Sonny and Lynn are HOME

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Veteran Member

Date Joined Aug 2009
Total Posts : 2447
   Posted 11/12/2009 10:52 PM (GMT -6)   
My friends and brothers, we are home from the hospital. Just arrived at 11:30pm.

Lynn was actually released about 1pm, but they wanted to run one more test. A complete MRI scan of her entire spine. Because of equipment failures and ER emergencies they didn't start until 8:30pm. They are doing a complete work-up and staging of her cancer as they begin to treat the primary issue.

While we are a little tired, we are both in tremendous spirits. And you folks have had no small part in that. Your support has been tremendous. And we appreciate it deeply.

Lynn and I both have appointments Tuesday. She and I will meet with her RAD Oncologist at 1pm and then she and I will meet with mine at 2:30pm.

We have been told preliminarily that she and I should be able to schedule our radiation treatments at the same times each day. She will go for 10 treatments and I am not sure of my number as of yet. By starting them on the same day we will cut the number of trips we have to make, hopefully.

We are really doing fine. You really need to know and believe in that. We are a strong couple, that has been made only stronger by first her cancer and now mine.

While her treatments are a little more delicate, I guess. The news is somewhat better than we first received in the ER. The dr. admittedly was not experienced with MM and told her she has a mass on the brain stem. In reality what she has is a MM lesion in the bone at the top of the spine next to where the brain stem begins. The lesion inside the bone is the cancer beginning to eat at the bone. As it does this the activity causes the bone to swell somewhat and bulge. This bulging is what is putting pressure on the nearby ocular nerves. The RO is a Neurology specialist and is quite confident that the lesion can be radiated (killed) without causing any other damage.

Most of you are a lot more knowledgeable about the IMRT that I will go through, so there is no need for me to go into detail about that. I will of course post about my journey, so that others that follow may find information they are looking for.

I realize that once again this post is not so much about PCa, so to some of you I beg your indulgence. I felt that the outpouring of support that was given to us by you deserved a detailed follow-up.

So thank you my friends. Thank you for your blessings and you own individual way of showing your support. All of this support truly defines the heart and soul of Healing Well.

Sonny and Lynn
61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero

Regular Member

Date Joined Nov 2009
Total Posts : 98
   Posted 11/13/2009 5:51 AM (GMT -6)   

That's certainly encouraging news - thank goodness someone who was experienced did a second read! Our thoughts and prayers remain with you and Lynn.
Age 52, PSA 8.7 Biopsy - 4/12 cores , Gleason 3 + 3 = 6

Regular Member

Date Joined May 2009
Total Posts : 215
   Posted 11/13/2009 6:44 AM (GMT -6)   
That is better news to begin your radiation sessions with and I wish you both the very best on this next journey you are taking together.

Keep well,

Veteran Member

Date Joined Jun 2008
Total Posts : 1804
   Posted 11/13/2009 7:10 AM (GMT -6)   
Sonny and Lynn...great news. Nothing like being home.

You will both continue in our thoughts and prayers. Keep the good news coming, please!

Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (single small EPE in posterior left). Perineural tumor infiltration present. Apex margin, bladder neck and SV negative. Final Gleason 3+4 SA. PSA: 0.0 til July 2009. August 2009 PSA was 0.1, in September it was 0.3 Met with radiation oncologist, CT scan and bone scan clean. Third PSA on October 16 - PSA BACK TO UNDETECTABLE! Next PSA scheduled for early December. No radiation treatment at this time!

Cajun Jeff
Veteran Member

Date Joined Mar 2009
Total Posts : 4069
   Posted 11/13/2009 7:55 AM (GMT -6)   

Sonny and Lynn,  I am very pleased to knowt that you guys are hope..."No place like home"  had an important ring to it.  Your rejuvinated spirit is so uplifting to us as well. 

Get some quality time and rest till Tudesay.  Will be looking for the report on Tuesday evening.

Take care my friend


Jeff T

Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.

Veteran Member

Date Joined Jan 2009
Total Posts : 2211
   Posted 11/13/2009 8:12 AM (GMT -6)   
It sounds like a good report and really glad that you are now at home. Keep us posted and know that all of us are thinking of you.
Dx with PCA 12/08 2 out of 12 cores positive
59 yo when diagnosed
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
Margins not involved
2 pads per day, 1 depends but getting better,
8/5 1 depend at night only
 started ED tx 7/17, slow go
Great family

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 11/13/2009 8:27 AM (GMT -6)   
Sonny and Lynn - much better news than first reported. I know its still serious, but glad they can work with both of you. Getting it done together will be just one more thing you get to do together.

Enjoy your weekend the best you can. Tuesday will be here soon enough.

Your combined strengths are desired by one and all.

Your good friends,

David and Peggy in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

Doting Daughter
Veteran Member

Date Joined Aug 2007
Total Posts : 1064
   Posted 11/13/2009 10:58 AM (GMT -6)   
Sonny and Lynn-
Thanks for the update and your contagious optimism. Wishing you both well as you begin the next step of your journey!!!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum

Regular Member

Date Joined Mar 2007
Total Posts : 460
   Posted 11/13/2009 12:24 PM (GMT -6)   
Glad to hear you are both home and in much better spirits.  Our thoughts and prayers are with you both.
MJ & Jerry
Age 69
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck that formed stones and caused burning and pressure for 9 months.  Finally relief but may now be looking at radation.

Regular Member

Date Joined Sep 2009
Total Posts : 41
   Posted 11/13/2009 12:51 PM (GMT -6)   
Glad you are home Sonny, wes

Veteran Member

Date Joined Nov 2009
Total Posts : 7187
   Posted 11/13/2009 5:02 PM (GMT -6)   
Sound like you are a RADIANT couple!

PSA-- 3/08--2.90;  8/09--4.01; 11/09--4.19 (Free PSA 24%).
History of BPH/prostatitis.
Awaiting results of my PCA-3 test which will determine whether a biopsy is in my immediate future

Veteran Member

Date Joined Jul 2009
Total Posts : 1267
   Posted 11/13/2009 6:49 PM (GMT -6)   
Okay, Sonny, here is THE news:

#1. You may no longer make apologies that Lynn is not a PCaer. By the power vested in me I hereby declare, proclaim, and promulgate a most regal decree that, said Lynn is hereby granted full Honorary PCa status with all rights and privileges thereto appertaining.

#2. I'm pleased -- no, make that thrilled -- you are both home, that her news is better than I feared.

#3. That the two of you are about to start out on such a unique marital adventure Ripley's will no doubt be making note of it, isn't what most people would call good news, but I know you'll understand when I say I'm glad this is working out so well.

While I may be joshing around with #1 above, I feel it is entirely appropriate that you report to us on Lynn. People who think PCa is a disease that only affects the prostate organ are wrong. It also affects our brain organ and messes with our headspace, big time. Lynn is a critical part of your headspace and her MM is as much a part of your PCa journey as how you react to, and deal with, radiation.

Sheldon AKA Sleepless

Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9, so far, so good
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
Oct 1st 09 -- dry at night, during day some stress issues, but better every week. 
Feel free to email me at:    

Elite Member

Date Joined Oct 2008
Total Posts : 25355
   Posted 11/13/2009 7:02 PM (GMT -6)   
I second all of brother sheldon's motions. amen and amen. so be it.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

Regular Member

Date Joined Nov 2009
Total Posts : 85
   Posted 11/14/2009 7:43 AM (GMT -6)   
im glad to hear that you and your wife are home. the journy lies ahead so get some good rest and hit it head on. i told david once that before the sun shines the storm has to pass. hope you have good travels with these next issues. i will be thinging of both of you when i lay my head on the pillow tonight. good luck. neil

Veteran Member

Date Joined Apr 2009
Total Posts : 990
   Posted 11/14/2009 8:37 PM (GMT -6)   
Sheldon nailed it. Treating Lynn is part of your treatment. Being a brother here is more than having PC it is being a part of a caring community -- please keep us informed about both of you.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day

Veteran Member

Date Joined Aug 2009
Total Posts : 2447
   Posted 11/14/2009 9:11 PM (GMT -6)   
Thank you all for your generous outpouring posts of support. My wife has read every one or them. She in fact had me print them out so that she could place them in the binder that she keeps on her travels through her own cancer.

All of us are affected as much mentally, if not more so, by our cancers. The healing of the emotional spirit is what carries us through the times when the body is doing it's own battle and gaining ground only a few yards at a time.

You folks have certainly charged our batteries as we look forward to the next week's appointments.

Sheldon I am not sure that Ripley's would be interested, but I do plan to plant the seeds at MD Anderson that Lynn and I may be the first husband and wife to experience using the same Radiation Machines on the same days to treat our cancers. The least they could do would be to give us some sort of commemorative T-shirts. And you guys know how I feel about unique T-shirts.

In fact I may have to print my own so that we have them to wear when we go in for treatments.

So thank you my brothers and sisters, very much. It is sad to think that so many others are battling their own cancers and never have the level of support that we provide to each other here.

Wishing you all a great weekend,

Sonny & Lynn

Veteran Member

Date Joined May 2009
Total Posts : 2691
   Posted 11/14/2009 9:35 PM (GMT -6)   

Hearing the encouragement in your posts gives me a great weekend.

This cancer stuff may be able to beat down our bodies, but doggone it, we still have our spirits.

Here's to high spirits in Sonny and Lynn's lives, as well as all of us here on HW.

Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injections

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