The good news is that my husband does not have pc. Our trip to Rochester Hills to see Dr. Lee was very good and very much worth the while. We found Dr. Lee and his nurse Ingrid to be extremely nice and professional people. It was the first time I had been in the room when my husband had a biopsy (this was his 4th), and I learned a lot. Dr. Lee found two areas in the very upper transisition zone that were suspicious of infection/inflammation, but did it not have the appearance of cancer. Dr. Lee was very confident that my husband is dealing with prostatitis and not pc, but the only way to find out was through biopsy. He left the choice to my husband and me. Since we had driven two days to see Dr. Lee we wondered if we chose not to biopsy -- 6 months down the road when his PSA would come back high again -- would we regret not getting the 4 core biopsy? Four cores is all that Dr. Lee was going to take. So, my husband went with the biopsy. Before the biopsy was done, antibiotics were administered via IM (a shot in the butt so to speak).
This is where the bad news begins.
After we left Dr. Lee's office we started our journey home
, arriving in Rockford, IL around 5:00 p.m. We got settled into the hotel, went out to dinner, came back and hit the sack early since we knew we had a 10 - 11 hour drive home the next day. Around 2:30 a.m. my husband woke up with shakes so bad -- literally convulsive shakes. He was shaking so badly there was no way I could even get him dressed or in the car to the hospital so I had the front desk call an ambulance. To make a long story short
-- he ended up in the hospital for 5 days with gram negative (Klepsiella) bacteremia
-- and near septic shock
. Fortunately, the ER started him on the right antibiotic
immediately so he did not
lose his life. Our son flew in from D.C. that first night and stayed with us since I was in a strange town and knew no one. He also helped me drive my husband home. I can tell you first hand that septic shock
can come on WITHIN HOURS!!
-- and it is one helluva nightmare. My husband was so incredibly ill and so fast. One thing is for sure -- he'll probably never have another prostate biopsy. BTW, this is no reflection on Dr. Lee and his very competent staff. Whenever an invasive procedure is done and one reads the list of risks, 'infection' is always listed, but like so many -- a person tends to think it really
doesn't happen or it happens to someone else. Trust me, it can, and it does happen.
We are very grateful that my husband survived. He has a long ways to go, but he is getting better each day. It has been two weeks now. We are also grateful that he does not
have prostate cancer
, and for the next year or more he is going to let his prostate rest. Dr. Lee said he was way over biopsied -- so many cores taken over the last couple of years in the area where they were never going to find anything. The main reason we went to Dr. Lee is because it looked like my husband's future was going to be repeat PSA's and biopsies every six months. When TURP
was mentioned that is when we knew we had to get a color doppler
done. Dr. Lee said that my husband was in a cycle where he would get a large sample biopsy
done -- which would raise his PSA and then another biopsy was done and the cycle was repeated every six months. He recommended that my husband not even get a DRE for at least a year so his prostate can do what it needs to do -- HEAL. The inflammation
/infection (confirmed by the pathology report
which said all cores were completely infilterated) was probably caused by his BPH and a bladder
that did not
empty completely. In fact, my husband retains about 250cc of urine in his bladder. NO ONE has ever mentioned this before!! No one has told him that his bladder wall is thickened. No one ever got a core sample that even showed inflammation. Although my husband got so ill we consider the trip to Dr. Lee very valuable. Oh! And for those men, I'm thinking of Dan on this forum specifically, who have a low free % PSA -- another thing we learned... if your prostate is enlarged, the fPSA values are skewed! Dr. Lee only uses the fPSA if the prostate is of normal size. He is mostly concerned about PSA velocity. My husband and I have been so freaked out over his 7% fPSA these last couple of years and NO ONE, not ONE doctor ever mentioned that his enlarged prostate makes that number virtually useless!!
Here is the thread where I talk about my husband's journey for those who are reading this for the first time.
I want to thank each and every one of you on this forum for sharing so willingly your journey. I have learned so much from you.
Post Edited (nodaker) : 11/13/2009 8:53:57 AM (GMT-7)