It's hard to believe, that I am now one year out from my open Surgery (Actual date: 11/14/8), but it was on a Friday.
I have learned so very much about pc in the last year, mostly from the good folks here. I thought I was well read on the subject a year ago, but many lessons have been learned.
It's been a journey of good and bad, a mixed bag as they would say.
Good - the surgery itself, still feel my surgeon did the best job he could, I do not blame him for my one positive margin.
Good - the pathology started out good, and I thought I would be safe for years.
Good - the first post surgery PSA got me in the zero club
Bad - hard to believe that I have been on 9 different catheters since a year ago, total cath time today is 145 days, been on the SP now for 44 days.
Bad - needing 3 corrective surgeries on the bladder neck to urethra connection, and still having issues, thus the SP
Bad - bladder spasms - easily over a thousand or more since Ive started this journey, all because of lengthy cath time, never get use to them, a good one can still make this old buzzard tear up in pain
Bad- getting kicked out of the zero club after my grand entrance.
Bad - going through SRT (still in progress), something I never wanted to do or deal with again in my life time, famous last words from 10 years ago. Its been rough on me as you know
Bad - PSA velocity, pay close attention to this subject: especially newly dx guys or guys suspicous of having PC
Good - the advice, support, friendships, etc I have gleaned from my brothers/sisters here at HW. Thank you Peter for having such an awesome web site. Thank you moderators, for keeping us from killing off each other like a bunch of prissy school girls at times
Good - so far, even being unemployed for 19 months, between my former health insurance and my wife's picking me up with pre-existing conditions, been virtually no money paid out of pocket so far for all these medical expenses.
Thanks - to Dr. Ronald Smith (uro/surgeon) and to Dr. Wilcox (radiation oncologist), for your endless support, listening to your patient, and the level of care you show. And to all the nurses and techs that have to put up with me. Oops, and Dr. Richard Banks, who knows this rotten body well over the years, my GP
Also - it was one year ago today, exactly, that I quit smoking ( 1 1/2 packs a day). Never had even a drag since, don't ever want to again, got enough wrong with me, lol. Dont even miss it.
Just reflecting on the past year. If they can get me to not feel like an endless patient, I will be happy in the new year. I need two or three zeros after the SRT ,I need to be catheter free and be able to pee on my own. Hope that's not asking too much.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place