Just got my second zero

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55 and healthy in NJ
Regular Member


Date Joined Apr 2009
Total Posts : 58
   Posted 11/12/2009 8:47 PM (GMT -6)   
Hi all,

Just got my second zero, hooray! Not quite six months out, and my surgeon lectures me about the stress incontinence I still have. I've been stuck at one pad a day, mostly as a safety precaution, and he says it's probably because I've been slacking off on my Kegel exercises. All right then, time to buckle down.

Had some recent success on the ED front. Not great, but better than it has been. My surgeon says to chew a whole dose of Viagra and then take a hot shower, to maximize the blood flow. Still not where I want it to be, but at the six month mark, it's definite progress. Only thing is I noticed a connection between the Viagra and an aggravation of my existing tinnitus, which apparently is a known side effect (ringing in the ears). It got bad enough that I had trouble sleeping because of it. So I asked my surgeon about getting a Vacurect pump, and he gave me a prescription in case I need one. He also gave me a new prescription for Levitra, to see if that causes the same side effects as Viagra. Unfortunately, my insurance doesn't cover any ED rehabilitation, and all this stuff gets expensive. I'm going to try the pump (I'm afraid of the injections) - it's about $200 versus $16 per pill.

Other than that, I still need the Ambien once in a while to get to sleep, and I'm getting up about once per night, depending on how much fluid intake I have before going to bed. I haven't figured out the right balance yet - either I purposely don't drink anything before bed and then I wake up with a nasty headache because I'm dehydrated, or I drink enough that I'm awake during the night. I keep reminding myself that at six months, all this is about average on the continuing road to recovery.

I hope everyone else is doing well in their journeys.

Greg

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 11/12/2009 8:52 PM (GMT -6)   
Greg, a big congrats on your second zero, that is the most important raeson you did your surgery, eradication of the cancer. Sounds like you are making progress on the other two fronts, hope that continues for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place


Indigo Blue
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/12/2009 10:03 PM (GMT -6)   
Gongrats, Greg, I got my 2nd post surgical psa yesterday. <.1 First was .02, second is .05. light increase makes me nervous, but my surgeon says not ot worry I am doing excellent. god, I hope so. He says variation of such small amt is nor. I guess I'll trust him. Too much info after watching it go up and down for six years. Diagnosed this spring Gleason 3+3+6. Robotic surgery(Mr DaVinci) on 6/15, continent after 8 weeks, still dealing with ED. post surgical no surprises, still a Gleason 6, organ contained, no cancer in margins or lymph nodes. I'm hopeful! Chin up, Purgatory.

Indigo Blue
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/12/2009 10:06 PM (GMT -6)   
55 and healthy in NJ said...
Hi all,



Just got my second zero, hooray! Not quite six months out, and my surgeon lectures me about the stress incontinence I still have. I've been stuck at one pad a day, mostly as a safety precaution, and he says it's probably because I've been slacking off on my Kegel exercises. All right then, time to buckle down.



Had some recent success on the ED front. Not great, but better than it has been. My surgeon says to chew a whole dose of Viagra and then take a hot shower, to maximize the blood flow. Still not where I want it to be, but at the six month mark, it's definite progress. Only thing is I noticed a connection between the Viagra and an aggravation of my existing tinnitus, which apparently is a known side effect (ringing in the ears). It got bad enough that I had trouble sleeping because of it. So I asked my surgeon about getting a Vacurect pump, and he gave me a prescription in case I need one. He also gave me a new prescription for Levitra, to see if that causes the same side effects as Viagra. Unfortunately, my insurance doesn't cover any ED rehabilitation, and all this stuff gets expensive. I'm going to try the pump (I'm afraid of the injections) - it's about $200 versus $16 per pill.



Other than that, I still need the Ambien once in a while to get to sleep, and I'm getting up about once per night, depending on how much fluid intake I have before going to bed. I haven't figured out the right balance yet - either I purposely don't drink anything before bed and then I wake up with a nasty headache because I'm dehydrated, or I drink enough that I'm awake during the night. I keep reminding myself that at six months, all this is about average on the continuing road to recovery.



I hope everyone else is doing well in their journeys.



Greg

55 and healthy in NJ
Regular Member


Date Joined Apr 2009
Total Posts : 58
   Posted 11/12/2009 10:08 PM (GMT -6)   
David,



You're right, of course. I didn't intend to minimize the cancer - free PSA reading, but like many of my brethren, the quality of life post-treatment is always a concern when deciding on a particular course of treatment. As we know, surgery or radiation have equivalent success with regard to treating PCa, and thus it's quality of life issues that oftentimes determine which treatment option to choose. So my message here is that post-surgery side effects do diminish over time with an experienced surgeon and a little luck.



Greg

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 11/12/2009 11:03 PM (GMT -6)   
Greg, congratulations on staying in the zero club. While I am on the outside looking in at this time, I hope to join this very elite club in about 40 weeks.

At that time, it will of course be my pleasure to buy a round as the new guy.

Keep them zeroes coming.

Sonny
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 11/13/2009 5:28 AM (GMT -6)   
Way to go Greg,

I was deathly afraid to even consider injections, but the futile results with ED medication finally led me to try Trimix injections. After the 1st time I was hooked

I admit I hate the sight of blood and even the thought of seeing a needle going into my skin by a nurse freaked me out never mind me doing it. Well I have to say the benefits of a full erection far overshadow the click of the auto injector. I never see the needle enter me, its so easy I wish I had used these sooner like my Dr had recommended

Best yet is I have had a 100% success rate for the past month, 3 times a week boosts my self esteem big time
Stats:
Age: 52
PSA (2008)=1.9
Biopsy on Jan 09, 2009
One (1) out of twelve (12) cores was positive, plus external nodule found
Gleason Score = 3+3
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, under .0


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 11/13/2009 8:21 AM (GMT -6)   
Hi Greg,

Congratulations on rolling a zero! Definitely a good feeling.

May you always remain in the club,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Four PSA tests undetectable, latest Oct 30


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 11/13/2009 7:59 PM (GMT -6)   
That is awesome that you got your second zero. I pray that you will have many many more. The zero club is always open to those wanting to renew their memberships. I to use to take the occasional ambien however I did not like the groggy feeling I would get if I took it two or three nights in a row. I have since switched to Unisom which is an over the counter $3.00 per bottle non addictive sleep aide that works great. Just a suggestion my friend

peace to you
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11

Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 11/13/2009 10:38 PM (GMT -6)   
Wonderful news. Love those zeros.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:  sheldonprostate@yahoo.com    


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 11/13/2009 10:48 PM (GMT -6)   
Congrats !

Get your doctor to give you some samples of Levitra or Cialis. They usually have lots of them to give away.

Also, look up All Day Chemist from India. Many guys here are buying their drugs there for less than $1 a pill.

I don't think you will find the vacuum pump a good alternative if you can get some action with Viagara.

Good luck
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections

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