out comes the cather

hey guys, some more good news. got the ole tube out today. feels great. my urine flow is not as good as i expected but its coming out. i did not experince no burning and no spasms yet. hope not to. trying to limit my liquids for today but tomorrow im going to load up and stay hydrated. used one pad all day. see how that will go tomorrow when i drink alot.    neil

That is great news.  Can you say what surgery you had and how long the cat. was in?  My own robotic surgery is schedule for the end of January.  Need to figure out how much leave to take.  Though after 2 or 3 works, could return to work, but work out of my home.  Leaking is one of my main concerns with the surgery.

Plugedup. That is great news....You should be dry in short order if you are using only 1pad a day.

Jeff T

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Jeff T Age 57

9/08 PSA 5.4, referred to Urologist
9/08 Biopsy: GS 3/4=7
10/08 Nerve sparing open RRP- Path Report: GS 3+3=7 Stg. pT2c, margins clear
3 mts: PSA .05 undetectable

10th month PSA <0.01
1year psa <0.01
ED- 5 mg Cialis daily, pump daily, going to try MUSE next. Next step injections.

Congrats on the removal of the ole ball and chain. Sounds like you are off to a great start.

Looking for great posts from you in the future,

Sonny

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61 years old
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
<5%, 90%, 40%
Gleason Score (3+4) 7 in all positive cores
CT Organ Scan - negative
Nuclear Bone Scan - Negative

da Vinci 9/17/09 Dr. Mani Menon Henry Ford Medical Institute

Post Surgery Pathology:
Gleason: Changed to (4+3) = 7
Stage: T3a
Tumor Volume 12.5%
ALL NERVES SPARED
Margins: focally positive right posterior mid level
Perineural Invasion: present
Seminal Invasion: absent
Venous Invasion: absent
Angiolymphatic Invasion: absent
Left Internal iliac lymph node: reveals zero
Right Internal lymph node: reveals zero

Neil, glad to hear your rubber tail is a thing of the past, and at one pad you're making exceptional progress!

Thanks for the report.

Sheldon AKA Sleepless

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Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5

thanks guys, dont know how this cather out bussiness will work out. you know every time you think its going your way pc throws another curve ball. i can only think positive now. for seppburgh i hade the da vinci surgery and within two weeks i was ready to do things in the garage. but im an electrician and couldnt go back to work for at least five weeks. not working now because of the cather issue wich i kept for two months. i will return back to work after thanksgiving. by all means im not telling you to get the davinci. review all your options. but most of all whatever surgery you have listen to you body. it will tell you when your felling good enough to do things. good luck with your desion. neil

plugedup,

If you made it through one night--congratulations! That's the first milestone out of the way.

Maybe you should change our name

DJ

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Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09 still undetectable!

Sounds good. remember walk, walk, drink, drink. peeing your pants is much less important than letting your body heal properly.
I found that my urinary stream was weak for months but has been gradually improving.

SEPPBURGH
I took two weeks from a desk job. I could have cut it to a week and a half but my boss didn't want to hear that.

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Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day

If you had your catheter taken out, you shouldn't be worried about bladder spasms, they are usally the result of having a catheter in place.

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Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out  38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - began IMRT SRT - 39 sess/72 gys cath #8 33 days, 11/2- SP Cath #9 in place

im not changing my name yet. today didnt go so well. the urine is slowing down alot. made it through yhe morning alright then after my nap went to p nothing would come out but a few squirts. i had a full bladder and with nothing coming out had severe spasms. had to self cather. this afternoon doing alright but i thing im blocking up again. back to the plumber as soon i can get an apointment with doc. she saidi had no blockage but the proof is in the p. neil

plugedup,

Well, you are the first person I've heard of to self cath after PC surgery. I sure wished I'd been allowed to do that. Hope it is letting you tolerate life for the time being. Some people I know self cath as part of their daily life. Other people find this hard to believe. But it can make a nearly normal life possible.

Sorry to hear you had bad spasms too, with no catheter. Please keep us posted.

DJ

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Diagnosis at age 53. PSA 2007 about 2; PSA 2008 4.3
Biopsy September 2008: 6 of 12 cores positive; Gleason 4+3 = 7
CT and Bone scan negative
Da Vinci surgery at City of Hope December 8, 2008
Radical prostatectomy and lymph node dissection
Catheter out on 7th day, replaced on 8th day, out again 14th day following negative cystogram
Pathology: pT2c; lymph nodes negative; margins involved; 41 grams, 8% involved by tumor; same Gleason 4+3=7
PSA 1/22/08 non-detectable! 8-)
4/23/09, 07/30/09 still undetectable!

hey guys, the self cather is a life saver. easy to do no pain. the little discomfort fron the tube surly out weights the pain from a full bladder. when i have a full bladder i cant p. if i stay on top of things i can p enough to keep bladder comfortable. with out a stricture i dont know what is happening. yea life is better without the cather, self cather is not normal but it sure beats going to er. i still have the spasms with out the cather when my bladder is near full and i cant p. i geuss i can cange my name to sometime pluged. neil

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49 years