   
Dear Brother Sonny and Lynn, sounds like a "sound" plan for the both of you. My immediate neighbors both went through surgeries and radiation at the same time a few years ago. The guy had some kind of stomach cancer and she had breast cancer, without much family around, they managed to help and take care of each other.

My heart is out for the both of you, wish I lived near enough to physically help in some way. As soon as you posted yesterday, I had to start getting that idea in your head, that you can do battle on both fronts at the same time, glad you are coming to terms with that idea.

Just a phone call away. Anytime. Anyday.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4088
   Posted 11/12/2009 8:25 AM (GMT -6)   
Sonny, I am so very pleased that you have made the decision to go on with treatment. I too wish that I were physically closer to you guys to give an hand in the next few wks ahead. Please let Lynn know that we will be praying for the both of you.

What great news you have concerning you Rad Dr. Sounds like you have a winner there. All this points to a very positive outcome.

Hang in there. I must say your post is much more positive.

Your brother in PC.

Jeff T
Cajun Country
Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 11/12/2009 9:16 AM (GMT -6)   
Dear, dear Sonny. I have just opened and read your first post concerning Lynn, and then, best I could with blurry eyes, I then read it haultingly to my wife, who when she was able to get out some words through her own choking tears said I must write and tell you we are both praying for you --- and so, with 43 years of wedded bliss founded on doing what I'm told, I write to give you that assurance, although truth is, I'd have been doing so instantly anyways.

I am very pleased to read that you are plunging ahead with your radiation, especially as you are apparently in world class, excellent hands. While the treatment period may be difficult from both a time and energy level to give Lynn the support you must, long term you can't risk letting your PCa get needlessly away on you and really compromising your ability to support.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/12/2009 9:17 AM (GMT -6)   
Bill, David and Jeff,

Thanks can't be capitalized enough to say it with my truly felt meaning.

I know that each of your hands took hold of that Velvet Hammer that smacked me up-side the head yesterday. I very much appreciate it.

I am off to the hospital now to be with my wife and will check in later today with any updates on our respective fronts.

Sonny

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/12/2009 9:23 AM (GMT -6)   
Sheldon,

Thank you for your prayers. My wife and I are great believers in their power.

I apologize to you and your wife for starting your day with so much emotion.

Your comment about doing what your are told reminds me of a T-Shirt my wife wants me to buy and wear. It is based upon the discussion of a tree falling in the forest and no one there to hear it, does it make any sound?

The shirt poses the question; "If a husband says something and his wife is not there to hear it --IS HE STILL WRONG?

The back states very boldy and loudly---"YES"

Have a wonderful day brother,

Sonny

qjenxu
Regular Member


Date Joined Sep 2009
Total Posts : 187
   Posted 11/12/2009 9:35 AM (GMT -6)   
Sonny

when I was reading your post about your psa evaluated and your wife's condition, I broken my tears and deeply feel sorry for you, your wife and us (cancer patients). we, cancer patients, take huge challenges in every days life that healthy people have no idea about. You are such a wonderful husband who put your wife first and cares for her so much. now you and your wife again, teamed for cancer fight and my husband and I pray everyday for you and your wife. Hope everything going smoothly with treatment and recovery.

Everyday is challenge but also with hopes and success. I am so glad that you and your wife are all in very good hands and will heading good progress. that really brighten my day! Cheers!

we send prays everyday to you and your wife and everyone here and looking forward to hear more good new from you!

Jennifer

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 11/12/2009 10:35 AM (GMT -6)   
Sonny, when you talked t-shirts, I thought you meant that you wore the one that said "Stupid" on it, and she wore the one that said "I am with Stupid".
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 11/12/2009 10:54 AM (GMT -6)   
Sonny, no need to apologize. I fact it is quite the opposite. We thank you for allowing us to share these tough times with you and Lynn. In doing so you remind us of the blessings of a good marriage, how special each day is, and what a joy hope and a positive mental attitude are in life. It is you who give us the gift of friendship.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/12/2009 1:02 PM (GMT -6)   
Jennifer, thank you for your well wishes. I know that you and your husband are going through you own issues and I deeply appreciate you taking the time to participate in ours.

Sheldon, it is truly my honor to call you and the others here at HW as friends. Many times in life we acquire new acquaintances in our life, but rarely do we find new friends. I feel that all I have met here are true friends and as such they are all included in my prayers.

Sonny

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 11/12/2009 2:46 PM (GMT -6)   
Sonny, friend is such an interesting word. It's like, 'thank you.' Easy to toss off, and usually is, but also a word with profound depth when said with feeling.

I too am touched by the care and concern of my special friends here at HW ---- and like you I'm honored to call all 'friend,' and none more than yourself.

Sheldon AKA Sleepless


Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


jetguy
Veteran Member


Date Joined Sep 2006
Total Posts : 741
   Posted 11/12/2009 6:11 PM (GMT -6)   
Dear Sonny,
 
I am dreadfully sorry for the problems you and your wonderful wife are having.  My bride of 40 years has had an unpleasant medical experience and I have at least a partial understanding of the gut wrenching fear.  I am pleased that you are still going to take care of yourself.  You can't be there for your bride if you aren't well.
 
I'm not a praying man, but I most certainly wish you and yours the very best.  Please come back here and lean on all of us.  I sure did when I was first diagnosed and fearful.
 
Regards,
 
Bill
August of 2006, PSA up to 4.2 from 2.7 one year ago. 
October free and total PSA 12% free and 5.0 total.
A month, or so later, 4.7.
Late in the year decide on Image Guided IMRT.
Begin 43 treatments on January 23, 2007 and finish on March 23.
 
Wow, almost two years behind.  I had a typical radiation bounce that
scared me, but it seems to be ok.  PSA is about 1.0 which is ok for
a rad guy at this stage of the game.
 
Got my FAA medical certificate back four months after starting my
treatment.  It's still a First Class, just jumping through a few hoops.
 
October, 2009.  Latest PSA is still 1.0 - that would make you surgery guys nuts, but it's just fine for a rad guy.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 11/12/2009 6:36 PM (GMT -6)   
Sonny unbelievable combined journey you both are on, best to you both of you. Hey I like the 'is he still wrong' one, how about with this twist:

'If a man is all alone in the woods, is he still wrong'? Is this a symptom of married life? I know alot of women might say yes, he is still sooooo wrong. (LOL) (Right!!!)

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/12/2009 6:47 PM (GMT -6)   
zufus,

Your idea of the shirt would go over really well with the wearers of a shirt that was around for a while.

It was definitely for the self assured and read:

"A women without a man is like a fish without a bicycle"

Thank you for the kind words,

Sonny

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/12/2009 8:44 PM (GMT -6)   
Sonny,

Great to hear from you, and I may have missed it but thanks for sharing your wife's name. Now I can pray for Sonny and Lynn, not Sonny and his wife. I like to think sometines the personal touch helps.

I am so pleased that you are going ahead with your treatment. I am hoping it is not too much for you to keep it going on both fronts.

Just keep us in touch with your progress. We are eager to hear.
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 11/13/2009 7:28 AM (GMT -6)   
Hi Sonny and Lynn,

I'm happy to hear you have a plan in place for both of you and that you are clearly in good hands. I too sense your confidence and comfort.

Praying for you,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Four PSA tests undetectable, latest Oct 30

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